On Hope, Uncertainty, and an AIDS-Free NY by 2020

In less than two months, once again, I’ll be participating in BRAKING AIDS® Ride, a 300-mile bike from Cooperstown to NYC. Between now and mid-September, I have two objectives: to get into some semblance of shape for the physical challenge of the ride and to raise $20,000 to support the amazing advocacy and services provided by Housing Works, the ride’s beneficiary.

Since my first year doing this ride in 2008, individual donations from people like you have been essential in helping me raise over $100,000 and counting to support life-saving services for those living with HIV as well as its efforts toward ending the AIDS epidemic once and for all. I’m counting on the support of hundreds of individual donors again this year to raise at least another $20,000 to end AIDS as an epidemic in New York by 2020.

Photo: Me on Day 1 of BRAKING AIDS® Ride 2018, by fellow rider Kyle Cameron. The photo later appeared as the Contents photo spread in the Nov./Dec. issue of Positively Aware magazine, which was pretty fabulous. 

As someone who worked at Housing Works for five years, I have seen firsthand how its programs and services make a concrete difference. Since its 1990 founding, Housing Works has provided services to more than 20,000 homeless and low-income New Yorkers living with HIV/AIDS. Unlike many HIV service providers, which tend to focus on one or two primary areas of service, Housing Works offers a startling array of programs that help address the overlapping, intersectional issues faced by its clients: In addition to housing, services include primary healthcare, meals, case management, nutrition, substance use treatment, legal assistance, and job training, as well as relentless advocacy at the city, state, and federal levels to fight for funding and legislation that will help us end AIDS once and for all. It also offers those services with respect and compassion, a context that is essential to healing but all too rare.

I began doing this ride in 2008 in memory of two family friends who died of AIDS-related illness in 1987 and 2003, respectively, and for many close friends who live with HIV. For BRAKING AIDS 2019, I am riding in memory of two friends who died this past year whose lives epitomize compassion and citizenry in the best senses of both words.

My friend Dawn Grimmett (1975–2019), a pediatric nurse who lived in Alabama, died unexpectedly this last April from complications from pneumonia. If we hadn’t both participated in AIDS rides, I might never have met Dawn—and I am lucky to have known her. Dawn was funny and kind. A giver of tremendous hugs and fierce loyalty. One had to pity anyone foolish enough to say a bad word about the people Dawn loved; as she herself put it, “I might look nice, but I’ll cut a bitch!” She also led by example: She was open and candid that she struggled with depression, which even today comes with so much stigma despite how common it is. Without fail, every year since 2004, Dawn traveled across the country to dedicate two weeks’ vacation to being a volunteer nurse on the crew for two different AIDS Rides—California AIDS LifeCycle in June and BRAKING AIDS® in September—dispensing Advil, Band-Aids, Gatorade, ice packs, sunscreen, and whatever medical care was needed, along with unconditional love, and just the right amount of snark. Her life, which ended all too soon, two months shy of her 44th birthday, is a testament to the power of showing up. Dawn reminds me that some of the most important and significant gifts to fellow human beings and contributions to a movement are comprised of mundane, ordinary, and often quiet acts of kindness. The impact of those acts are cumulative, and a commitment to those compassionate acts is the stuff that long-term change is made of.

Photo: This year, I will be riding in memory of my friend Dawn Grimmett (1975–2019), who was a volunteer nurse on every BRAKING AIDS® Ride I have ever done.

My friend Andy Vélez (1939–2019), a longtime LGBTQ and ACT UP New York activist, passed away on May 14 at age 80 after a severe fall in his Greenwich Village building earlier this spring. Andy joined ACT UP in 1987, the year of its founding, back when AIDS was a death sentence to so many, the downward spiral of the illness itself was ugly and painful, treatments were toxic and few, and our government leaders had been ignoring the burgeoning epidemic for six years. Andy was a devoted and fierce activist for 32 years, and his passion for and tenacity in undertaking righteous lifetime activism inspired and continues to inspire countless individuals, myself included. The friendship we developed during a relatively finite number of years of coalition activism together was and remains dear to me, and I miss his kindness, his delicious stories, his wicked and bawdy humor, and his authenticity. To read more about Andy’s remarkable life, check out the tribute that appeared in the Los Angeles Blade, as well as this piece in PLUS, “Why We Still Need HIV Warriors.”

Photo: This year, I will also be riding in memory of my friend Andy Vélez, a longtime LGBTQ & HIV/AIDS activist who passed away in May. In June, ACT UP New York created these buttons, featuring a portrait of Andy by Bill Bytsura of The AIDS Activist Project, in honor of Andy’s lifetime of fierce, relentless activism.

You don’t show up for 32 years of activism unless you have some faith and hope that what you’re doing will make a difference, whether you yourself are able to see that difference or not. Andy’s life is a reminder of that for me. It’s a reminder to heed what writer Rebecca Solnit says about hope:

“Hope locates itself in the premises that we don’t know what will happen and that in the spaciousness of uncertainty is room to act. When you recognize uncertainty, you recognize that you may be able to influence the outcomes — you alone or you in concert with a few dozen or several million others. Hope is an embrace of the unknown and the unknowable, an alternative to the certainty of both optimists and pessimists. Optimists think it will all be fine without our involvement; pessimists take the opposite position; both excuse themselves from acting. It’s the belief that what we do matters even though how and when it may matter, who and what it may impact, are not things we can know beforehand. We may not, in fact, know them afterward either, but they matter all the same, and history is full of people whose influence was most powerful after they were gone.” [emphasis mine]

I’m not usually good with uncertainty. In fact, I struggle with it. All the time. But BRAKING AIDS® and the example of people like Dawn and Andy challenge me to challenge myself to find that “spaciousness” Solnit describes.

When asked what he wanted to be remembered for, Andy once said, “As someone who is able to help.” I’m riding again this year because I am able to, and in that same spirit, I am asking for your help to support my efforts. Together, we can end AIDS.

Please DONATE TODAY. Donations of all sizes are welcome, but a gift of $200 or more will go a long way toward reaching my $20,000 goal. A $200 gift feeds 100 homeless youths at Housing Works’ East New York Health Center.   

DONATE VIA MY FUNDRAISING PAGE: https://give.classy.org/mika2019 

Photo: Me, wearing the Japanese ACT UP “Silence + Death” tee-shirt that Andy Vélez gave me several years ago as a gift, with my wife Jennifer at the Dyke March for NYC Pride 2019, which was also the 50th anniversary of the Stonewall riots.

Help Me Raise $15K for Housing Works & an AIDS-Free NY 2020

It finally feels like summer in NYC again. For me, a June heatwave means it’s long past time that I jumpstart my training and my fundraising for BRAKING AIDS® Ride.

Over the past decade, past donations from hundreds of generous souls have been essential in helping me raise over $90,000 and counting to support Housing Works’ many life-saving services for those living with HIV as well as its efforts toward ending the AIDS epidemic once and for all. 

I’m counting on that support again this year to raise at least $15,000 to end AIDS as an epidemic in New York by 2020.

WHY I KEEP RETURNING TO BRAKING AIDS® RIDE


Me, with some of my amazing Housing Works Advocacy colleagues and friends, who inspire me every day (L to R): Valerie Reyes-Jimenez, Legacee Medina, me, Felicia Carroll. 

