BRAKING AIDS® Ride 2021 & Some Sunflower Audacity

This spring, a friend emailed a photo of me, taken in September 2008 during my first BRAKING AIDS® Ride, that I had never seen before. In the months since, I have found myself returning to what it does and doesn’t reveal.

Me, during my first BRAKING AIDS® Ride, September 26, 2008

The first anomaly is that it doesn’t appear to be raining. The downpours during that 2008 ride from Gettysburg, PA, to Manhattan were near-constant all three days. Throughout the weekend, I recall only a handful of brief respites during which it wasn’t wet, and this photo must have been taken during one of them. All I remember of the moment itself was taking a break with two other first-time riders to drink in the vibrancy of that gorgeous field of sunflowers. While we were stopped, the ride photographer—who was probably psyched to be able to take some pictures that weren’t rain-soaked—urged us to go stand in that patch of floral sunshine with our bikes. I no longer recall if the photo was snapped on Day 1 or Day 2 of the ride; my instinct says the sunflowers were a Day 1 sighting. What I am certain of is that it was early enough in the ride that I hadn’t reached the halfway mark yet.

Beyond the setting and the weather, what strikes me about the image is that it exudes the joy and excitement I had doing this ride for the very first time. 

What’s not visible are all the expectations and fears I had going into the ride.

I was deeply invested in riding every single mile, all 300 of them—a goal I’d never attempted much less achieved at that point. Nothing in this photo reveals how scared and anxious part of me was of falling short of that desired milestone.

I was entirely uncertain I could raise $3,500, much less $10K, or $15K, or $20K. Quite simply, I had never asked for that kind of help—and so I was ignorant, both of my own tenacity and of the deep generosity and kindness of my family, friends, and colleagues.

I was also nervous about fitting into the ride family, worried that I’d feel alone. When I registered for the ride in April 2008, I didn’t know anyone. I’d met and trained with a handful of folks during the summer, but I knew we wouldn’t necessarily stick together throughout the actual ride itself. So I went in to the ride weekend excited—searching for and hopeful about a sense of connection and belonging—but I didn’t know how any of that would play out. 

None of that is apparent in the look on my face in this photo. Looking at it now, I seem to radiate an inner confidence and solidity. Those qualities may well have been burning deep beneath the surface, but if they were there, I wasn’t yet aware of it. I look grounded, and I know that isn’t how I was feeling at that point. I was open to what the road was going to bring, but uncertain about almost everything except my desire to attempt what felt impossible, even a little crazy.

This photo of me hollering my way up a hill is visually more in line with how I felt going into my first BRAKING AIDS® Ride.

Housing Works: 30 Years and Counting of Compassion, Healing & Audacity

Housing Works has been dedicated to doing audacious, necessary work that often feels impossible, even a little crazy, since its founding in 1990, providing lifesaving services to mostly poor, disenfranchised communities. In the early 1990s, that meant finding housing for homeless people with AIDS who had been cast to the margins by the rest of our society; it meant practicing harm reduction methods like needle exchange for drug users—then new and hugely controversial but now long proven to be one of the most effective HIV prevention interventions and indeed one of the most effective public health interventions, period.*

* (The proof is in the data: In 1993, at the height of the AIDS epidemic, 50% of the 15,000 new HIV infections experienced every year in NY State were transmitted via shared needles; by 2018, as a result of harm reduction programs, fewer than 70 new HIV infections—yes, 70; you read that correctly—were transmitted via shared needles annually across NY State.)

Since 2014, Housing Works has been leading the charge in the effort to end AIDS as an epidemic in New York State by 2020, with CEO Charles King appointed by Governor Cuomo to chair the Ending the Epidemic Task Force that drafted the state plan. New York State was the first jurisdiction to create an end-AIDS plan, and that bold vision has led dozens of other states and local government to follow suit.

As you all know, just a few months into 2020, the goal year, we were hit with a new, fatal, global pandemic and public health emergency. Housing Works did what it always does in a crisis: They sprang into thoughtful, intelligent, and immediate action to meet the needs of the most vulnerable who are always hit hardest. Rather than cutting back on their lifesaving AIDS, housing, and advocacy services, the organization both adapted existing programs to the new remote conditions—providing housing, healthcare, advocacy, case management, substance use treatment, legal assistance, and job training—and took on a leadership role in meeting the COVID-19 pandemic head on. A fuller summary of Housing Works’ COVID-19 initiatives, most of which are ongoing, can be found here, but highlights include:

  • supplying and distributing PPE to frontlines workers
  • opening COVID-19 homeless shelters
  • providing free COVID-19 testing and vaccination, including a mobile vaccination initiative at NYC HRA shelters
  • serving as a steering organization for NYC’s COVID-19 working group.

