On Hope, Uncertainty, and an AIDS-Free NY by 2020

In less than two months, once again, I’ll be participating in BRAKING AIDS® Ride, a 300-mile bike from Cooperstown to NYC. Between now and mid-September, I have two objectives: to get into some semblance of shape for the physical challenge of the ride and to raise $20,000 to support the amazing advocacy and services provided by Housing Works, the ride’s beneficiary.

Since my first year doing this ride in 2008, individual donations from people like you have been essential in helping me raise over $100,000 and counting to support life-saving services for those living with HIV as well as its efforts toward ending the AIDS epidemic once and for all. I’m counting on the support of hundreds of individual donors again this year to raise at least another $20,000 to end AIDS as an epidemic in New York by 2020.

Photo: Me on Day 1 of BRAKING AIDS® Ride 2018, by fellow rider Kyle Cameron. The photo later appeared as the Contents photo spread in the Nov./Dec. issue of Positively Aware magazine, which was pretty fabulous. 

As someone who worked at Housing Works for five years, I have seen firsthand how its programs and services make a concrete difference. Since its 1990 founding, Housing Works has provided services to more than 20,000 homeless and low-income New Yorkers living with HIV/AIDS. Unlike many HIV service providers, which tend to focus on one or two primary areas of service, Housing Works offers a startling array of programs that help address the overlapping, intersectional issues faced by its clients: In addition to housing, services include primary healthcare, meals, case management, nutrition, substance use treatment, legal assistance, and job training, as well as relentless advocacy at the city, state, and federal levels to fight for funding and legislation that will help us end AIDS once and for all. It also offers those services with respect and compassion, a context that is essential to healing but all too rare.

I began doing this ride in 2008 in memory of two family friends who died of AIDS-related illness in 1987 and 2003, respectively, and for many close friends who live with HIV. For BRAKING AIDS 2019, I am riding in memory of two friends who died this past year whose lives epitomize compassion and citizenry in the best senses of both words.

My friend Dawn Grimmett (1975–2019), a pediatric nurse who lived in Alabama, died unexpectedly this last April from complications from pneumonia. If we hadn’t both participated in AIDS rides, I might never have met Dawn—and I am lucky to have known her. Dawn was funny and kind. A giver of tremendous hugs and fierce loyalty. One had to pity anyone foolish enough to say a bad word about the people Dawn loved; as she herself put it, “I might look nice, but I’ll cut a bitch!” She also led by example: She was open and candid that she struggled with depression, which even today comes with so much stigma despite how common it is. Without fail, every year since 2004, Dawn traveled across the country to dedicate two weeks’ vacation to being a volunteer nurse on the crew for two different AIDS Rides—California AIDS LifeCycle in June and BRAKING AIDS® in September—dispensing Advil, Band-Aids, Gatorade, ice packs, sunscreen, and whatever medical care was needed, along with unconditional love, and just the right amount of snark. Her life, which ended all too soon, two months shy of her 44th birthday, is a testament to the power of showing up. Dawn reminds me that some of the most important and significant gifts to fellow human beings and contributions to a movement are comprised of mundane, ordinary, and often quiet acts of kindness. The impact of those acts are cumulative, and a commitment to those compassionate acts is the stuff that long-term change is made of.

Photo: This year, I will be riding in memory of my friend Dawn Grimmett (1975–2019), who was a volunteer nurse on every BRAKING AIDS® Ride I have ever done.

My friend Andy Vélez (1939–2019), a longtime LGBTQ and ACT UP New York activist, passed away on May 14 at age 80 after a severe fall in his Greenwich Village building earlier this spring. Andy joined ACT UP in 1987, the year of its founding, back when AIDS was a death sentence to so many, the downward spiral of the illness itself was ugly and painful, treatments were toxic and few, and our government leaders had been ignoring the burgeoning epidemic for six years. Andy was a devoted and fierce activist for 32 years, and his passion for and tenacity in undertaking righteous lifetime activism inspired and continues to inspire countless individuals, myself included. The friendship we developed during a relatively finite number of years of coalition activism together was and remains dear to me, and I miss his kindness, his delicious stories, his wicked and bawdy humor, and his authenticity. To read more about Andy’s remarkable life, check out the tribute that appeared in the Los Angeles Blade, as well as this piece in PLUS, “Why We Still Need HIV Warriors.”

Photo: This year, I will also be riding in memory of my friend Andy Vélez, a longtime LGBTQ & HIV/AIDS activist who passed away in May. In June, ACT UP New York created these buttons, featuring a portrait of Andy by Bill Bytsura of The AIDS Activist Project, in honor of Andy’s lifetime of fierce, relentless activism.