For the first time since the AIDS crisis began, we have the tools to end the epidemic. More than six years ago, when the audacious goal of ending AIDS as an epidemic in New York, even without a cure or vaccine, was first proposed by Housing Works, Treatment Action Group, and other allies, many people thought it was impossible, and the Governor’s Office and the State Department of Health were not yet sold on the idea. Since then, Housing Works has provided unparalleled leadership to get New York to adopt a plan that makes full use of the tools we have to end AIDS as an epidemic statewide by 2020. At the time of the state plan’s launch in 2014, in the course of educating people about the plan and its feasibility, we said, “an AIDS-FREE New York is closer than you think…” We weren’t kidding. This past December we marked major milestones in the state plan to end AIDS: unprecedented city and state decreases in HIV diagnoses. In 2016, NYC achieved a record 11% decrease, and NYS achieved a corresponding 8.7% decrease. The legislation and policy changes we’ve been fighting for to end the epidemic are working, and we are on track to do it by 2020! And it’s not just New York: Since 2014, more than a dozen additional U.S. jurisdictions have committed to end-AIDS plans, and the U.N. has established 2030 as its target date to bring global infection rates below epidemic levels.

This will also be my 10th year participating as a rider in this annual 3-day, 300-mile journey by bicycle. People sometimes ask me how and why I keep coming back. As someone who has now worked in Housing Works Advocacy for going on five years, I truly believe in the Housing Works lifesaving services this ride supports—because I see those programs and services in action and how much they’re needed and the difference they make firsthand every day. But the truth is, as much as I truly believe in those programs and the organization’s mission, many of my reasons to keep showing up to ride are self-serving.

BRAKING AIDS® is unique because it isn’t only a ride, it’s also a family. The experience of being part of that family and this shared experience for over a decade has challenged me to be my best self, which is to say that it challenges me to be not necessarily my strongest or surest but to be willing to show up even as and at my most vulnerable and uncertain. To show up as myself even when I’m tired, depleted, demoralized, struggling, plagued by self-doubt. It’s taught me to show up and try even when I’m stretched thin and fairly certain I haven’t got it in me. It’s shown me it’s not only okay but healthy and necessary to ask for help at times, a tough, recurring lesson for me because I’m private, and I’m stubborn and fierce about my sense of self-reliance and independence (and even with years of practice, I will be the first to admit I’m still *terrible* at asking for help!).


Me, with my friend and fellow rider Jamil Wilkins, during BRAKING AIDS® Ride 2016, getting a hug after the first 60 miles of riding. 

BRAKING AIDS® is also unique because like Housing Works and the work it does, it’s a movement. Both these communities and movements understand we cannot end AIDS as an epidemic in our state, nation, or around the world unless we collectively address the social and economic drivers of HIV—homelessness, unemployment, racism, homophobia, transphobia, misogyny and sexism, addiction, and mental illness. In the dark and divisive times in which we are living today, we are faced daily with acts of hate in every manifestation, and much of what we see, hear, and read reflects a diminishment of empathy in the public sphere. That makes it more important than ever that Housing Works and BRAKING AIDS® have both always stood for what we at Housing Works call “Radical Inclusion”: for accepting people as they are. We stand for love that heals and for acts of kindness, especially those directed to strangers.

Movements don’t and can’t sustain their work based on the efforts of any individual. As poet Mayda Del Valle wrote, “a movement is not a flash of light— it is a flame, a torch passed from one…to the next.” For that reason and in that spirit, I am asking for your help again to support my efforts. Together, we can end AIDS.

How You Can Help

Please consider DONATING TODAY! Here’s what your gift can help support:

$1,000 sustains one month of supportive housing

$500 provides 100 hygiene kits for homeless youth

$250 supports 30 days of mental health and substance use counseling

$150 covers a one-night stay at a Single-Room Occupancy for 2 homeless youth in need of emergency housing

$100 feeds 25 homeless youth during evening drop in hours at Housing Works’ East New York health center

DONATE VIA MY FUNDRAISING PAGE: 

https://fundraising.housingworks.org/participant/mika2018

Ways to make giving easier, to make your donation go further & to help me reach my $15K goal sooner: 

• PLEASE CHECK WITH YOUR HR DEPT. & SEE IF YOUR COMPANY WILL MATCH YOUR DONATION! If so, then check the “YES” bullet in the Company Matching section of the online donation form, and fill out the related information. You may be able to double or even triple your contribution! In 2016, over $3K of the $23K I raised came from company matches, so I cannot underscore enough how much this helps. 

• Recurring Monthly Gift: On the donation page, once you select a gift amount, click on the “Monthly” option to set up a recurring donation of any amount over your desired period of time. I prefer to donate this way because I can give more with only a small hit coming from my wallet each month.

• Cover Processing Costs:  Each donation incurs a processing fee that’s 7% of your gift. When the overall fundraising goal is $15K, 7% adds up: If everyone who gives covers the processing fee, that’s more than an additional $1,000 that goes straight to work at Housing Works. 

• Please forward this information to EVERYONE. Spread the word to your friends & colleagues! Forward the link to this blog post or share my donation link with your own networks on Facebook, Twitter, Instagram & other social media.

Thank you in advance for your generosity, friendship, kindness, encouragement, and support! I couldn’t do this without you.

Please join me & Housing Works in the fight to end AIDS by donating to Braking AIDS Ride 2018 (Cooperstown, NY, to Manhattan, Sept. 14-16)—Mika De Roo, Rider # 32. Donation site: https://fundraising.housingworks.org/participant/mika2018

Recap & Photos from BRAKING AIDS Ride 2016

A triumphant moment at Mile 97 of 107 on Day 2 of BRAKING AIDS Ride 2016, near Milford, CT:

IMG_1452.JPG

img_1450

As of the closing ceremony on Sept. 25, BRAKING AIDS Ride 2016 raised a net total of over $251,000 for Housing Works and its HIV/AIDS services—a number that has continued to increase in the weeks since, as post-ride donations have kept coming in. (I’ll be able to relay a final amount raised sometime around the end of the month. Stay tuned!)

To my amazement, thanks to the big hearts of over 140 individuals and a handful of fabulous corporate matching gift programs—the complete list appears at the bottom of this post—I was able to raise over $23,000. That fundraising total is over 50% more than I’ve raised in my biggest fundraising year doing this ride. From the bottom of my heart, thank you thank you thank you.

I couldn’t have done it without all of you. Some photos from the ride—some of which you may have seen if you’re on Facebook—appear below.