Perhaps one of their most important ongoing roles in the COVID-19 pandemic is the one Housing Works has always played in its relationship to government: as advocates and activists pushing our city and state to do more and do better for those at greatest risk, especially low-income people and the homeless.

For 30 years and counting, Housing Works has stepped up to face and solve whatever crisis comes their way.

That’s why I ride every year to support this important organization. This September will be my 13th BRAKING AIDS® Ride (12 rides as a rider, one as a volunteer crew member)—a one-day, in-person group event. Since that first ride in 2008, I’ve ridden tens of thousands of miles on the same blue bicycle I held overhead in that field of sunflowers, and I’ve shown up every year to do my part to create awareness and raise money—over $148,000 to date—to end AIDS and homelessness.

How You and I Can Help

In support of Housing Works’ ongoing dedication and audacity, between now and September, I remain committed to raising $20,000 to support their life-saving programs.

My personal wishes and goals for this year’s ride are similar to the ones I have more generally coming out of a year and a half of deeply fraught, uncertain pandemic living:

Please DONATE TODAY. Donations of all sizes are welcome, but a gift of $200 or more will go a long way toward reaching my $20,000 goal.

I want to enter it grounded in the spirit of self-renewal and self-compassion, with rejuvenated and deepened commitment, vitality, passion, excitement, joy, and above all, gratitude. I want my spirits to thrum with the bright audacity of field of sunflowers—so that my thoughts, feelings, and pursuits glow with some measure of that resolute vibrancy.

DONATE VIA MY FUNDRAISING PAGE: https://give.classy.org/mika2021

Me, joyful during BRAKING AIDS® Ride 2019, the last time the group ride event took place in person

Ways to make giving easier, to make your donation go further & to help me reach my $20K goal sooner:

  • PLEASE CHECK WITH YOUR HR DEPT. & SEE IF YOUR COMPANY WILL MATCH YOUR DONATION! If so, then check the “YES” bullet in the Company Matching section of the online donation form, and fill out the related information. You may be able to double or even triple your contribution! In 2020, over $3K of the $24,000+ I raised came from company matches, so I cannot underscore enough how much this helps.
  • Recurring Monthly Gift: On the donation page, once you select a gift amount, click on the “Donate Monthly” option to set up a recurring donation of any amount over your desired period of time. I prefer to donate this way because I can give more with much smaller hit coming from my wallet each month.
  • Cover Processing Costs: Each donation incurs a processing fee that’s 4% of your gift. When the overall fundraising goal is $20K, 4% adds up: If everyone who gives covers the processing fee, that’s an additional $800 that goes straight to work at Housing Works.
  • Please forward this information to EVERYONE. Spread the word to your friends, family & colleagues! Forward this email letter or share my donation link with your own networks on Facebook, Twitter, Instagram & other social media.

Thank you again for all of your support for this important cause. I couldn’t do any of this without you.

Please join me & Housing Works in the fight against AIDS by donating to Braking AIDS® Ride 2021 (Sept. 12)—Mika De Roo, Rider # 32.

Donation site: https://give.classy.org/mika2021

On Hope, Uncertainty, and an AIDS-Free NY by 2020

In less than two months, once again, I’ll be participating in BRAKING AIDS® Ride, a 300-mile bike from Cooperstown to NYC. Between now and mid-September, I have two objectives: to get into some semblance of shape for the physical challenge of the ride and to raise $20,000 to support the amazing advocacy and services provided by Housing Works, the ride’s beneficiary.

Since my first year doing this ride in 2008, individual donations from people like you have been essential in helping me raise over $100,000 and counting to support life-saving services for those living with HIV as well as its efforts toward ending the AIDS epidemic once and for all. I’m counting on the support of hundreds of individual donors again this year to raise at least another $20,000 to end AIDS as an epidemic in New York by 2020.

