Braking AIDS Ride in 150 Seconds

One of the questions I get most frequently about the Braking AIDS Ride is about why I keep going back for more. I mean, let’s face it. Biking nearly 300 miles in three days, rain or shine, sound like… well, it sounds like lunacy.

That three-day lunacy every September also means that beginning every March and April, most of my weekends are all about training. Not brunch. Not going out. Not staying in bed with my devoted wife, who loves me and this cause enough to let me make her a bike widow for four to six months every year. Not snuggling with my dog. Not seeing friends. Not reading. Not writing. 

Have I mentioned no brunch?

Every weekend, each time I cycle up the long Alpine hill at the northern end of Palisades Park, I keep hoping that a brunch feast like this will be waiting for me when I get to the crest and  then roll into at the rangers' station. I've been riding that hill for years now. Where are my damn poached eggs?

Every weekend, each time I cycle up the long Alpine hill at the northern end of Palisades Park, I keep hoping that a brunch feast like this will be waiting for me when I reach the crest and then roll into at the rangers’ station. I’ve been riding that hill for years now. Where are my damn poached eggs?

I’ve written many a wordy post articulating the numerous reasons I am thrilled to participate in this cause and on behalf of Housing Works and this ride, despite the lack of poached eggs available on River Road in Palisades Park. Words are my strongest medium, but I have a great appreciation for the visual as well. The fine folks at Black Watch Productions, who have been participating in and documenting the ride on film every year since its inception, have managed to capture the spirit of the ride in 150 seconds. This is why I keep going back:

For those of you looking for my Hollywood close-up, I don’t appear in the fine bit of footage above, but I do make a few cameos in a slightly longer segment that appears on my Braking Aids Ride donation page. My heroic partner’s amazing efforts as a ride crew member are well-documented in that video as well, beginning around Minute 5; fashionable as ever in her adorable stripey hat, she’s one of the angels literally pushing and running alongside bikers who are trying to claw their way up Mount Archer, the toughest hill on the route. As for me, at 5:40, I prove, in case anyone doubted it, that I’m incapable of climbing Mount Archer without an expletive or two, and The Blue Streak and I, back by popular demand, show up again to wave at the Black Watch folks, on decidedly flatter ground, at 7:26. For those of you dying to see me in spandex, this is your chance.

[INSERT SHAMELESS SELF-SERVING PLUG: Yes, there’s still time to donate! After you’ve enjoyed the donation page video antics, while you’re there, why not make a ride donation to support Housing Works and its amazing work to fight AIDS/HIV? As of this writing, I’ve raised $6,400, 64% of my $10,000 goal, and I need your help to make the remaining 36%. Donate, donate again, and please share the link to this blog and to my donation page (http://bit.ly/ZGvJZl) with your friends, your family, your colleagues!]

And to those of you who’ve donated already, I can’t ever thank you enough. I think of your support, your kindness, and your encouragement with every single pedal stroke on the road.

Women on Bikes! Getting My August Training-Ride Bearings

The summer has zipped by in rather frightening fashion. It’s only two months until Braking AIDS Ride 2013 begins, which means I need to put in some back-to-back long training rides this weekend.

Bearings, for sale here, Charles A. Cox, c. 1890.  Courtesty of Posters: Artists Posters Collection, Library of Congress Prints and Photographs Division.

Bearings, for sale here, Charles A. Cox, c. 1890. Courtesy of Posters: Artist Posters Collection, Library of Congress Prints and Photographs Division.

In my fantasy version of doing back-to-back training rides, a fantasy that tends to dominate my foggy, exhausted thinking at 6:00am on Saturday morning when I’d rather remain in bed, the weather will be as beautiful and mild as it’s been most of this week, the wind will be at my back, the hills will feel like flats, the flats will feel like downhills, and the downhill cruises will feel like heaven on earth. In that imaginative rewrite of my training days, it feels as though the leg power of five other women are powering me and my bike, and the riding is such a piece of cake to us, we’re all reading fashion magazines as we cycle. (For anyone who’s asking, in the illustrated rendition of this fantasy above, I’m the raven-haired woman in front of the blonde caboose rider.)

In reality, it’ll be me, by myself, pedaling on my own steam, trying as best I can to push myself but also live into whatever my body can do that day and whatever the road brings me. What’s nicer about the reality version: Nothing feels better than the moments when I work hard and it pays off. Sure, it would be easier if the roads all felt flat, but then, so would my mood. The highs are that much sweeter when they are hard-won. So, whatever comes these next weeks, bring it on.

On the other hand, while I can forgo the other five women helping me pedal, but if anyone knows where I can get those amazing, red knee-high cycling socks, please contact me ASAP.

To support me and my invisible tandem-bike harem to support Housing Works and fight AIDS, you can still donate here!  I’m at 54% of my $10,000 goal, a sum that’s been achieved, to my amazement, in only a month. So, I’m more than halfway there, and the rest, I hear, is, well, at least partially downhill. Donate early and often!

HIV/AIDS: Good News, Bad News, Red Fish, Blue Fish, Loveship, Courtship, Pos-Ship, AIDS-ship, Sickship, Oldship, Deadship

It’s hard to believe that it is late July already. My last post on here was in March. It has been that sort of season. Busy but erratic. Insane weather that went from unseasonably cold to sweltering almost overnight.