Me, reuniting during orientation with dear friend Tim Fitzpatrick, who I first met on the road in 2008 during my first of these AIDS rides (and no, his beard color isn’t typical; it was part of one of his fundraising campaigns for the ride):

img_1474

Photo courtesy of Angela Taylor

Sunrise on Day 1 of the ride before opening ceremonies, Dedham, MA:

img_1436

img_1470

I always ride every year in memory of two family friends who died of AIDS and in honor of many friends—more than I can count—who live with HIV. This year, I got an unexpected, unsolicited donation from a friend who usually rides but who couldn’t ride this year and served on crew instead—a dollar for every year that she and her family have been without her brother Ira since he died of AIDS in May 1987. So this year I rode in his memory as well and I carried this postcard with me as I rode. His full name and the names of the others for whom I ride appeared on the back:

img_1439

Me, getting a much-needed squeeze from fellow rider Jamil Wilkins during lunch, Day 1, somewhere in hilly Rhode Island:

img_1264

My favorite rest stop on the ride is near the end of Day 1, at the First Congregation of Griswold, in Griswold, CT. Every year, these amazing people come out to cheer us on and ply us with homemade pie and soup, as well as cards of encouragement from kids in the congregation. If all religious folks were as open and loving as these people are, the world would be a different, better place. Also, I highly recommend their strawberry-rhubarb pie.
img_1440
I ate my strawberry-rhubarb slice so quickly, I didn’t even get a photo. This is the blueberry, also a delight:

img_1441
Mile 97 of 107 on Day 2, near Milford, CT:
img_1446
Day 2 of the ride is Red Dress Day, so called because everyone is encouraged to don red clothing. The original idea was that from overhead, the riders cycling along the route would look like a red AIDS ribbon. However, AIDS ride cyclists and crew being the drama queens that they are, the Red Dress Day costumes range from the fashion forward to the fantastical to the frightening, and sometimes combine all of the above. This is what my better half Jen, who served on the crew again this year, wore that day. But lest you give her all the credit, I found that fetching squid headdress for her, courtesy of Marine Specialties in Provincetown, Massachusetts. Sorry, folks: This stunning cephalopod is spoken for.

2016.09.24

Photo courtesy of Monica Anderson

Scenic vistas from early morning on Day 3, near Southport, CT:

img_1476

Photo courtesy of Kathryn Leach

img_1475

Photo courtesy of Ann McCall

Riders gathered together right before closing ceremonies, Day 3, Cylar House, NYC:

img_1469

Imagine my shock to arrive at closing ceremonies only to be greeted by an giant “Welcome Home” banner of me and my friend and fellow rider Humberto Alers hanging above the Cylar House entrance. Humberto and I have gotten over our modesty and are available for any and all modeling gigs, FYI, should you have an upcoming photo shoot:

img_1459

Photo courtesy of Jennifer L. Anderson

The check presented to Housing Works during closing ceremonies for over $251,000. Now $251,000 and counting! And yes, if you are kicking yourself because you meant to donate, for the next few weeks you still can!

CLICK HERE TO DONATE

img_1471

THANK YOU AGAIN TO ALL MY AMAZING 2016 BRAKING AIDS RIDE DONORS:

Anonymous (39)
Jessica Abel & Matt Madden
Christopher Anderson & Melissa Stupka
James Anderson & Suzy Turner
Renée Anderson
Leah Bassoff
Charles Baxter
Jaron Benjamin
Jon Bierman
Kristin Bowen & Sam Cohen
Robert Brooks
Light Buggiani
Stephanie & Bill Carpenter
Donna & John Carroll
Stephanie Carroll
Lynne Carstarphen
David Cascia & Elite Fitness
Laura Coaty
Nancy Crochiere
Scott S. Davis
Adele Della Torre & Spencer Kubo
Mark Denecour
Mika De Roo
Zoe DeRoo
Nicole Dewey & Bill Seely
Disney
Annie & Jon Dunham
Blake Dunlap
Mariamne Eliopoulos
Kory Floyd & Brian Seastone
Dianne Orkin Footlick
David Gifford & Svenja Leggewie
Michael & Nicola Gillespie
Rebecca Gilpin
Goldman Sachs
Google
David Groff
Amanda Guinzburg
Karen Henry
Frank Hopp
Andrew Janke
Abigail Katz
Alison Kliegman
Carolyn Lengel
Becky Lien
Kelsey Louie
Rachel & Jon Lowy
Matt Martin
Mark Matienzo & Chela Weber
Karen McGrane
McGraw-Hill Education
Derek McNally
David Meier
Microsoft
Heather Mirman
Ben & Lorraina Morrison
Elizabeth Murphy
Liz O’Brien & Steve Emrick
Eva & Tom Okada
Jacob Okada & Carylanna Taylor
The gals at Papél New York
Gregg Passin
Anne Paterson
Nancy Perry
Abigail Pogrebin
Eileen Pollack
Josie Raney
David Raper
Felicia Rector
Candace Rivela
Rhona Robbin
Kenneth Robinson
Terri Schiesl
Roger Schwartz
Sandra Serebin
Samantha Shaber
Beth Shapiro
Virginia Shubert
Jane B. Smith
Frederick Speers & Chase Skipper
Andrew Spieldenner
Krishna Stone
Matthew Trokenheim & Jen Simon
Reed, Anna & Mila Vreeland
Clay Williams
Yu Wong

Salty Century Photo Essay: A Wellfleet-Provincetown-Dennis Figure 8

Every year, the peak of my training regimen for BRAKING AIDS Ride is completing at least one century ride, a training ride of 100 or more miles prior to the ride itself. Ideally, I get in one century sometime in July or August, and during my strongest years, I have been able to do at least two centuries before BRAKING AIDS begins. This year wasn’t one of those years, and I ended up doing one century ride during our annual vacation to Cape Cod. We stay in Wellfleet on the Outer Cape, so my route usually resembles something like a figure 8—roughly 50 miles going from our cottage to Provincetown and back, and then another 50 or so from our cottage to South Dennis and back.

Rather than staying on Route 6, the main highway on the Cape, which is two lanes—one in each direction—for most of it and is also the most direct route from Wellfleet to Truro and Provincetown, I took back roads for the the first 22 miles of my century ride this past Wednesday. I rode Lecounts Hollow Road to Ocean View Drive, Gross Hill and Gull Pond Roads, then Old Truro Road, Pamet Point Road, Old County Road, Castle Road, Bridge Road, Depot Road, and more, criss-crossing and riding Route 6 along the way for brief stretches. What did this mean? HILLS. Lots of them.

To get from South Wellfleet to Provincetown, rather than staying on Route 6, the main highway on the Cape, which is two lanes—one in each direction—for most of it and is also the most direct route, I took back roads for the first 22 miles of my century ride this past Wednesday. I rode Lecounts Hollow Road to Ocean View Drive, Gross Hill and Gull Pond Roads, then Old Truro Road, Pamet Point Road, Old County Road, Depot Road, Bridge Road, Castle Road, Corn Hill, and more, criss-crossing and riding Route 6 along the way for brief stretches. What did this mean? HILLS. Lots of them.

image

First beach pitstop after riding Ocean View Drive out of Wellfleet.

image

Ryder Beach, Truro.

image

Ryder Beach, Truro. The weather was windy in the morning, so much so I almost didn’t realize how hot it was until I stopped here.

image

The view of Corn Hill from Castle Road, Truro. Amazing how misleading photographs can be. These houses are on big, tall bluffs overlooking the marshes and the bay to the west. Lots of climbing.

image

One of the houses near Corn Hill, Truro.

image

Powerade hydration self-portrait, #2. After over 20 miles of hilly back roads, I was hot and thirsty, so I stopped at the general store near the beginning of the Shore Road in North Truro. It used to be a hole in the wall called Dutra’s. Now it has been renovated and expanded, and they carry fancy Fever Tree tonic water. (This brand is light and not too sweet or cloying, perfect for cocktails, but four 6.8-ounce glass bottles are not worth $8.) I skipped the overpriced cocktail mixers and went for the sports drinks. I am not a big fan of Gatorade or Powerade, but hydration is key to endurance cycling. Electrolytes are your friend, and for whatever reason, perhaps because the blue versions of these products aren’t trying to simulate real fruit flavors like strawberry or grape or lemon, they tend to be the most palatable to me. Blue flavor, please, for me and The Blue Streak.