Photo: Me on Day 1 of BRAKING AIDS® Ride 2018, by fellow rider Kyle Cameron. The photo later appeared as the Contents photo spread in the Nov./Dec. issue of Positively Aware magazine, which was pretty fabulous. 

As someone who worked at Housing Works for five years, I have seen firsthand how its programs and services make a concrete difference. Since its 1990 founding, Housing Works has provided services to more than 20,000 homeless and low-income New Yorkers living with HIV/AIDS. Unlike many HIV service providers, which tend to focus on one or two primary areas of service, Housing Works offers a startling array of programs that help address the overlapping, intersectional issues faced by its clients: In addition to housing, services include primary healthcare, meals, case management, nutrition, substance use treatment, legal assistance, and job training, as well as relentless advocacy at the city, state, and federal levels to fight for funding and legislation that will help us end AIDS once and for all. It also offers those services with respect and compassion, a context that is essential to healing but all too rare.

I began doing this ride in 2008 in memory of two family friends who died of AIDS-related illness in 1987 and 2003, respectively, and for many close friends who live with HIV. For BRAKING AIDS 2019, I am riding in memory of two friends who died this past year whose lives epitomize compassion and citizenry in the best senses of both words.

My friend Dawn Grimmett (1975–2019), a pediatric nurse who lived in Alabama, died unexpectedly this last April from complications from pneumonia. If we hadn’t both participated in AIDS rides, I might never have met Dawn—and I am lucky to have known her. Dawn was funny and kind. A giver of tremendous hugs and fierce loyalty. One had to pity anyone foolish enough to say a bad word about the people Dawn loved; as she herself put it, “I might look nice, but I’ll cut a bitch!” She also led by example: She was open and candid that she struggled with depression, which even today comes with so much stigma despite how common it is. Without fail, every year since 2004, Dawn traveled across the country to dedicate two weeks’ vacation to being a volunteer nurse on the crew for two different AIDS Rides—California AIDS LifeCycle in June and BRAKING AIDS® in September—dispensing Advil, Band-Aids, Gatorade, ice packs, sunscreen, and whatever medical care was needed, along with unconditional love, and just the right amount of snark. Her life, which ended all too soon, two months shy of her 44th birthday, is a testament to the power of showing up. Dawn reminds me that some of the most important and significant gifts to fellow human beings and contributions to a movement are comprised of mundane, ordinary, and often quiet acts of kindness. The impact of those acts are cumulative, and a commitment to those compassionate acts is the stuff that long-term change is made of.

Photo: This year, I will be riding in memory of my friend Dawn Grimmett (1975–2019), who was a volunteer nurse on every BRAKING AIDS® Ride I have ever done.

My friend Andy Vélez (1939–2019), a longtime LGBTQ and ACT UP New York activist, passed away on May 14 at age 80 after a severe fall in his Greenwich Village building earlier this spring. Andy joined ACT UP in 1987, the year of its founding, back when AIDS was a death sentence to so many, the downward spiral of the illness itself was ugly and painful, treatments were toxic and few, and our government leaders had been ignoring the burgeoning epidemic for six years. Andy was a devoted and fierce activist for 32 years, and his passion for and tenacity in undertaking righteous lifetime activism inspired and continues to inspire countless individuals, myself included. The friendship we developed during a relatively finite number of years of coalition activism together was and remains dear to me, and I miss his kindness, his delicious stories, his wicked and bawdy humor, and his authenticity. To read more about Andy’s remarkable life, check out the tribute that appeared in the Los Angeles Blade, as well as this piece in PLUS, “Why We Still Need HIV Warriors.”

Photo: This year, I will also be riding in memory of my friend Andy Vélez, a longtime LGBTQ & HIV/AIDS activist who passed away in May. In June, ACT UP New York created these buttons, featuring a portrait of Andy by Bill Bytsura of The AIDS Activist Project, in honor of Andy’s lifetime of fierce, relentless activism.