Me, wet and cold, but happy, on Day 1 of last year's Braking AIDS Ride, Friday, Sept. 29, 2012. Photo by Alan Barnett.

Me, wet and cold, but happy, on Day 1 of last year’s Braking AIDS Ride, Friday, Sept. 29, 2012. Photo by Alan Barnett.

In truth, though, I think I have postponed writing on this blog this season because I was struggling to figure out what I wanted to say. How my thinking about doing this 3-day, 285-mile bike-ride fundraiser and continuing to support this cause—the fight to end HIV/AIDS—in this way has evolved. This is going to be my sixth AIDS Ride, my fifth since 2008 with the Braking AIDS Ride group. I’ve ridden over 10,000 miles on a bicycle and raised almost $45,000, all in the name of supporting beneficiaries that offer crucial HIV/AIDS services. Isn’t that enough? Why am I still at it? What is the big deal about HIV? What’s changed since 1999? What’s different about the way I think about this in 2013? Why do I continue to fight this particular fight?

These questions are easy to ask, but authentic answers are elusive. I find that now that me asking for help to support this cause is no longer a novelty—just as the disease and the fight to end it are no longer new—I don’t always know what to lead with when I reach out to people about it. I am tired of HIV/AIDS, and even I am tired of doing what journalist Randy Shilts called “Talking AIDS to Death” in a 1989 Esquire article with that same title.

It's official. According to the popular wisdom, AIDS has been old news for a decade and a half. This Esquire cover hits the stands in March 1999, six months before I did my very first AIDS bike ride.

It’s official. According to the popular wisdom, AIDS has been old news for a decade and a half. This Esquire cover hit the stands in March 1999, six months before I did my very first AIDS bike ride.

What do I say to people today about AIDS, especially people I know who have heard so much of it, if not all of it, before? Where on earth do I begin? Do I lead with the good news? Everyone likes stories about progress. I, too, like stories that suggest we’re getting somewhere, that our efforts help. And we are making progress, no doubt about it. Or do I lead with the bad news? We are getting somewhere, but HIV/AIDS still affects countless people, and it remains a horrific, sometimes fatal disease, which is why we still need to keep up the work. Do I scare people to remind them that resting on our laurels and thinking the HIV/AIDS is now someone else’s problem—Africa’s problem, or Southeast Asia’s problem, or a Caribbean problem—is just about the worst thing we all can do?

Per usual, I decided to split the difference and do both. So, the good news and the bad news:

I fight this fight to end HIV/AIDS, and I ask for continued support for Housing Works from practically everyone I know year after year because HIV is old news. AIDS has now been around so long, it was considered old news even back in 1999, the year I did my very first AIDS ride, as beautifully illustrated by the March 1999 Esquire cover reproduced here.

In past years, I’ve usually set my fundraising goal at $5,000. Because AIDS is considered yesterday’s news, this year, I am doubling my efforts, and setting my fundraising goal at an ambitious $10,000.

Despite our progress, the battle against HIV/AIDS is far from over. My feeling is that one of the biggest growing challenges is reminding and in many cases, persuading people that HIV is still a big deal, a problem worthy of our time, our attention, and our financial support.

Yes, we have come a long way since the 1980s, when most people who contracted HIV died painful, ugly deaths that were both too long and too short. Too long in terms of the duration of suffering, for them and those who loved them. Too short in that the disease’s victims in those early days lasted a year or two, months, sometimes weeks. Today, in the nations where testing and treatment are affordable and readily available, the U.S. among them, HIV has become something you can live with for a very long time. That is the good news. And in contrast to 20 years ago, it is very good news.

The bad news, unfortunately, is exactly the same: that HIV has become something you can live with for a long time. The bad news is that people know that HIV is manageable, but what they have less knowledge about is what living with it entails.

Here are just a handful of reasons why complacency surrounding the fight against HIV/AIDS is so dangerous:  

The statistics that demonstrate that HIV and AIDS are still a real problem continue to go up every year, even in the United States. 34 million people worldwide live with HIV today, 1.2 million in the U.S. alone. The global death toll exceeds 25 million. There is still no cure and no vaccine.  

Since I rode my bike 285 miles last year for this same cause, some 50,000 Americans have become newly infected with HIV. That is likely to be the case next year as well. For a while now, the annual rate of new infections has become pretty stable in this country. Is this better than an infection rate that’s increasing, as it did for decades? Of course.  But it is a low bar we’re setting, too low, when we convince ourselves that an annual, new HIV infection rate equal to half the population of Flint, Michigan, is good enough.

It’s supposed to be good news, but the truth is that the annual rate of new HIV infections in the United States is equal to half the population of Flint, Michigan. That’s 50,000 new people with HIV every year, for anyone who is counting.

imageMore disturbingly, one out of five Americans does not know his or her HIV status. About 1.2 million Americans have HIV, so that’s nearly one-quarter of a million people in this country who are likely to be spreading the virus unknowingly to other people.