You don’t show up for 32 years of activism unless you have some faith and hope that what you’re doing will make a difference, whether you yourself are able to see that difference or not. Andy’s life is a reminder of that for me. It’s a reminder to heed what writer Rebecca Solnit says about hope:

“Hope locates itself in the premises that we don’t know what will happen and that in the spaciousness of uncertainty is room to act. When you recognize uncertainty, you recognize that you may be able to influence the outcomes — you alone or you in concert with a few dozen or several million others. Hope is an embrace of the unknown and the unknowable, an alternative to the certainty of both optimists and pessimists. Optimists think it will all be fine without our involvement; pessimists take the opposite position; both excuse themselves from acting. It’s the belief that what we do matters even though how and when it may matter, who and what it may impact, are not things we can know beforehand. We may not, in fact, know them afterward either, but they matter all the same, and history is full of people whose influence was most powerful after they were gone.” [emphasis mine]

I’m not usually good with uncertainty. In fact, I struggle with it. All the time. But BRAKING AIDS® and the example of people like Dawn and Andy challenge me to challenge myself to find that “spaciousness” Solnit describes.

When asked what he wanted to be remembered for, Andy once said, “As someone who is able to help.” I’m riding again this year because I am able to, and in that same spirit, I am asking for your help to support my efforts. Together, we can end AIDS.

Please DONATE TODAY. Donations of all sizes are welcome, but a gift of $200 or more will go a long way toward reaching my $20,000 goal. A $200 gift feeds 100 homeless youths at Housing Works’ East New York Health Center.   

DONATE VIA MY FUNDRAISING PAGE: https://give.classy.org/mika2019 

Photo: Me, wearing the Japanese ACT UP “Silence + Death” tee-shirt that Andy Vélez gave me several years ago as a gift, with my wife Jennifer at the Dyke March for NYC Pride 2019, which was also the 50th anniversary of the Stonewall riots.

Things I Think of Before a 300-Mile Ride in the Fight to End HIV/AIDS

We’re down to hours here before Braking AIDS Ride begins. I had such hopes of writing about all sorts of important things before leaving for Boston on Thursday for orientation day—what living with HIV and HIV meds can look like and some thoughts about the stigma of HIV and AIDS (which, yes, still is alive and well), to name just two. I cannot possibly do those subjects justice before the ride—I’ll be lucky if I can do them justice at all—but I did want to share some of the thoughts, serious and silly, that run through my head in the 48 hours before the ride:

  • I can’t believe I’m doing this. Again.
  • Do I have enough butt butter?
  • Does anyone, truly, look good in spandex cycling clothing? (Except my friend Colby. He doesn’t count. He looks good in everything. Even after riding 103 miles in a downpour, his hair looks perfect, exactly as it did at the beginning of the day. So clearly he either has a hairdresser running alongside his bike as he races along at 20mph, or he has some sort of deal with the cosmic powers that be.)

    I've posted this photo before. This pic of me and Colby was taken right before closing ceremonies last year. In other words, after Colby had ridden 85 miles in the rain wearing a cycling helmet. It may be even better that I'm in the photo as a source of hair comparison. I mean, really, look at the coiff on that man!  Photo courtesy of Colby Smith.

    I’ve posted this photo before. This pic of me and Colby was taken right before closing ceremonies last year. In other words, after Colby had ridden 85 miles in the rain wearing a cycling helmet. It may be even better that I’m in the photo as a source of hair comparison. I mean, really, look at the coif on that man! Photo courtesy of Colby Smith.

  • How can I not do this? Why can’t I just do this all the time?
  • DO NOT FORGET TO DROP THE BLUE STREAK OFF AT BIKE SHIPPING ON WEDNESDAY MORNING.

  • Did I train enough? Probably not. Sigh…
  • Oh, man. I meant to email so-and-so to ask him/her to donate.
  • ?!?!?!??!?!? That is a vague approximation of my amazement and astonishment at the ongoing compassion, generosity, and bravery I witness and the encouragement I receive as a result of my involvement with this ride, all season long—from people I know well, from people I know but not that well, and even from people I don’t know who have somehow connected with me about this ride and this cause. No one who knows me would ever say I’m a la vie en rose Pollyanna type when it comes to my overall assessment of humanity. I am a skeptic and a believer in most things. I see humanity as a mixed bag, with strengths and weaknesses in equal doses, and often with strengths and weaknesses being the very same qualities, depending on the situation and how those characteristics are being utilized. And yet year after year this event brings out incredible, moving aspects of people that I hadn’t known were there, myself included.