You don’t show up for 32 years of activism unless you have some faith and hope that what you’re doing will make a difference, whether you yourself are able to see that difference or not. Andy’s life is a reminder of that for me. It’s a reminder to heed what writer Rebecca Solnit says about hope:

“Hope locates itself in the premises that we don’t know what will happen and that in the spaciousness of uncertainty is room to act. When you recognize uncertainty, you recognize that you may be able to influence the outcomes — you alone or you in concert with a few dozen or several million others. Hope is an embrace of the unknown and the unknowable, an alternative to the certainty of both optimists and pessimists. Optimists think it will all be fine without our involvement; pessimists take the opposite position; both excuse themselves from acting. It’s the belief that what we do matters even though how and when it may matter, who and what it may impact, are not things we can know beforehand. We may not, in fact, know them afterward either, but they matter all the same, and history is full of people whose influence was most powerful after they were gone.” [emphasis mine]

I’m not usually good with uncertainty. In fact, I struggle with it. All the time. But BRAKING AIDS® and the example of people like Dawn and Andy challenge me to challenge myself to find that “spaciousness” Solnit describes.

When asked what he wanted to be remembered for, Andy once said, “As someone who is able to help.” I’m riding again this year because I am able to, and in that same spirit, I am asking for your help to support my efforts. Together, we can end AIDS.

Please DONATE TODAY. Donations of all sizes are welcome, but a gift of $200 or more will go a long way toward reaching my $20,000 goal. A $200 gift feeds 100 homeless youths at Housing Works’ East New York Health Center.   

DONATE VIA MY FUNDRAISING PAGE: https://give.classy.org/mika2019 

Photo: Me, wearing the Japanese ACT UP “Silence + Death” tee-shirt that Andy Vélez gave me several years ago as a gift, with my wife Jennifer at the Dyke March for NYC Pride 2019, which was also the 50th anniversary of the Stonewall riots.

Why I Keep Coming Back to BRAKING AIDS Ride Every Year

This will be my eighth year participating in BRAKING AIDS Ride. One need look no further than this video of last year’s ride and of the amazing ride family I get to share this journey with each year to understand why I keep returning:

This year, I’m aiming to raise $20,000–much more than I’ve ever raised before–in support of Housing Works and New York’s ambitious plan end AIDS as an epidemic by the year 2020.

TO SUPPORT ME FOR BRAKING AIDS® Ride 2016, CLICK HERE. My goal is to raise $20,000 between now and September to benefit Housing Works life-saving HIV/AIDS services and to support the goal of reaching an AIDS-Free NY 2020.

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No Grit, No Pearl: What I Do the Day After Love Wins & U.S. Marriage Equality Prevails

Family & friends joined me and my wife Jen for our wedding in Provincetown, Massachusetts, on May 16, 2010. Marriage equality was the law of the land in the Commonwealth of Massachusetts then, but had been voted down in New York State, our home, on my birthday, December 2, 2009.

Family & friends joined me and my wife Jen for our wedding in Provincetown, Massachusetts, on May 16, 2010. Marriage equality was the law of the land in the Commonwealth of Massachusetts then, but had been voted down in New York State, our home, on my birthday, December 2, 2009. Photo by Doreen Birdsell.

Part I. June 26, 2015, still taking in the amazing Supreme Court Decision on Marriage Equality:

I remember exactly when NY State (the State Senate, specifically) last voted against marriage equality because it was on my birthday, December 2, 2009. When my wife Jennifer and I got married in May 2010, after 12 years together, we held our wedding in Massachusetts, where gay marriage was legal. At that point, NY State still hadn’t budged on the issue. NY State finally did the right thing right before LGBT Pride in late June 2011, a full two and a half years after that contentious 2009 vote, with the passage of the Marriage Equality Act. NY was only the 6th state in the U.S. to legalize gay marriage, and it was also the most populous state in the union to have done so. That was four years ago, almost to the day.

My wife and I never thought we’d see marriage equality across the U.S. in our lifetimes. In the optimistic moments when we dared imagine, however briefly, that that miracle might happen at all, we didn’t think it would be until we were very old.

We were wrong.

Fred Speers, officiating at my wedding, May 16, 2010, West End of Provincetown, Massachusetts.From left to right: my wife Jen, Fred, me. Photo by Doreen Birdsell.

Fred Speers, officiating at my wedding, May 16, 2010, West End of Provincetown, Massachusetts.From left to right: my wife Jen, Fred, me. Photo by Doreen Birdsell.