Many kids in the U.S. aren’t learning about HIV in school. A startling 28 states in the U.S. do not have education requirements that mandate both sex education and HIV education. Irrespective of one’s religious beliefs or politics, that lack of access to health education is simply criminal. I was in high school from 1987‒1990. I still laugh when I recall the video on safe sex that we were forced to endure; the film was called Condom Sense, it was made in 1982, and in one scene, the narrator characterized wearing a condom as being like standing in a shower fully clothed with a rain slicker and rain hat on. We joked around in class when a banana was used to demo how to put a condom on properly.

banana condom

This is how sex education was taught in the 1980s when I was in high school. Image courtesy of the National Institute of Health.

But whatever else I can say about sex education during that period of time, I can say without hesitation that an awareness of and accurate knowledge about HIV and other STDs, as well as about safe sex practices, was an inherent and probably the biggest and most important part of what we learned. Even as fearless teenagers who believed we were going to live forever, we knew it was crucial to pay attention to information about HIV—because if we didn’t learn it, and understand it, and take it to heart by practicing safe sex when we became sexually active, it might kill us.

New HIV infections are highly concentrated in people between the ages of 13 and 24, an age group that is less likely to get tested and treated, possibly because those young Americans are too young to remember the days when HIV was a death sentence or—see previous paragraph—because they don’t have accurate knowledge about how you get HIV, how you prevent it, how you get tested for it, how you treat it, and how serious it is. These Centers for Disease Control stats make alarm bells go off in my head: Only 33% of Americans between age 17 and 24 were tested for HIV in 2012, and a scant 13% of high school students were tested for HIV in 2011. As a result, half of the Americans under the age of 24 do not know their HIV status.

A lot of people think HIV isn’t a big deal anymore. They’re wrong. HIV can now be manageable. That doesn’t mean it’s no longer a major health threat. HIV is not easy to live with and treat. Even with early diagnosis and proper treatment, managing it doesn’t mean you won’t get sick or suffer, and it doesn’t mean you won’t die. Jay Varma, representative of the NYC Department of Health and Mental Hygiene, summed it up best in a recent article on Bloomberg.com: “Even when someone with HIV is controlling it through medications, his or her immune system will never be fully functional.”    

I hate having to type that last paragraph. I have more friends than I can count who have HIV. Many of them have lived with it for years. I’m glad to say many of them are healthy. They are stoic and optimistic about how they approach the disease. They are also brave. But they don’t just pop a pill that’s as benign as an Advil or a Vitamin C and call it a day. I plan to write another post that’s more about this aspect of the cause—because it’s worthy of that time and space.

Kyle Spidle, fellow rider and a PosPed (an HIV-positive rider), giving crew member Amy Hemphill a kiss for helping him fix a flat. Kyle was the first victim of the meningitis outbreak that began last year. He died a week before last year's Braking AIDS Ride. He was 32 years old.

Kyle Spidle, fellow rider and a PosPed (an HIV-positive rider), giving crew member Amy Hemphill a kiss for helping him fix a flat. Kyle was the first victim of the meningitis outbreak that began last year. He died a week before last year’s Braking AIDS Ride. He was 32 years old.

For now, I will leave you with this story: Last fall, a week before I traveled to Boston for the beginning of Braking AIDS Ride 2012, I got a message that my friend and fellow rider Kyle Spidle, who had been living with HIV since 2008, had passed away in his sleep. On Wednesday night, September 19, he went to bed early because he had felt slightly flu-ish. He never woke up. We didn’t know it at the time, but Kyle was the first victim to the current bacterial meningitis outbreak. That outbreak has since been widely reported. The part that tended to be under-reported is that the first victims of the meningitis outbreak were all HIV positive. HIV put them at greater risk across the board—of contracting meningitis, of having a more severe infection if they contracted it, and at greater risk of dying from a meningitis infection. Kyle was 32 years old.

Kyle, lugging for the camera, during the ride in September 2009. Don't let the smile and the hot bod fool you. He wasn't just a pretty face, and everyone who knew him misses him dearly.

Kyle Spidle, mugging for the camera, during the ride in September 2009. Don’t let the smile and the hot bod fool you. He wasn’t just a pretty face, and everyone who knew him misses him dearly.

As I said in my first, recent wave of solicitations to friends and family to donate to support me in the Braking AIDS Ride this September, I will ride this year in memory of Kyle and in memory of others like him. I will ride, as I do every year, in memory of Curtis and Daniel, two family friends whose deaths from AIDS in 2003 and 1987, respectively, I wrote about in previous posts on August 16, 2012, and August 29, 2012, and I will ride to support the many friends I have who are infected with HIV and for the countless others who are affected by this terrible disease.

The good news is that in the short time period since I sent out those calls for help, I’ve raised 32% of my fundraising goal of $10,000. If you’ve read this far, you already know what the bad news is.

WHERE YOU CAN DONATE TO SUPPORT ME IN BRAKING AIDS 2013:

Why, my fundraising page, of course! Donate early and donate often!

SOURCES:

Samuel Adams, “Meningitis Outbreak Spurs Effort Before Gay Pride Events,” Bloomberg.com, June 18, 2013.

Esquire AIDS Crisis issue, March 1999.

Tara Culp Ressler, “5 Things to Know in Honor of National HIV Testing Day,” June 27, 2013, Thinkprogress.org.

Randy Shilts, “Talking AIDS to Death,” Esquire, March 1989, p.123.

Signs of Spring

I can think of no better way to usher in the long-awaited vernal equinox than by posting about the following causes for celebration: the recent re-openings of Red Hook’s Fairway and the Red Hook Lobster Pound in Brooklyn several weeks back and my first training ride of the season on Saturday, March 9.