image

The window display at the expanded and renovated general store in North Truro. The place has new owners and is now called The Salty Market. To give you a sense of the scale here, the pig is nearly the height of the tall bench behind it, at which two gentlemen are seated. Both these guys kept giving me a weird look as I paused to snap this photo, as though I were interested in them and not the giant pig sculpture directly in front of them that was large enough for either one of them to straddle and ride like a  horse.

image

Provincetown, as viewed from Shore Road (Route 6A) in Truro, about 25 miles into my ride. The road is relatively flat, small rolling hills here and there, but headwind was something fierce in the morning, so it was slow going.

image

People walking on the sand bars during low tide on the bay, as seen from Shore Road, riding from Truro to Provincetown, late Wednesday morning.

image

Low tide on Shore Road between Truro and Provincetown, facing southwest.

image

After I arrived in Provincetown, I headed straight for Joe’s to get some iced coffee and then down the rest of Commercial Street to the West End, where I stopped at Relish, a deli that has incredible sandwiches as well as baked goods. When Jen and I got married in the West End in 2010, Frank, the guy who owns Relish, made our wedding cake. These are the store t-shirts.

image

To the disappointment of my friends Nicole Dewey, Kerri Fox, and Gregg Passin, cupcake lovers all, I did not get a cupcake at Relish, but this tray of them was so cute, I had to take a snapshot.

Objects may be larger than they appear. This slice of pistachio coffee cake from Relish is roughly the size of my head. Although the one pictured here is the one Jen and I shared from today (Friday), it is nearly identical to the one I purchased at Relish about 27 miles into my ride and housed all by myself.

Objects may be larger than they appear. This slice of pistachio coffee cake from Relish is roughly the size of my head. Have I mentioned that under the curly hair, I have a big melon for a head? Although the slice of cake pictured here is the one Jen and I shared this afternoon (Friday), it is nearly identical to the one I purchased at Relish about 27 miles into my ride and housed all by myself on Wednesday. Photo by Jennifer L. Anderson.

image

At the end of a Commercial Street in Provincetown’s West End is a traffic circle that feeds onto Provincelands Road, which in turn leads toward Herring Cove and Race Point Beaches. I had never noticed before this week that the rotary itself is a tiny park with this little plaque noting the first Pilgrims’ landing. Learn something new every day.

image

The outer rim of the West End rotary has benches that overlook the bay, the marsh, and the causeway. This is where I sat to eat my divine coffee cake from Relish and my iced coffee from Joe’s. Now that you see the view, you understand why those first Pilgrims decided to stay.

Another view of the West End marshes, Provincetown, at low tide. Love these colors.

Another view of the West End marshes, Provincetown, at low tide. Love these colors.

image

People walking the Breakway, which spans about 1.5 miles, West End, Provincetown.

image

The Tidal Flats and Provincetown Breakway at low tide, West End, Provincetown.

image

After my cake snack, I was hot. I should have headed straight back to Wellfleet. I had gotten a late post-9am start (ah, the beauty of a cool summer! No need to begin at 6am to avoid the heat!) so it was already noon, and because of all the hills and headwind as well, I was only about one-third of the way through my century ride. But instead I stopped here, at Herring Cove Beach, parked The Blue Streak, stripped off my cycling shoes and socks, and marched myself down to the water to go soak my head, literally, and cool off.

image

The Blue Streak, waiting for me patiently at Herring Cove, while I went to take a dip.

image

Self-portrait at Herring Cove Beach, after taking a dip in the ocean (or rather, wading in to the knees and dunking my head in). The other beachcombers were perplexed by my strange bathing costume.

Non-photographic, afternoon interlude: After my detour to Herring Cove, I hauled ass back to our tiny cottage in South Wellfleet, via Route 6, Shore Road, and some of the same hilly back roads in Truro. I was pleased to make much better time than I had during the morning. Remarkable what a difference headwind makes.

I stopped at the cottage and ate a self-made turkey sandwich that was serviceable but not worth photographing. While I was there, Jen returned from her own training ride of hill repeats along Ocean View Drive, so I got in a brief snuggle with her and our dog Sadie. Sadly, I had another 45 miles of riding to go, so the visit was short-lived.

The good news is that most of my remaining route, the 22-mile Cape Cod Rail Trail between Wellfleet and Dennis, was flat. Along the way, I passed through Wellfleet, Eastham, Orleans, Brewster, Harwich, and Dennis, and then back again in reverse. The scenery in parts is lovely but the road itself—like the NYC West Side bike path, open only to cyclists and people on foot—is unremarkable, mostly flanked by trees and scrubs on both sides, so I only tend to take a handful of photos en route. Also, the one annoying thing about the Rail Trail is that it includes numerous stop signs where the trail intersects with roads trafficked by cars, so the route requires a ton of stop-and-go slowing down and ramping up again. In addition, after the first leg of my ride, I tend to get increasingly impatient with completing the century and stop less to take out the camera. For more on what this second portion of the route looks like, see my previous post from last year.

image

One of the marsh views, facing west on the Rail Trail between Wellfleet and Dennis.

Unfortunately, it isn't visible in this photo, but I discovered during the last 30 miles of my 102.5-mile  ride this Wednesday that from a few places along the Rail Trail, one can see all the way to the bay. In this image, I could catch a small triangle of blue salt water right next to the tree silhouette near the top center.

Unfortunately, it isn’t visible in this photo, but I discovered during the last 30 miles of my 102.5-mile ride this Wednesday that on a clear day, from a few places along the Rail Trail, one can see all the way to the bay. In this image, I could catch a small triangle of blue salt water right next to the tree silhouette near the top center.

image

At this point in a long day of riding, especially on a road like the Rail Trail, which is flat, uneventful, and safe enough terrain that one can afford to zone out for a while, strange, random stuff starts to drift through one’s head. Lines from Pride & Prejudice, the number of bones and muscles in the feet, whether the road ahead will ever end, and any number of X-rated fantasies to keep the mind going and entertained while the legs continue their monotonous pedaling. It is also the section of the journey during which I decided to get “arty” with the photo composition. Look at me, putting the reflection of the sun at the center without showing the actual light source.

This is where the photographic record of my century ride 2014 ends. I had wanted to take a picture of my odometer with my total distance for the day to post here, but somewhere during the last 30 miles, in my bleary-eyed state, I went to look at my speed and I hit the reset button by accident so the mileage count started over. You will have to take my word for it: 102.5 miles total.

The thing about a century ride is that its full-day endlessness makes its completion all the more satisfying, and it’s also one of the best psychological confidence boosters I get prior to the actual BRAKING AIDS Ride. No matter how the day goes, a century is a good lesson that I repeat annually—less because of its physical training benefits and more because it reminds me that steady tenacity bears out. The closest thing I have to a picture of that figurative journey isn’t a photo from my century ride at all. It is a photo of me with my wife from the previous day, which she took during 45 miles of hot, hilly riding.