I often find myself being the skeptic about our collective capacity to change for the better as a society. The news I see every day, especially where it concerns race and class, seems to confirm that dire, grim trajectory: a seemingly endless stream of depressing, enraging, heart-breaking news stories and statistics. In particular I am thinking of racist verdicts and acts of racially-based hatred and violence across different U.S. cities and regions. Trayvon Martin, Mike Brown, Eric Garner, Freddie Gray, the recent mass murder of 9 black people in a Charleston church by racist, domestic terrorist Dylann Roof. Between news like that and our collective inability to move U.S. public policy in any meaningful way on issues like gun control or climate change, it makes it easy for me to become disheartened and to tell myself, although small victories may happen, the big, national-level progress I so long to see is impossible, that really, as a nation, as a deeply flawed democratic, capitalist experiment, maybe we’re just fucked.

And maybe we are. God knows, even after today’s coup for LGBT Americans, we have a daunting amount of work to do to make things better for the vast majority of our citizens & residents.

But a day like today is evidence that when we keep at it, change for the better does come. Excruciatingly slowly. But nevertheless.

I was reminded of that fact further when I saw that my dear friend Frederick Speers, my other me, had posted in a similar, more personal vein about this same pendulum-swinging, what Martin Luther King Jr. meant when he said, “The arc of the moral universe is long, but it bends towards justice.” I’m sharing Fred’s post along with mine because it’s worth reading, I dare say more so than my own. Not only because I love him. Not only because he officiated at my Massachusetts wedding to Jennifer Anderson in 2010 and I officiated at his MA wedding to Chase Skipper in 2009. I share his post below because he’s brilliant and eloquent at showing first-hand how that moral arc has bent toward justice and equality for him, within his own lifetime. In less than 30 years, we’ve gone from a world that told him as a young boy, “if you’re gay, you’re better off dead,” to one that acknowledges him, his life, the love of his life, and their marriage together as being as worthy of life, liberty, and the pursuit of happiness as everyone else’s.

Fred’s Facebook post on Friday morning, just after the Supreme Court decision was made public:

At 12 years old, I asked god whether I should die because I loved another boy. I listened. And the people said: “There is hope for homosexuality, especially through prayer – because it’s not an unchangeable CONDITION like being black or a woman.”

At 18 I asked to hold my boyfriend’s hand in public. I listened, and the people said, “This isn’t a real problem for us — since you can’t reproduce, and AIDS will finish you off.”

At 21 I asked to serve my country. I listened and the people said, “ONLY if you lie about who you really are.”

At 33 I asked to marry the love of my life. We listened together. “OK,” the people said, “but only in a handful of states.”

At 39 we asked for equality for all. We held our breaths. And the people said, “We see you now for who you are: Your LOVE matters.”

#lovewins

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Me, with Chase Skipper and Fred Speers, on June 6, 2009. I officiated at their wedding in Provincetown. Nearly a year later, Fred officated at mine to Jen Anderson, also in Provincetown. Chase is holding their marriage license, which I had just signed.

So, let this day of celebration also be a reminder, dear friends, to my future self above all, that Sam Cooke was right when he wrote and sang in 1964, “It’s been a long, long time coming,/ But I know a change is gonna come; oh, yes, it will…”

#‎lovewins‬

Part II. June 27, 2015, The Day After a Winning a Hard-Won Battle, or, “No Grit, No Pearl,” or, What’s Next?

It’s been quite something to see and hear the amazing love, joy, and support from gay and straight friends and family alike in the aftermath of this historic ruling. I think the full weight of it still hasn’t quite sunk in, to be honest.

I posted on Facebook last night that Jen and I didn’t think we’d see this change happen in our lifetimes, or if we did, we believed we’d be old. Very old.

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Same-sex self-portrait, #NYCPride, me with Jennifer L. Anderson, June 28, 2015. Photo by Jennifer L. Anderson

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Me with my amazing Housing Works Inc. Advocacy compadres, rocking ‪#‎NYCPride, June 28, 2015‬. The parade was so nice, we did the march twice! This photo was taken after Round 1, from left to right: Vinay Krishnan, Tony Ray, Jaron Benjamin, and me. Photo courtesy of Tony Ray.

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Notorious RBG! One of my favorite sightings at #NYCPride, June 28, 2015. Photo by Jennifer L. Anderson.

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The Housing Works float, during the long wait to march at #NYCPride, June 28, 2015. I think the thing that may have moved me most at Pride was the young kids we kept meeting throughout the day, strangers from Alabama and Arkansas and Indiana and even from New York or somewhere geographically closer, who kept thanking us and reaching over the police barricades to high-five us or hug us because they were so happy and they know what a big deal this marriage equality is. I couldn’t pinpoint what it was about their joy that was so beautiful and then I realized: They looked hopeful. Photo by Jennifer L. Anderson.