Post-hurricane Red Hook recovery update. Here’s today’s New York Times article about the ongoing Red Hook recovery. Now that the weather is improving and local Red Hook business are opening their newly renovated doors again, please come visit! I can personally vouch for the delicious lobster rolls at the Red Hook Lobster Pound. If a trip out to Brooklyn is too far-flung for you, check the Red Hook Lobster Pound Twitter feed to see if and when the NY Lobster truck will be restarting its Midtown rounds.

To everyone who offered support of any kind to Red Hook and other neighborhoods devastated by Hurricane Sandy during the past five difficult months, thank you again! Little by little, signs of renewal are appearing.

The new bakery at the reopened Fairway in Red Hook. Image courtesy of February 28 Zagat blog post.

A fresh lobster roll from Red Hook Lobster Pound. Image courtesy of March 4 Zagat blog post.

Bike Training 2013. My March 9 training ride took place the day after the Freaky Friday snowstorm that hit us on March 8. My Braking AIDS ride compadrés had scheduled the event as a way to welcome newbie riders and to open the season with a gentle if chilly ride. No one was expecting the snow we got, and on Friday afternoon, a flurry of emails went back and forth.

Me: “Are we still riding tomorrow? It’s really coming down.”

Rider coach Blake Strasser: “Yes! It’s supposed to go up to 50 tomorrow, so it will all be melted by morning.”

The photo below was taken when I left my apartment the following morning to ride to the group meeting point at the Columbus Circle end of Central Park.

My Braking AIDS water bottle, outside my apartment before my first training ride of the season ride, Saturday, March 9, 7:45am.

My Braking AIDS water bottle, outside my apartment, before my first training ride of the season, Saturday, March 9, 7:45am.

Blake’s forecast was…somewhat optimistic, but she wasn’t wrong either. The snow stuck it out for several hours and the air was crisp, but the roads were clear and the sun was out. So I pumped up The Blue Streak’s tires, had a smoothie and some coffee, filled a water bottle, layered up, and hit the road, careful to avoid ice patches along the West Side bike path. I arrived at 59th and 8th Avenue under the golden USS Maine National Monument at 8:15am and was surprised and thrilled to see so many Braking AIDS riders had come out. A special shout-out of gratitude goes out to Kristofer Velasquez and Joseph Rivera for leading and caboosing the group ride that morning. The new riders who showed up get extra props; Friday’s snowstorm made plenty of veterans decide to roll over and sleep in Saturday morning. Most folks did a loop and a half around the park. I wanted to push myself and did two full loops. We then made our way down to the Chelsea offices of Global Impact, which produces and runs the Braking AIDS ride every year. Eric Epstein and Blake Strasser, two of the Global Impact staff quartet (the fourth being Sasha, Eric’s Vizsla, who also serves as the office manager), greeted us with coffee, hot chocolate, and three kinds of breakfast pastry. Sasha greeted us with kisses and snuggles and body rubs. Who can argue with that? We ate, we drank, we rested, and most of us stayed for the ride preview before heading home.

Training Ride #1: 28 miles total. It felt great to be on The Blue Streak again. Not bad for a snowy day in March.

Braking AIDS 2013, which will again benefit Housing Works, takes place this coming September and will be my sixth AIDS ride, my fifth with the Braking AIDS organization and community. Let the training and fundraising begin! Happy spring, everyone.

Riders from the first Braking AIDS Second Saturday training ride of the season, warming up with coffee and hot chocolate, post-ride, Saturday, March 9.

Riders from the first Braking AIDS Second Saturday training ride of the season, warming up with coffee and hot chocolate, post-ride, Saturday, March 9. That’s me in the back row, center, holding up my cup of hot mocha.

Braking the Cycle Postscript 2: Lifecycle of a Donation to Housing Works

Housing Works recently posted this infographic on their site. It’s a cool visual of how the generous donations made, via Braking the Cycle or in general, support the work and services being done there.

Braking the Cycle Ride Postscript 1: The Blue Streak Hits Mile 9,000 and Keeps On Going

It’s been almost three weeks since I completed Braking the Cycle 2012. Long enough for me to take my bike, The Blue Streak—her gears crunchy with grime and dirt, brake pads worn to the nubs after riding through rain for more than 100 miles, tires thinned and pocked with tears from flats—to the bike shop for a much-needed tune-up, new brakes, new tires. Long enough for a dozen more donations to come in. Long enough for the total mileage logged on The Blue Streak since I bought the bike to have exceeded 9,000 miles, a glorious bench mark I anticipated in my first blog post. But not long enough for me to write a postscript that will do my experience of the three days of the ride itself justice. This isn’t going to be that post.

Lost in the backwoods of hilly Connecticut, near the end of Day 2, after nearly 200 miles of riding. The thought bubble above my head would read, “Thank God, an oasis.” (On Braking the Cycle, a rest stop is called an oasis.) You can’t tell from my smile here, but I hate Gatorade. Photo by Alan Barnett Photography.