Seeing her beautiful face, all serious and sweaty from riding her bike, The Pale Horse, inspires me because she is a less experienced endurance cyclist than I, and she had a number of obstacles—physical and emotional—this summer that limited her training in a big way. Many people would have raised the required money for the ride, said to hell with the rest of the bike training, and not bothered doing the ride at all. Jen didn’t quit. When things were looking and feeling especially dark and dire in late July and early August, I assured her she doesn’t have anything to prove to anybody, except maybe herself, but she still refused to throw in the towel. Even at her most frightened and downtrodden, even when angry and disappointed at how the summer season went, she has kept showing up. Sometimes, she hasn’t been physically up to riding at all. Other days, she’s done shorter rides when she was unable to do longer ones and she’s ridden even when she has felt like crap, which has been often. She has also continued to insist on showing up and doing the actual BRAKING AIDS Ride, determined to have whatever ride experience she’s going to have. If that isn’t bravery and grit and perseverance, I don’t know what is. She has no idea what a fucking hero that makes her to me, so this is my way of trying to convey that. Jennifer Lynn Anderson, this post is for you:

This was actually taken the day before my century ride, doing a 45-miler with my wife Jennifer, who is also doing the ride next week. But she has been such a tenacious, brave beast during a challenging and difficult summer training season, and I am so proud of her, I wanted to post this here.

This was actually taken the day before my century ride, doing a 45-miler with my wife Jennifer, who is also doing the ride next week. But she has been such a tenacious, brave beast during a challenging and difficult summer training season, and I am so proud of her, I wanted to post this here.

LESS THAN A WEEK FROM TODAY, I WILL BE RIDING NEARLY 300 MILES IN 3 DAYS, FROM BOSTON TO NYC, TO BE PART OF THE FIGHT TO END AIDS. CLICK HERE TO DONATE TO SUPPORT ME & HOUSING WORKS FOR BRAKING AIDS® RIDE 2014.

Next Stop: AIDS-FREE NY 2020

A graphic from the newly branded Housing Works AiDS-FREE NY 2020 campaign.

A graphic from the newly branded Housing Works AIDS-FREE NY 2020 campaign.

One of the advantages of working at Housing Works is that I get to see and hear firsthand the impact of our advocacy efforts. On June 29, coinciding with NYC Gay Pride, we achieved a big victory: Governor Andrew M. Cuomo made history with his public declaration of an advocacy-based plan to end the AIDS epidemic in New York by 2020, as reported in The New York Times and in a press release issued by the Governor’s office.

Later the same morning, Housing Works and other AIDS and LGBT advocates held a press conference to praise the Governor for stepping up. A video montage of the statements made appears below.

To anyone who has some knowledge of the history of the AIDS epidemic for over three decades, this may perhaps sound like a daunting goal. But Governor Cuomo’s announcement reflects his recognition that the landscapes of HIV and health care have changed. Although there are more New Yorkers living with HIV than in any other state in the nation, New York has the people, institutions, resources, and tools needed to end the epidemic that has plagued us for more than 30 years by stopping new HIV infections and halting AIDS-related deaths. Based on progress and an expansion of advancements that have already been made—from new prevention and testing technologies to highly effective antiretroviral treatments—we have the science to make the ambitious goal of decreasing new HIV infection to below epidemic levels by 2020 viable. A successfully treated HIV+ person can live a healthy life and is virtually unable to transmit HIV to others. New HIV prevention tools beyond condoms, such as PrEP (pre-exposure prophylaxis, in which an HIV-negative person takes a daily pill to reduce the risk for HIV infection) and PEP (post-exposure prophylaxis, or meds taken following possible HIV exposure to reduce the risk of transmission), combined with these advances, mean we can end AIDS as an epidemic even without a cure. For more on PrEP, see this recent New York Magazine cover story or this post on PrEP on the Housing Works advocacy blog.

New York State has already been laying the groundwork to reach that goal. Always a leader and center of innovation in the fight against AIDS, New York has experienced a decrease in new HIV diagnoses of nearly 40% in the last decade, with fewer new infections each year. By contrast, there has been no decline in the number of new HIV infections diagnosed nationally each year, which has remained static at roughly 50,000.

Reacting to the news of Cuomo’s commitment, Housing Works CEO Charles King put it best:

“This step by Governor Cuomo, setting a clear goal to end the AIDS crisis in New York State, is absolutely courageous. In doing so, the Governor is reshaping the way we think about the AIDS epidemic and is setting a new standard for leaders of other jurisdictions in the United States and, indeed, around the world.”

And now that the Governor has gone all in, the real work begins—creating a blueprint to end AIDS by 2020 and implementing it. Toward that end, Housing Works and its allies continue to urge the Governor to convene a high-level State Task Force to develop and design a strategic roadmap with concrete steps and benchmarks for the Cuomo Plan to End AIDS in New York State.

Housing Works staff, clients, volunteers, and allies, celebrating during NYC Gay Pride 2014.

Housing Works staff, clients, volunteers, and allies, celebrating during NYC Gay Pride 2014.

For its own part, the same day that the Governor made his historic public commitment, Housing Works officially launched the New York segment of the ongoing Housing Works AIDS-FREE advocacy campaign during Gay Pride, marching behind the above “AIDS-FREE NY 2020: Closer than you think.” banner during the parade. Housing Works’ AIDS-FREE Campaign is a collaborative, multi-year initiative committed to ending the AIDS epidemic—in New York State by 2020, in the United States by 2025, and worldwide by 2030. For an overview of the campaign, click here.

The tag line on the banner isn’t merely aspirational. We are closer to making the end of AIDS a reality than we’ve ever been.

How You Can Support the Work Housing Works Is Doing
to Reach an AIDS-FREE New York by 2020

By and large, Housing Works’ advocacy—the grassroots organizing and political lobbying work it does in Albany, D.C., and across the globe to promote an AIDS-FREE future—is not funded by grants or by corporate or government dollars.

That’s one reason events like Braking AIDS Ride are so important. The funds raised by the ride to support Housing Works are unrestricted and can be used when and how they are needed across the organization.

As of this writing, I’m a little more than halfway to my $5,000 fundraising goal.

Please donate today to help me reach the finish line!

Braking AIDS 2013 Raises $250K and Counting for Housing Works

In the week since I bicycled 300 miles from Boston to New York and completed Braking AIDS Ride 2013, I’ve been bogged down in the usual, overwhelming post-ride wash of feelings—elation, love, gratitude, sadness, achiness (emotional as well as physical), exhaustion, bliss—and in catching up with regular daily life. (The latter, I confess, pales in comparison to the ride experience at the moment.) It remains close to impossible to try to convey the experience of the ride itself, which is far more of a journey than even the daunting physical 300-mile route suggests.

That being the case, it’s unsurprising that the ride leaves something of a chaotic upheaval in its wake. Each year, I find the ride’s aftermath—re-entry to a life without either the demands or the satisfactions of day-to-day training and fundraising—to be discombobulating. That shift too is hard to capture fully, as is the confusion elicited by the sudden change in my focus and emotional intensity. Still, the photo below of my living room, taken by my wife Jen the day after the ride, gives a pretty decent indication of what the first 5 to 10 days after Braking AIDS Ride looks and feels like, literally and metaphorically:

1233556_10151905010098656_805799789_n

Jen, commenting on our living room after we got home from closing ceremonies: “It’s like Braking AIDS 2013 just blarfed all over our apartment.” Photo courtesy of Jennifer L. Anderson.

As a result of all that tumult, internal and external, I haven’t been able to land for long enough to do a proper post-ride recap. One thing I can and will say right now is that even though this is my fifth Braking AIDS Ride, the experience of it is different and transformative in new ways every year, which is one of many reasons I keep going back. I had a physically challenging journey this year, but not in the ways I expected, and those obstacles and detours led me to rich places and feelings I haven’t had before on the ride. I plan to write more about the ride experience itself in the coming weeks, but in the meantime, I wanted to send word on the fundraising piece of the ride.