  • I’m so lucky. To all my unbelievable fantabulous donors out there—the long, full list of you is forthcoming after all this riding madness is over—THANK YOU AGAIN AND AGAIN! You inspire me so much, I am willing to temporarily forgo my hatred of styling a phrase in all caps. for emphasis and my dislike of the overused exclamation point. You fill me with so much wide-eyed glee, I make up dumb non-words like “fantabulous.”

  • What we are all participating in here, riders, crew members, and every person I’ve been in contact with because of this ride whether the person donates or not, is important. It matters and saves lives. Not that most of you need any convincing about how essential the funds raised by Braking AIDS Ride are to Housing Works and its services, but the following two bits of information crossed my path recently. I share them here because they are a stark reminder of why what my donors and supporters have done on behalf of Housing Works and its clients is heroic and absolutely needed and why we must continue to raise money and to raise awareness about AIDS/HIV as a serious health problem:

    • HIV status and testing are serious ongoing challenges. Most people are aware that the annual rate of new HIV infections, even here in the United States, in New York City, in 2013, remains pretty static. In addition, as I’ve written before, at any given time, about 20% of people living with HIV are unaware of their infection. Even more startling is how much that same percentage goes up when you look at teens and young adults. According to the CDC, in the United States, of people between the ages of 13 and 24 who are HIV+, 60% do not know it. I’ll be blunt: If you don’t know you have HIV, it’s likely that you are unknowingly giving it to others, and they may be doing the same, and so on. Housing Works is doing its part to try to face these challenges and numerous others head-on. HIV testing is one of Housing Works’ many medical services, and the organization is also a strong advocate for over-the-counter HIV testing.

      Think HIV isn't a problem? Think again. This terrifying statistic makes me want to run out and try to raise another $10-15K in the next 48 hours.

      Think HIV isn’t a problem? Think again. This terrifying statistic makes me want to run out and try to raise another $10-15K in the next 48 hours.

    • Funding for HIV and homeless-related services were both included in the mandatory budget sequestration.The need for continued financial support at organizations like Housing Works from the general public—whether it comes from individuals or via corporate donations—is urgent and all too real.  An estimated 8,000 households that include people living with HIV/AIDS will lose housing assistance from a government program called Housing Opportunities for Persons with HIV/AIDS (HOPWA), putting them at risk for a return to homelessness. If we wait for our government to get its act together, people in dire need will be homeless and out on the street again.
  • I wonder what weather.com…. On a less serious note, in these last days before the ride, I sometimes let myself imagine what the ride weather might be like, what it could be like, and before I let the wish in my heart fully form in my head, I shush myself, because it would not do to Tempt the Weather Gods by counting those chickens before they… well, that’s a mess of images and aphorisms, but you know what I mean.
  • Speaking of chickens: Many people who do this ride, myself included, take their inspiration from the wisdom of erudite people like these:

“You must be the change you wish to see in the world.”—Mahatma Gandhi

“Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it’s the only thing that ever has.”—Margaret Mead

“If you ask me what I came into this world to do, I will tell you: I came to live out loud.”—Emile Zola  

“Let us give publicity to HIV/AIDS and not hide it because [that is] the only way to make it appear like a normal illness… One of the things destroying people with AIDS is the stigma we attach to it.[emphasis mine] —Nelson Mandela

The list could go on and on. Samuel Beckett. Eleanor Roosevelt. Martin Luther King, Jr. Etc., etc., etc. I draw energy, strength, and, I hope, greater compassion from historical figures and luminaries like those above, too, of course. But if I’m being honest, when I’m in the van on the way to Boston, or topping off the air in my tires at 5:30am on Ride Day 1, or if I’m on Mile 69 of Ride Day 2 and my ass hurts and I’m cold and wet from the rain and man, I can’t contemplate brilliant leaders and visionaries or AIDS or HIV or homelessness and who’s living and who’s dying and who’s dead already, I can’t think about any of that Deep, Important Stuff for a little while at least—in those moments, I also take tremendous comfort in these words from the 2000 stop-motion animation film Chicken Runspoken by Fowler, the stodgy former RAF rooster:

Keep pedaling! We’re not there yet! You can’t see paradise if you don’t pedal!Fowler, from Chicken Run

"You can't see paradise if you don't pedal!"-from Chicken Run

Rocky, the American rooster from Chicken Run who learns that helping others is as rewarding as helping oneself, learning to “fly” via bicycle. Indeed. You can’t see paradise if you don’t pedal.

Thank you again to everyone who has been so supportive throughout this journey!

And to you slackers who haven’t caught up on your email: YES YES YOU CAN STILL CLICK HERE AND DONATE!