What I will say now is that the three-day ride was a microcosm of my whole, erratic summer: I rode as hard and fast as I ever have. I crawled uphill. I felt fantastic. I felt half-dead with exhaustion and everything hurt. I wept while pedaling. I sometimes had no idea if I could go on. I rode at the front of the pack. I caught a brief glimpse of the caboose, the two riders designated to be the tail end of the ride, chugging along behind everyone else. I was freezing and wet. I got windburn and was overheated. I discovered again that I am stronger and more tenacious than I realized—and that continues to surprise me. I forgot why riding 300 miles on a bicycle felt like a good idea. I forgot why doing anything besides riding my bicycle seemed like a good idea. I thought of every person I know, living or dead, who is affected by HIV. I thought of the recent wave of people I know who are my age and who have either died unexpectedly during the past year or who are braving and battling awful, progressive illnesses of all kinds, none of them HIV-related. I contemplated my mortality. I sang dumb pop songs, admired the foliage, inhaled the smell of autumn, and thought of nothing deep or nothing at all. I rode alone. I met and reconnected with old friends on the road. I made new friends on the road. I drank too much Gatorade. I drank too little Gatorade. I ate bananas, bananas, bananas. I found laughter in unexpected places. I was moved to tears by strangers. I was met with affection and cheerleading and applause at least once an hour, for just existing and showing up. I trusted the training. I doubted myself. I believed in myself. If one element was constant, it was only this: I kept going.

The more detailed blog-post summary of our civil rights march on two wheels, spanning three days  across four states, will take me a little while longer to get around to writing, but in the interim I wanted to share some details about what happened when the ride was over because it deserves its own entry.

The check for nearly $221,000 that we presented to Housing Works at closing ceremonies, Sunday, September 30, 2012, 5:30pm. The actual final total will be higher, as riders and crew continue to fundraise until the end of October. Photo courtesy of Rich Biletta.

The first item of note is a series of numbers I’m joyful to share. By virtue of the subject matter of AIDS and HIV, most of the statistics I’ve referenced these past months have been unsettling, sad, infuriating. It’s therefore with a joyful heart that I can type this new figure for the books: As Sunday, September 30, 5:30pm, Braking the Cycle 2012 raised nearly $221,000 for Housing Works in the fight against HIV, AIDS, and homelessness. That amount has also been climbing rapidly in the weeks since, as post-ride donations continue to come in.

As of this writing, thanks to the financial support of the 134 generous souls who sponsored my personal ride efforts this year, and whose names are listed at the end of this post by way of acknowledgment and with all my gratitude, my portion of that handsome $221K+ sum totals $9,710. For those of you who work in sales or who like to see such totals framed against concrete, forecasting goals, $9,710 equals 129.5% of my final target goal of $7,500. I say “final target goal” because my original goal when I began fundraising in early July was $5,000. In mid-August, when the going was slow, I even had a panic-stricken week that I wouldn’t reach the $5K, no matter how many times I hit “refresh” on my First Giving website page every few hours. (O ye of little faith, Mika!) I was thrilled when I hit that $5,000 goal and was able to raise the target by 20%; I had no idea that I would end up raising it again twice more after that. So, needless to say, to have achieved a sum that is 194% of my original target goal has me astonished and approaching speechlessness.

The donations I received ranged in size from $20 to $725, and every bit counted and helped. These acts of kindness and support represent a diverse array of humanity residing in three different countries, including 18 states across the U.S. Contributions came from my closest friends and family, from colleagues, and even from people I’ve never laid eyes on. To each and every one of you who supported me throughout this challenge, and what proved to be a particularly difficult season, I could not have done it without you. Thank you again and again. You inspire me with your encouragement and with the expansiveness of your hearts. (And yes yes yes, if you’re reading this and thinking, “Damn, I meant to donate…” or “Wouldn’t $10,000 be a much nicer, rounder number as a total than $9,710…” or “To hell with that Fall Clearance sale, I think I’ll donate to Braking the Cycle and Housing Works a second time…”, the donation link is still up and running, and you can still kick in for another 7 days or so. For those of you who have had just about enough of my relentless BTC pitches and reminders, I know it may seem like the 15th Cher Farewell Tour—never quite over—but this really is last call for BTC 2012.) An additional thanks goes out to those who were unable to donate this year, but who have been continual cheerleaders and sources of love, inspiration, and encouragement, and who have expressed faith in me even when I didn’t have much in myself. You know who you are, and your generosity of spirit has kept me going all these months and all through the ride as well.

The second thing I’d like to share is a recap of the ride’s closing ceremonies, which took place at 5pm on Sunday, September 30, in front of Cylar House, a Housing Works facility on 9th Street near Avenue D, with the victory party following right afterward inside the building. Over the course of that afternoon, all the riders finished the last miles cycling through the Bronx and down the east side of Manhattan, to a holding area three blocks from Cylar House where we were gathered so all 90 or so of us we could ride to the ceremonies together and arrive as one big group, followed by the amazing volunteer crew.

Me, with speedy BTC rider Glenn Hammerson, gleeful after finishing the main ride route and arriving in the holding area three blocks from closing ceremonies, Sunday, September 30, around 4PM. Photo by Alan Barnett Photography.

Braking the Cycle riders gathering together in the holding area on East 12th Street, three blocks from Housing Works’ Cylar House, where closing ceremonies took place. This way, we get to ride in all together. Photo courtesy of Joseph Miceli-Magnone.