I am thrilled to report that as of September 29, 2013, Braking AIDS Ride 2013 raised $250,000 net for Housing Works.

As of September 30, 2013, Braking AIDS Ride netted $250,000 for Housing Works. Donations can continue to come in for the 2013 ride through the end of October: http://bit.ly/ZGvJZl.

As of September 29, 2013, Braking AIDS Ride netted $250,000 for Housing Works. Donations can continue to come in for the 2013 ride through the end of October: http://bit.ly/ZGvJZl.  Photo courtesy of Gant Johnson.

That $250,000 total is all thanks to the support of my dear friends and family who have been such generous donors to my ride efforts, and to countless others like them who contributed to the fundraising of other riders and crew members. They are my heroes, in the truest sense of the word, and all the donations and well wishes from every single one of them are what make the continued crucial advocacy and services that Housing Works offers possible. It is their good will and commitment that enable Housing Works to keep fighting the good fight in pursuit of the end of AIDS.

To those heroes who supported me this year and to the friends and family who were unable to contribute financially but who offered much-needed love and emotional sustenance: Thank you. Every time I think of the notes of encouragement so many of you sent, of the calls and voicemails, and yes, of your boundless financial generosity these past five months, I feel the way I did on Day 2 of this year’s ride when this photo was taken:

Me, celebrating near the end of Day 2, over 200 miles into the 300-mile ride, somewhere along  the Connecticut coastline. Photo by Alan Barnett.

Me, on Saturday, September 28, 2013, celebrating near the end of Day 2, over 200 miles into the 300-mile ride, somewhere along the Connecticut coastline. Photo by Alan Barnett.

Because I am both a wordsmith and something of a data geek, I have taken the liberty of doing some analysis, including some arithmetic number-crunching, in order to break down and illuminate what that $250,000 fundraising number means beyond the monetary one-quarter of $1 million total:

  • “As of September 29, 2013” refers to the fact that donations and matching gifts can continue to come in for Braking AIDS Ride 2013 until close to the end of October. That means 1) if you haven’t donated but would still like to, you can at http://bit.ly/ZGvJZl and 2) the final amount raised for Braking AIDS Ride 2013 will be calculated sometime in November and obviously will be higher than $250K.
  • To put that large $250,000 net figure into greater perspective: The 2013 ride consisted of 106 riders and roughly 60 volunteer crew members. Riders need to meet a fundraising minimum for the event, but crew members do not. That said, many of our amazing crew members raise money anyway.
  • Last year, the ride pulled in over $221,000, so this year’s Braking AIDS Ride 2013 total represents a 13% increase ($29,000 more) over 2012.
  • My contribution toward that $250,000 total, as of this writing, comes to $13,185. And that figure also may go up to $15,240 if the matching gifts from my own company go through. (We have a new owner and a new set of HR policies, including a matching-gift program. Technically, according to the program’s guidelines, Housing Works should qualify for matching gifts, but despite repeated attempts, I have been unable to get confirmation on that. With the help of many of my colleagues, I have been diligently sending in completed matching-gift forms anyway, and I made another phone call to the powers-that-be this morning. Stay tuned and fingers crossed.)
  • The $13,185 I raised was made possible by over 150 generous donors, all of whom are listed below. They inspire me and have all my gratitude.
  • Through the help and generosity of those 150+ donors, I achieved just shy of 132% of my original fundraising goal, which was already an ambitious $10,000. My typical beginning goal in past years has been $5,000.
  • This $13,185 represents the most I’ve ever been able to raise for a single Braking AIDS Ride, even exceeding the $12,500 I was able to raise back in 2008, when I was a first-time rider and the sheer fact of me attempting such a Herculean physical undertaking was an astonishing novelty to everyone who knew me.
  • Contributions to my ride efforts this year ranged in size from $20 to one mind-blowingly generous $1,000 donation. The average donation totaled at about $100. No doubt about it: Every dollar counts, and each and every donor helps make it happen.
  • The majority of the amount I raised this year came from individual donations—just over $12,000—with an additional $1,150 coming from corporate matching gifts. (That latter figure will increase to $3,205 if my company’s matches come through.) If you donated this year and forgot to see whether your company has a matching-gift program, please check with your HR department today, as if there’s still time to process these gifts and doing so can double your already generous contribution to Housing Works. My hope is that for future rides, I’ll be able to find more donors who are able to maximize their contributions through a corporate gift program. The paperwork is a minor nuisance and most HR departments don’t make it easy to even discover whether the company has a gifts program, what kinds of donations qualify, and what you need to do to process a gift for a company match, but as this year’s stats show, it is worth being persistent in finding out. Those matches add up.
  • Over $2,000 in donations came from my McGraw-Hill Education friends—colleagues, authors past and present, and work-based outside vendors and freelancers. That impressive sum does not include the possible matching gifts from MHE’s parent company. In addition to being stellar people to work with, these individuals are kind and magnanimous. Those who work with me in my Midtown office are also mostly nice enough not to make too much fun of me when I commute from Brooklyn by bike and show up to work in cycling gear.
  • Most of my donors are individuals, but I was also surprised and grateful to receive generous support this year from several local businesses in my Brooklyn neighborhood. I believe in using my own consumer dollars to support high-quality businesses that give back to the community—and it goes without saying that, in addition to being good samaritans, all of these organizations are fantastic in terms of the primary goods and services they offer—so I want to give a particular shout-out of gratitude to the following spots in and around South Brooklyn (Cobble Hill; Carroll Gardens; Columbia Street Waterfront; Red Hook):
    • Woofs ‘n Whiskers, a dog-walking business and “urban cat and dog retreat,” run by the big-hearted folks who have been caring for our dog Sadie for over a decade.
    • Elite Fitness Studio, my excellent neighborhood gym, where locals at all different stages of athleticism and fitness can feel supported and stay motivated.
    • The JakeWalk, a warm, welcoming Carroll Gardens restaurant and bar owned by the same folks who have brought us Stinky Bklyn cheese shop and the Smith & Vine and Brookyn Wine Exchange wine shops. Now that I am done with the ride and no longer in hard-core training mode, I plan to frequent all these establishments again with relish.
    • Papél Brooklyn, which, for those of you who have ever received a written missive, or gift-wrapped from me and exclaimed “what great packaging” or “what a perfect card/postcard/stationery design, is on my list of favorite paperies (and that’s a very short list, too).
  • Surprise donors, old and new, come through every year. The lesson this year, which I seem to keep re-learning, is that one can never be 100% certain who will be able to give or when, just as one doesn’t always know how many people’s lives are affected by HIV or AIDS. Parts of my donor base change every year and not always in predictable ways. For example, some people who gave in 2008 and then didn’t for my 2009, 2010, and 2012 rides returned as donors this year. Likewise, people I’ve solicited for all five years I’ve done the ride and who never donated before now gave for the first time this year. But these two statistics from this year especially blow me away: Nearly one-third of my donors this year were brand-new, a particularly moving figure when one takes into account the fact that I did not experience any of the life changes that often result in a significant expansion of my social network and a broader potential new donor pool—a new job or a move to a new city, for example. The flip side of that fraction leaves me dumb-founded with gratitude: Over two-thirds of my donors—that’s over 100 kind souls—are previous donors of at least one of my five Braking AIDS Rides, and many of them are people who have donated all five years I have done the ride.
  • Three donors, two of whom I am lucky enough to call family, made me cry when they wrote me to say they were each contributing a second donation this year.
  • The $13,185 my 150+ heroes helped me raise puts me in the #5 spot for individual fundraising for Braking AIDS Ride 2013. You guys rock.
  • This 2013 $13K+ total also means that since 2008, I’ve raised over $50,000 in the fight to end AIDS, averaging at $10K per ride event coming from between 80 and 150 donors each year.