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Housing Works in the #NYCPride house, getting ready to march down Fifth Avenue, June 28, 2015. Photo by Jennifer L. Anderson.

Days like yesterday, which was and is a very personal celebratory moment for me and for many people I love, are also a reminder that when we work for the greater social good, year after year, decade after decade, century after century—even when it seems like we’re going nowhere because so many who wield power and wealth use those things to reflect all the hate in their hearts—when we keep at it, change does come. Excruciatingly slowly. But nevertheless.

To get there, though, we have to keep showing up, even when we seem to be in the darkest of tunnels. When all the news we see and hear is bad, unjust, unconscionable, shameful.

That being the case, this seems the perfect day to begin my fundraising for this year’s BRAKING AIDS® Ride.

I also marked this post-SCOTUS victory day with a 68-mile training ride to Nyack and back. There are no cute photos. It rained on the way back. I was alone, woefully behind on my training this season, slow. I didn’t break any records with my astonishing speed or hill-climbing prowess. I wasn’t special. Or charming. Or intelligent. My ego felt bruised at various points. I kept going. I climbed through Palisades Park for the first time this season. I ate my bagel at The Runcible Spoon and as I sipped my iced coffee, I texted everyone who was on my mind because I felt sad and a little lonely and a little scared about how I would feel on the four miles of climbs going back home. Not every fucking moment is a victory lap. Most moments aren’t. Most moments are training, which is work. I showed up. I worked. That is all.

This will be my eighth year doing this 3-day, 300-mile journey by bicycle to raise money for Housing Works and to raise awareness about HIV/AIDS. When I started back in 2008, I’d never raised this kind of money or ridden a bike this far or this hard. In the years since then, I’ve put in something like 13,000 miles on the same blue bicycle, and raised between $60,000 and $70,000.

My most generous supporters have donated with astonishing generosity year after year. Their support inspires and amazes me. Above all, it’s necessary, which is why I continue to ask for their help and the help of other kind people I know again and again, each time wondering whether they’re sick to death of hearing me ringing a relentless AIDS-fundraiser gong.

For now, I’m not going to belabor the importance of the cause and how this money helps people who need help. I’m not going to get into all the ways in which Housing Works lives out the belief that even the seemingly weakest or lost or most far-gone among us are deserving of second or third or fourth or however many chances it takes to change and make their own lives and the world they live in better. I won’t regale you with HIV statistics. For now, I’ll say this: We can end AIDS as an epidemic, even without a cure or a vaccine. Housing Works has been at the forefront of that movement toward an AIDS-Free New York, an AIDS-Free USA, an AIDS-Free world. This is our JFK moonshot. We will get there.

Change comes when people show up for the fights that need to be fought. The most important kinds of change are hard-won and require showing up again and again and again and again.

I’ll end with this: HIV/AIDS has been plaguing us for over 30 years. We’ve been fighting for a long time, and we’ll keep fighting until we reach an AIDS-free world. Change is coming.

TO SUPPORT ME FOR BRAKING AIDS® Ride 2015, CLICK HERE. My goal is to raise $10,000 to benefit Housing Works life-saving HIV/AIDS services by July 31, 2015.

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The Housing Works #NYCPride contingent, getting ready for lift-off, June 28, 2015. Photo by Jennifer L. Anderson.

Is that a Housing Works sign or is the Governor just happy to see me? New York was the sixth state in the U.S. to make marraige equality legal and the most populous. It led the way for the domino effect of states that changed their laws to move toward the right side of history. New York can do the same for HIV/AIDS, which is as big and arguably an even bigger social justice issue than marriage equality. It's also a battle we're still fighting.

Is that a Housing Works sign or is the Governor just happy to see me? New York was the sixth state in the U.S. to make marraige equality legal and the most populous. It led the way for the domino effect of states that changed their laws to move toward the right side of history. New York can do the same for HIV/AIDS, which is as big and arguably an even bigger social justice issue than marriage equality. It’s also a battle we’re still fighting. Photo by Anthony Lanzilote.

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The Housing Works community, marching for #NYCPride, June 28, 2015. What’s next? Fighting for and achieving an AIDS-Free NY by 2020. Photo by Jennifer L. Anderson.