When I rolled in to Holding, I was relieved, thrilled, and excited on the one hand, but I also was nervous. About a week and a half earlier, rider coach Blake Strasser had emailed me to ask me if I would be one of the speakers during the ceremony. (The other speakers were Charles King, Housing Works President and CEO and BTC Rider #2;  Eric Epstein, President of Global Impact, which has produced the Braking the Cycle ride since its inception a decade ago, and fellow BTC rider CB Kirby. Amazing jazz vocalist Thos Shipley also sang.) My first reaction to Blake’s request was to blush because I was flattered. My second reaction was, “You couldn’t get a gorgeous, articulate gay man who looks fresh as a daisy after cycling 300 miles to do it?” My third reaction was, “What? Margaret Cho wasn’t available?” My fourth reaction was abject terror and “?!*&#@.” My fifth reaction was to remember that at the closing ceremonies of my three previous Braking the Cycle rides, I was so exhausted, I could barely recall my own name. Those reactions took less than 30 seconds collectively, and then I wrote a reply email to Blake saying I’d do whatever she wanted, happily, and if speaking at closing was it, I’d be honored and privileged to do it.

Me with gorgeous Colby Smith, an incredible athlete (he did his first Ironman last month), in the holding area, post-ride, right before closing ceremonies. Yes, he always looks this good after riding 300 miles, and this was the kind of BTC runway model I was picturing as I contemplated who would make for a better closing ceremonies speaker than I. Colby is also a funny, smart, kind human being. Who *is* this guy? Photo courtesy of Colby Smith.

Over the next week, during which I did my last training ride and massive amounts of laundry to prep for the ride, I had just enough time for the reality of what I’d committed to doing to sink in. I had done presentations, lectures, discussions, speeches for groups of all sizes in all sorts of contexts before, but this one had me nervous. I’m never at my best when I’m sleep-deprived, and I also knew the moment would be too emotional for me to be able to wing it. I also wanted to try to say something that would resonate with all the audiences who might be there—the riders and crew, also exhausted and elated; all their families and friends, including many people who had donated to the ride; Housing Works staff; and Housing Works clients, past and present—something that wasn’t canned. I spent a week thinking about it, and the week of the ride, I drafted it on Tuesday night, I had Jen read it and edit it on Wednesday, I sent the mostly final version to Blake on Thursday, the day we drove up to Boston for ride orientation, and I practiced it a few times during the lulls that day. Thursday night, I gave a spare copy to Jen to hang onto as a back-up, and I folded my copy into a Ziplock bag to protect it. That plastic bag stayed with my baggage for my first two days (and 200 miles) of riding, and then went into my cycling jersey pocket at 4am on Sunday morning before I peeled out of Bridgeport, Connecticut, with my fellow riders at 6:30. And with me it stayed for 85+ miles until we arrived at Housing Works in the East Village.

The 85 or so miles of riding that day were challenging enough to keep my mind off the speech. But my anxiety came back in a rush during that extended period of hanging around in the holding area, hugging other riders as they arrived, drinking coffee to wake and warm myself up, taking bad candid pictures with ultra-photogenic, attractive people, texting friends who had left messages. I would momentarily forget about it while congratulating another rider, and then some part of me would seize up with the memory that I was going to have to Pay Attention and make sense. Dear God, I had to talk? In front of other people? About something that mattered? What had I been thinking?

Woot woot! Me on Day 3 in New York City, finishing the official ride route as I pulled into the holding area on East 12th Street. My nerves about having to talk at closing ceremonies kicked in about 15 minutes after this was taken. Photo by Alan Barnett Photography.

I must have been jacked up enough with nerves that what followed after I gave the speech is even more of an adrenaline blur than the ceremonies of previous BTC rides. And possibly because this was my fourth Braking the Cycle ride and no longer the novelty that it once was to those who know me, I was amazed by all the people I knew who showed up to greet us and me, how warm they were, how touched I was to see their smiling faces, to get a hug from each of them. The people who are the biggest, most personal reasons I do this ride were standing right up front. One close friend and training buddy brought me an entire box of cupcakes. Another had driven up to East Lyme, Connecticut, to cheer me, and all of us, up the dreaded Mount Archer on Day 2 of the ride, and he was there again at closing ceremonies, cheering and helping with bike check-in and storage. Dear friends who were previous BTC riders and crew were there, too, whooping and hooting. My parents came and surprised me by bringing my brother, who lives out of town. A number of friends surprised me, too. One who I wish I saw more often came, and when I said, “I had no idea you’d come,” he smiled sweetly and said, “Of course I came.” My oldest childhood friend didn’t tell me she was coming at all, and then surprised me by showing up. Two of my closest friends from work came; they are each far more than what we usually deem as work friends—to me they are simply friends in the truest sense, and the work link is secondary and largely incidental—and yet because office-based connections come with their own peculiar social oddities, formalities, and awkwardness, I was especially surprised and moved to see them.

With fellow riders (Chad Woodard and  Matt Martin to my left, Rodney Newby to my right) on Avenue D, about to turn the corner onto East 9th Street where a big crowd of applauding friends, family, and other supporters awaited us. It is a mystery what I might have swallowed to produce the beautiful expression on my face. Photo courtesy of Roger Lovejoy.