EOAIDS

In spite of this post’s focus on money and financial results, I also want to emphasize to all my donors that your dollars are doing far more than paying for critical services and programs, though they are most certainly doing that. You are saving and improving lives in an immeasurable, spiritual way, not just a physical one. The emotional and spiritual toll that HIV, AIDS, and homelessness all take on a human being cannot be diagnosed using any medical test or shaped into concrete statistics to use for a jaw-dropping graph or fancy infographic. But it’s there nevertheless. No one describes that toll better than Housing Works President, CEO, and co-founder and fellow Braking AIDS rider Charles King, who spoke during our opening ride ceremonies and shared with us some remarks he made last month at a roundtable meeting on the end of AIDS convened by UNAIDS, the Joint United Nations Program on HIV/AIDS. He also included these same remarks again as part of a longer presentation called “Ending the AIDS Epidemic in New York State and Around the Globe” that he made in Montreal at North American Housing and HIV/AIDS Research Summit VII on September 26, the day before the ride began (and the full text of that presentation can be found here):

For too many years, we have insisted on treating HIV as a biomedical event, when in fact it is a biosocial phenomenon.  That is to say, that while HIV is indeed a virus, it is a virus that is driven, as we all know, by social violence, which is why it largely has spread through the most socially and economically marginalized members of our communities and wrecks even more poverty and marginalization in its wake, at a very great cost. 

We pay lip service to this phenomenon through our talk of key populations.  But we persist in largely biomedical and individualistic behavioral responses.  In order to end the epidemic, with or without a vaccine, we need structural interventions that address the social drivers of this disease.  To date, with the exception of vulnerable children and orphans, and pieties about human rights, we have resisted this approach both because of the attenuated nature of the causal links and because of the supposed financial or political cost of the required interventions.

In fact, we have to recognize that these key populations represent the nexus between the goals of ending poverty and ending AIDS.  It is not so much new money we need.  It is targeting our development dollars at the right people, both to eliminate poverty and to stop transmission of the virus, and taking seriously the commitment to human rights.  Structural interventions, properly applied, can serve not only to keep millions of HIV+ people in care and ultimately virally suppressed, but they are also an effective prevention strategy.

I believe I am on solid scientific and economic ground for my case, being neither a scientist nor an economist.  But the Baptist preacher requires me to speak not just of science and economics, but also to the human condition.  You see, when I speak of the cost of social violence, I am not just speaking of the economic cost or the disease burden.

Think about what it means to be subjected to social violence.  Homelessness not only deprives you of the means to organize your existence, it deprives you of your very dignity.

Not being able to feed your children not only deprives them of essential nutrition, it signals that you are not fit to be a mother.

Being unable to get a job because you are an obviously gay man or a transgender woman not only deprives you of a livelihood, it says you have no value to offer society.

Hiding from punitive laws because you are addicted to drugs or survive by selling sex not only forces you underground, it destroys your sense of self-worth.

We talk about living well as both a measure of disease control and of economic development.  But social violence not only spreads HIV and poverty, it destroys one’s soul.  We will not end the devastation of AIDS until we allow those who have been impacted to reclaim their most sacred part, their very souls.

That is what ending AIDS is most about.  Not just stopping a virus, but allowing people who have been cast to the margins to reclaim their place in our communities and in the world.

[emphasis mine]

With that, I have one final, simple message for my many benevolent donors: Please don’t ever doubt the impact and the ripple effect of your contributions to this cause. In being part of this fight to end AIDS and homelessness, you are doing more than helping people in need survive. You are helping them to live. Thank you again, all of you, for all you do.

My Braking AIDS Ride 2013 Heroes

Jessica Abel & Matt Madden*
Chris Anderson & Mel Stupka*
James Anderson & Suzy Turner*
Jennifer Anderson*
Renée Anderson*
Anonymous* (4 donors)
David Anthony*
Tansal Arnas*
Kate Asson
Janis & Dave Auster*
Jennifer Baker*
Paul Banks
Leah Bassoff*
Charles Baxter*
Jon Bierman*
Deirdre Birmingham
William Bish*
Claire Brantley
Aviva Briefel
Kelly Burdick*
Steph & Bill Carpenter*
Jess Carroll & Sharon Glick*
Stephanie Carroll
Lynne Carstarphen*
Carnegie Corporation of New York†
Clare Cashen*
Betty Chen*
David Chodoff*
Danielle Christensen*
Laura Coaty*
Susan Conceicao*
Barbara Conrey*
Janet Corcoran
Nancy Crochiere*
Anneliese & David Daskal
Joe DeIorio & Thos Shipley
Nicole Dewey & Bill Seely*
Carol Diuguid*
John Dunn
Christie Duray
Mariamne Eliopoulos*
Elite Fitness Studio*
Julie Englander*
Rachel Falk*
Michael Fisher
Terence Fitzgerald*
Timothy Fitzpatrick*
Jimmy & Chris Flavion
Ray Flavion*
Kory Floyd*
Kerri Fox*
The Well-Placed Word
David Gifford & Svenja Leggewie*
Michael & Nicola Gillespie*
Rebecca Gilpin*
Goldman Sachs†
Google†
Susan Gouijnstook*
Penina Greenfield*
Dawn Groundwater*
Amanda Guinzburg*
Scott Harris*
Karen Henry*
Chris Herrmann & Joseph Lorino
Frank Hopp*
Tom Hyry*
The JakeWalk
Andrew Janke
Andrea Vaughn Johnson & Eric Johnson*
Kristopher Kelly
Laura Kennedy
Elizabeth King
Judith Kromm
Debra Kubiak
Jon Lowy
Sylvia Mallory
Matt Martin
Derek McNally*
Dave Meier*
George Meyer*
Michelle Misner & Jason Baluyut*
Richard Monreal
Lorraina & Ben Morrison*
Susan Muller-Hershon
James Murdock
Elizabeth Murphy*
Liz O’Brien*
Eva & Tom Okada*
Jacob Okada*
Stephen Okada
Michael O’Loughlin
Papél New York
Gregg Passin*
Anne Paterson
Nancy Perry*
Lisa Pinto*
Eileen Pollack*
Mary E. Powers
Kirstan Price*
Catherine Groves Ramsdell
Josie Raney*
Jessica Bodie Richards
Rhona Robbin*
Greg Romer*
Stacy Ruel*
Mike Ryan*
Carla Samodulski*
Danielle Scaturro*
Terri Schiesl*
Duane Schrader
Roger Schwartz*
Brian Seastone*
Samantha Shaber*
Jane Smith*
Janet Byrne Smith*
Fred Speers & Chase Skipper*
Lynn Stanley*
Katie Stevens*
Carylanna Taylor
Jeannine, Bil, Kade & Jack Thibodeau
Matt Trokenheim & Jen Simon*
Woof ‘n Whiskers*
Kelly Villella*
Sherry Wolfe*
Yu Wong*