Next Stop: AIDS-FREE NY 2020

A graphic from the newly branded Housing Works AiDS-FREE NY 2020 campaign.

A graphic from the newly branded Housing Works AIDS-FREE NY 2020 campaign.

One of the advantages of working at Housing Works is that I get to see and hear firsthand the impact of our advocacy efforts. On June 29, coinciding with NYC Gay Pride, we achieved a big victory: Governor Andrew M. Cuomo made history with his public declaration of an advocacy-based plan to end the AIDS epidemic in New York by 2020, as reported in The New York Times and in a press release issued by the Governor’s office.

Later the same morning, Housing Works and other AIDS and LGBT advocates held a press conference to praise the Governor for stepping up. A video montage of the statements made appears below.

To anyone who has some knowledge of the history of the AIDS epidemic for over three decades, this may perhaps sound like a daunting goal. But Governor Cuomo’s announcement reflects his recognition that the landscapes of HIV and health care have changed. Although there are more New Yorkers living with HIV than in any other state in the nation, New York has the people, institutions, resources, and tools needed to end the epidemic that has plagued us for more than 30 years by stopping new HIV infections and halting AIDS-related deaths. Based on progress and an expansion of advancements that have already been made—from new prevention and testing technologies to highly effective antiretroviral treatments—we have the science to make the ambitious goal of decreasing new HIV infection to below epidemic levels by 2020 viable. A successfully treated HIV+ person can live a healthy life and is virtually unable to transmit HIV to others. New HIV prevention tools beyond condoms, such as PrEP (pre-exposure prophylaxis, in which an HIV-negative person takes a daily pill to reduce the risk for HIV infection) and PEP (post-exposure prophylaxis, or meds taken following possible HIV exposure to reduce the risk of transmission), combined with these advances, mean we can end AIDS as an epidemic even without a cure. For more on PrEP, see this recent New York Magazine cover story or this post on PrEP on the Housing Works advocacy blog.

New York State has already been laying the groundwork to reach that goal. Always a leader and center of innovation in the fight against AIDS, New York has experienced a decrease in new HIV diagnoses of nearly 40% in the last decade, with fewer new infections each year. By contrast, there has been no decline in the number of new HIV infections diagnosed nationally each year, which has remained static at roughly 50,000.

Reacting to the news of Cuomo’s commitment, Housing Works CEO Charles King put it best:

“This step by Governor Cuomo, setting a clear goal to end the AIDS crisis in New York State, is absolutely courageous. In doing so, the Governor is reshaping the way we think about the AIDS epidemic and is setting a new standard for leaders of other jurisdictions in the United States and, indeed, around the world.”

And now that the Governor has gone all in, the real work begins—creating a blueprint to end AIDS by 2020 and implementing it. Toward that end, Housing Works and its allies continue to urge the Governor to convene a high-level State Task Force to develop and design a strategic roadmap with concrete steps and benchmarks for the Cuomo Plan to End AIDS in New York State.

Housing Works staff, clients, volunteers, and allies, celebrating during NYC Gay Pride 2014.

Housing Works staff, clients, volunteers, and allies, celebrating during NYC Gay Pride 2014.

For its own part, the same day that the Governor made his historic public commitment, Housing Works officially launched the New York segment of the ongoing Housing Works AIDS-FREE advocacy campaign during Gay Pride, marching behind the above “AIDS-FREE NY 2020: Closer than you think.” banner during the parade. Housing Works’ AIDS-FREE Campaign is a collaborative, multi-year initiative committed to ending the AIDS epidemic—in New York State by 2020, in the United States by 2025, and worldwide by 2030. For an overview of the campaign, click here.

The tag line on the banner isn’t merely aspirational. We are closer to making the end of AIDS a reality than we’ve ever been.

How You Can Support the Work Housing Works Is Doing
to Reach an AIDS-FREE New York by 2020

By and large, Housing Works’ advocacy—the grassroots organizing and political lobbying work it does in Albany, D.C., and across the globe to promote an AIDS-FREE future—is not funded by grants or by corporate or government dollars.

That’s one reason events like Braking AIDS Ride are so important. The funds raised by the ride to support Housing Works are unrestricted and can be used when and how they are needed across the organization.

As of this writing, I’m a little more than halfway to my $5,000 fundraising goal.

Please donate today to help me reach the finish line!