But when we first rode down East 9th Street, I didn’t see anyone I knew well. All I saw  was a massive crowd of people, which in that initial moment, moved me instead of scaring me. It had been threatening to rain all afternoon—we had been doused by a brief shower when we cycled through Harlem earlier—it was chilly, and yet these loyal, tender-hearted people were standing, waiting, cheering, for us. I had been told to position myself near the stage, and when I got there, I had barely dismounted when I noticed several middle-aged African-American women approaching me and the riders immediately around me. We didn’t know them. They were strangers, and yet the second they saw us, their faces lit up and brimmed with emotion, and they moved toward us with outstretched arms. Without even consciously thinking it, I understood they were Housing Works clients. The one nearest me hugged my shoulder, kissed my cheek, and over the din of the crowd’s applause and cheering, she murmured in my ear what I am certain the other women were saying to the riders they were embracing: “Thank you. Thank you so much.” They didn’t have to explain further. It was in their voices. It was evident in the way a stranger wrapped herself around me without hesitation.

One of the women who first greeted all the Braking the Cycle riders as we arrived at closing ceremonies. I believe this was taken at some point during my brief speech a few minutes later. Photo by Alan Barnett Photography.

With that gratitude ringing in my ear, my heart swelled. As for my anxieties, they didn’t disappear; they just ceased to matter. The energy from everyone there was what was thrumming around me and in me when Eric made his introductions and I heard him call my name to prompt me to come up to the stage. I took in that none of the stage set-up was great. The sound system was iffy. The mic didn’t have a mic stand, so I had to hold the mic with one hand while I propped the pages of my speech up against the podium with the other. My hair, ever frizzy in rainy weather, kept whipping about and getting caught on the mic. The wind picked up and flapped at the pages of my speech. None of it mattered. I took a deep breath, I talked for a few minutes, and the crowd of people in front of me listened, and clapped, and listened some more. People clapped afterward and said nice things. We went to the victory party, where I hugged and chatted with some friends more; I ate a cupcake and drank the best beer I drink all year; and Jen and I cabbed it home with my bike in tow. Since then, some folks have expressed curiosity about the speech, so I have pasted the written manuscript below. Minus, of course, the spontaneous ad-libbing I did onstage, this is what I said:

Me, talking at Braking the Cycle’s closing ceremonies, Sunday, September 30, around 5:30 PM, with rain looming but thankfully not materializing. In front of Housing Works’ Cylar House facility, 9th Street and Avenue D, New York City. If I sort of give off the air that I’ve just gotten off my bike after riding 300 miles, it’s because I have. Photo courtesy of Kate Asson.

Braking the Cycle Closing Ceremonies Speech
Cylar House, Housing Works, New York City, September 30, 2012

There’s a homeless woman who has frequented my Brooklyn neighborhood for all 12 of the years I’ve lived there. My partner Jennifer and I call her The Quarter Lady because when she asks for help, she always asks for a quarter. She tends to make people uncomfortable—because while it’s not clear what’s wrong with her, it’s clear she isn’t all there. The only things she says that are easy to make out are “Miss, you gotta quarter?” and “thank you.” She can be a little scary, possibly unstable, suffering from withdrawal, physically ill, mentally ill—maybe all those things.

For years, I gave her money when I saw her. When months went by and I didn’t see her, I’d worry a little, and hope nothing terrible had happened to her. When I saw her again, I’d be relieved and vaguely deflated—glad to see her, but sad that she was in the same place. Time seemed to stand still with the Quarter Lady. Everything always the same.

Then one day, something changed. Instead of being on her usual corner, she was on a side street, sitting on the stoop of a brownstone. She may have asked me for a quarter. I said something to her about the weather. And in the very next moment, the Quarter Lady suddenly became grounded. Her lucidity, which I’d never seen before, was visible. The first thing she said, I’d heard from her many times—which was “thank you.” Then she gave me a penetrating, compassionate stare that felt like she had peered in at the very core of my self and seen the entirety of my soul, my strengths, my flaws, all of it. And she said, “Someday I hope I’ll be able to help you too.”

I’m not sure what I said. Possibly thank you, and that I’d like that. I was on the verge of tears and I didn’t know why. We waved goodbye, and the next time we were back to our usual exchange about quarters.

I had so many obvious advantages, necessities, and privileges—a home, a job with a salary, my health, health insurance, a loving partner, family and friends. But inside, I was having a hard time that year. I was depressed about various aspects of my life, and I felt lost a lot of the time. And that morning, a virtual stranger who wasn’t even all there most of the time had seen me for exactly who and where I was in that moment, recognized I was in pain, and said something kind.

I was 9 years old when the first cases of AIDS were reported.

I was 10 or 11 when they finally figured out that sex was the major mode of HIV transmission.  

I was 15 when the first person I knew who was HIV+ got sick and then quickly died of AIDS, a close friend of my mom’s. He wasn’t out as a gay man, he wasn’t out with his HIV status. When he died, his obit said he died of cancer. That was in 1987.

I was 31 when my brother’s friend Curtis died of AIDS. Curtis was out and outspoken about everything—about his love for art, about being gay, about being HIV+ and battling AIDS. Eventually his body lost the battle, and he died in 2003.