† matching gift

Things I Think of Before a 300-Mile Ride in the Fight to End HIV/AIDS

We’re down to hours here before Braking AIDS Ride begins. I had such hopes of writing about all sorts of important things before leaving for Boston on Thursday for orientation day—what living with HIV and HIV meds can look like and some thoughts about the stigma of HIV and AIDS (which, yes, still is alive and well), to name just two. I cannot possibly do those subjects justice before the ride—I’ll be lucky if I can do them justice at all—but I did want to share some of the thoughts, serious and silly, that run through my head in the 48 hours before the ride:

  • I can’t believe I’m doing this. Again.
  • Do I have enough butt butter?
  • Does anyone, truly, look good in spandex cycling clothing? (Except my friend Colby. He doesn’t count. He looks good in everything. Even after riding 103 miles in a downpour, his hair looks perfect, exactly as it did at the beginning of the day. So clearly he either has a hairdresser running alongside his bike as he races along at 20mph, or he has some sort of deal with the cosmic powers that be.)

    I've posted this photo before. This pic of me and Colby was taken right before closing ceremonies last year. In other words, after Colby had ridden 85 miles in the rain wearing a cycling helmet. It may be even better that I'm in the photo as a source of hair comparison. I mean, really, look at the coiff on that man!  Photo courtesy of Colby Smith.

    I’ve posted this photo before. This pic of me and Colby was taken right before closing ceremonies last year. In other words, after Colby had ridden 85 miles in the rain wearing a cycling helmet. It may be even better that I’m in the photo as a source of hair comparison. I mean, really, look at the coif on that man! Photo courtesy of Colby Smith.

  • How can I not do this? Why can’t I just do this all the time?
  • DO NOT FORGET TO DROP THE BLUE STREAK OFF AT BIKE SHIPPING ON WEDNESDAY MORNING.

  • Did I train enough? Probably not. Sigh…
  • Oh, man. I meant to email so-and-so to ask him/her to donate.
  • ?!?!?!??!?!? That is a vague approximation of my amazement and astonishment at the ongoing compassion, generosity, and bravery I witness and the encouragement I receive as a result of my involvement with this ride, all season long—from people I know well, from people I know but not that well, and even from people I don’t know who have somehow connected with me about this ride and this cause. No one who knows me would ever say I’m a la vie en rose Pollyanna type when it comes to my overall assessment of humanity. I am a skeptic and a believer in most things. I see humanity as a mixed bag, with strengths and weaknesses in equal doses, and often with strengths and weaknesses being the very same qualities, depending on the situation and how those characteristics are being utilized. And yet year after year this event brings out incredible, moving aspects of people that I hadn’t known were there, myself included.

  • I’m so lucky. To all my unbelievable fantabulous donors out there—the long, full list of you is forthcoming after all this riding madness is over—THANK YOU AGAIN AND AGAIN! You inspire me so much, I am willing to temporarily forgo my hatred of styling a phrase in all caps. for emphasis and my dislike of the overused exclamation point. You fill me with so much wide-eyed glee, I make up dumb non-words like “fantabulous.”

  • What we are all participating in here, riders, crew members, and every person I’ve been in contact with because of this ride whether the person donates or not, is important. It matters and saves lives. Not that most of you need any convincing about how essential the funds raised by Braking AIDS Ride are to Housing Works and its services, but the following two bits of information crossed my path recently. I share them here because they are a stark reminder of why what my donors and supporters have done on behalf of Housing Works and its clients is heroic and absolutely needed and why we must continue to raise money and to raise awareness about AIDS/HIV as a serious health problem:

    • HIV status and testing are serious ongoing challenges. Most people are aware that the annual rate of new HIV infections, even here in the United States, in New York City, in 2013, remains pretty static. In addition, as I’ve written before, at any given time, about 20% of people living with HIV are unaware of their infection. Even more startling is how much that same percentage goes up when you look at teens and young adults. According to the CDC, in the United States, of people between the ages of 13 and 24 who are HIV+, 60% do not know it. I’ll be blunt: If you don’t know you have HIV, it’s likely that you are unknowingly giving it to others, and they may be doing the same, and so on. Housing Works is doing its part to try to face these challenges and numerous others head-on. HIV testing is one of Housing Works’ many medical services, and the organization is also a strong advocate for over-the-counter HIV testing.

      Think HIV isn't a problem? Think again. This terrifying statistic makes me want to run out and try to raise another $10-15K in the next 48 hours.

      Think HIV isn’t a problem? Think again. This terrifying statistic makes me want to run out and try to raise another $10-15K in the next 48 hours.

    • Funding for HIV and homeless-related services were both included in the mandatory budget sequestration.The need for continued financial support at organizations like Housing Works from the general public—whether it comes from individuals or via corporate donations—is urgent and all too real.  An estimated 8,000 households that include people living with HIV/AIDS will lose housing assistance from a government program called Housing Opportunities for Persons with HIV/AIDS (HOPWA), putting them at risk for a return to homelessness. If we wait for our government to get its act together, people in dire need will be homeless and out on the street again.
  • I wonder what weather.com…. On a less serious note, in these last days before the ride, I sometimes let myself imagine what the ride weather might be like, what it could be like, and before I let the wish in my heart fully form in my head, I shush myself, because it would not do to Tempt the Weather Gods by counting those chickens before they… well, that’s a mess of images and aphorisms, but you know what I mean.
  • Speaking of chickens: Many people who do this ride, myself included, take their inspiration from the wisdom of erudite people like these:

“You must be the change you wish to see in the world.”—Mahatma Gandhi

“Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it’s the only thing that ever has.”—Margaret Mead

“If you ask me what I came into this world to do, I will tell you: I came to live out loud.”—Emile Zola  

“Let us give publicity to HIV/AIDS and not hide it because [that is] the only way to make it appear like a normal illness… One of the things destroying people with AIDS is the stigma we attach to it.[emphasis mine] —Nelson Mandela

The list could go on and on. Samuel Beckett. Eleanor Roosevelt. Martin Luther King, Jr. Etc., etc., etc. I draw energy, strength, and, I hope, greater compassion from historical figures and luminaries like those above, too, of course. But if I’m being honest, when I’m in the van on the way to Boston, or topping off the air in my tires at 5:30am on Ride Day 1, or if I’m on Mile 69 of Ride Day 2 and my ass hurts and I’m cold and wet from the rain and man, I can’t contemplate brilliant leaders and visionaries or AIDS or HIV or homelessness and who’s living and who’s dying and who’s dead already, I can’t think about any of that Deep, Important Stuff for a little while at least—in those moments, I also take tremendous comfort in these words from the 2000 stop-motion animation film Chicken Runspoken by Fowler, the stodgy former RAF rooster:

Keep pedaling! We’re not there yet! You can’t see paradise if you don’t pedal!Fowler, from Chicken Run

"You can't see paradise if you don't pedal!"-from Chicken Run

Rocky, the American rooster from Chicken Run who learns that helping others is as rewarding as helping oneself, learning to “fly” via bicycle. Indeed. You can’t see paradise if you don’t pedal.

Thank you again to everyone who has been so supportive throughout this journey!

And to you slackers who haven’t caught up on your email: YES YES YOU CAN STILL CLICK HERE AND DONATE!