I’ll be 40 this year. Like so many people here, probably everyone here, AIDS has been a shadow part of my life for over 30 years. I know more people who have died from it. I know people who found out they were HIV positive last year. I also know more people who are living with HIV than I can possibly name here. The good news about that last category is that they are the lucky ones: They know that they have it, they treat it, and they manage it. They’re lucky to have survived what so many of us call the years without hope before 1995 when antiretrovirals got better and became more available, and that they had access to the right services and resources.

Without movement and change, healing isn’t possible. I don’t know whether The Quarter Lady has HIV or any other illness. I know that she moved me because for a few brief minutes, she reminded me that so long as we’re alive, we all have the capacity to change and in turn, heal ourselves and one another—no matter how difficult our circumstances, no matter how unlikely it may seem, no matter how hard the journey to make that shift. It doesn’t matter whether the Quarter Lady ever helps me in some material, visible way. She helped me by imagining a different future in which she was helping me because I was in need rather than the other way around.

Since its founding, Housing Works has advocated for people at the margins who have been given up for lost, who have been considered to be beyond help, beyond change, beyond healing, long before they die a physical death from AIDS. Housing Works has gone where other groups wouldn’t go—they acknowledge the connection between poverty, homelessness, AIDS, HIV testing, treatment, addiction, IV drug use; they recognize them as interrelated; and they create a space without judgment where second chances are authentic. They imagine other ways things might work, and they make change. In making change, they facilitate healing. It’s no accident that the people who start off as clients come back as activists and advocates and staff members when they’re back on their own two feet.

People ask me all the time why I keep doing this ride. I do it because I have friends who live with HIV and because I’m all too aware of the fact that it could easily have been me. For me this ride has functioned a lot like Housing Works has for many people. Being part of this ride has helped me challenge myself and go far beyond what I thought I could do in the world; it helps me find change within myself. I ride because the people I’ve met along the way inspire me. They show up even when it looks like there isn’t any more progress that can be made. I didn’t know until pretty recently how much healing the experience of being part of this would offer me.

By being here today, whether you’re a rider, a crew member, a Housing Works client or staffer, or one of the many, many kind people here who support this cause and this community—with time, with money, with compassion—you’re a part of that healing process, too. I know for a fact that your engagement with this community, with this issue, has been source of healing for someone else, probably someone else who’s here today. And until the final end to this terrible pandemic: I hope that being part of this fight helps you find a measure of healing as well. Thank you.

Mika’s Braking the Cycle 2012 Rock Stars

*= donor to previous Braking the Cycle AIDS ride(s)

  • Anonymous (1, 2*, 3, 4*, 5, 6, 7*, 8*, 9*, 10*, 11*, 12*, 13, 14*, 15, 16*)
  • Beth Ammerman*
  • James Anderson & Suzy Turner*
  • Jennifer Anderson*
  • Renee Anderson*
  • Chris & Mel*
  • Catherine Angiel & Team
  • Janis & Dave*
  • Leah Bassoff*
  • Charlie Baxter*
  • Jon Bierman*
  • William Bish*
  • Penina
  • Buddha Tara*
  • Meghan Campbell
  • Steph & Bill Carpenter*
  • Lynne Carstarphen
  • Danielle Christensen
  • Jane & Tony*
  • Clare Cashen
  • David Chodoff
  • Terry Christopher
  • Marcia Cohen*
  • Barbara Conrey*
  • Katie Crouch
  • Kevin Colleary
  • Susan Conceicao*
  • Barbara Conrey*
  • Rich D’Amico & Mike Meyerowitz
  • Carol Diuguid
  • Annie & Jon*
  • Carey
  • Timothy “San Diego Cupcake” Fitzpatrick
  • Ray Flavion*
  • Suzie & Bernadette
  • Kory Floyd
  • The Food Healer*
  • Kerri Fox
  • Svenja & David*
  • Michael Gillespie*
  • Christina Gimlin
  • Dawn Groundwater*
  • Amanda Guinzberg *
  • Myles
  • Scott H.
  • Karen Henry*
  • Jess Holmes
  • Nancy Huebner
  • Tom Hyry*
  • Andrea Vaughn Johnson & Eric Johnson*
  • Angela Kao*
  • Katie K.
  • Cara Labell
  • Elena Mackawgy
  • Matt & Jessica*
  • Carolyn Plum Marshall
  • Paul & Luke McDonough
  • Derek McNally
  • Dave Meier*
  • Lorraina & Ben Morrison*
  • Lai & Greg*
  • Elizabeth Murphy
  • Liz O.
  • Jacob Okada*
  • Eva & Tom Okada*
  • Gregg Passin
  • David
  • Nancy Perry*
  • Lisa Pinto*
  • Eileen*
  • Briana Porco
  • Gabriel Presler
  • Josie Raney*
  • Cory
  • Sarah R.
  • Rhona Robbin*
  • Greg Romer
  • Mike Ryan
  • Carla Samodulski*
  • Terri Schiesl
  • Sigrid Schmalzer*
  • Roger Schwartz*
  • Brian Seastone
  • Brigid*
  • Jane Smith*
  • Janet Byrne Smith
  • Fred Speers & Chase Skipper*
  • Lynn Stanley*
  • Matt & Jen*
  • Danielle & Arturo*
  • Kelly Villella*
  • Jasna & Paul
  • Clay & David
  • Sherry Wolfe*
  • Yu Wong*