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About Mikola De Roo

writer • marketing & communications maven • former cheese monger

VIDEO—Taking the Way to Joy: After 12 Years, Why I Still Ride to End AIDS

I often get asked why I keep coming back to BRAKING AIDS® Ride and the cause and organization it supports. Most of the time, my answers take written form. This year, thanks to Black Watch, the video production company that’s been documenting the ride since its inception, I’m able to share some brief video footage from the road that gives a glimpse into what ending AIDS means to me.

DONATE TO SUPPORT ME for BRAKING AIDS® 2020

I don’t say it anywhere in the interview footage, but I’ve said elsewhere that the ride community, like Housing Works itself, embodies radical inclusion. Radical inclusion means accepting people as they are and standing for love that heals and for acts of kindness. Fortunately for me, that also means that those spaces and communities accept me as I am, however and wherever I am. I’ve shown up for the ride determined and confident. I’ve shown up terrified and exhausted. I’ve shown up elated to see my ride family together again. I’ve shown up lost, feeling like life has brought me to my knees, with no notion of what I might have to offer anyone else, much less a community or a cause. I’ve show up in joy and grief, heartbreak and euphoria. I’ve shown up juggling many of these contradictory feelings all at once.

Year after year, my BRAKING AIDS® family has shown me I can show up as I am, even mired in the doubts and dark-angel whispers of my weakest, most critical selves and still be accepted, loved, and useful. That openness in and of itself is a healing presence. The most important part is the showing up itself.

The same is true for Housing Works, which has been showing up for 30 years and counting to create hope for the most vulnerable among us, whether that’s through its long-standing, innovative HIV/AIDS and housing services to its recent Covid-19 emergency response efforts.

In this way, the ride and its community embody how prison abolitionist Mariame Kaba describes hope: She talks about hope as a practice, a discipline, a process rather than an external outcome, force, or destination. Hope is created from how we each choose to live and act every day.

The ride engenders that practice of hope for me. The collective spirit it creates and inspires enables me to “take the way to joy,” as my brilliant musician-songwriter-podcaster friend Sam Shaber says in the lyrics to the song playing in the video above.  I hope you’ll join me in supporting that journey.

Please DONATE TODAY.

Donations of all sizes are welcome, but a gift of $200 or more will go a long way toward reaching my $20,000 goal. 

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From left to right: me, with friends Rodney Newby and Blake Strasser on a recent Saturday ride. Photo credit: Mikola De Roo.

During the Covid-19 Pandemic, Housing is Still Healthcare

About Housing Works’ Emergency Covid-19 Homeless Shelters

True to its “housing is health care” roots, Housing Works’ first priority at the onset of the Covid-19 crisis and lockdown in New York was to address the most critical housing and shelter gaps created by this new pandemic. The policy at NYC’s congregant shelters has been to screen people for Covid-19, to send those with symptoms or who tested positive to a hospital ER, and then prohibit their return until fully recovered—a protocol that effectively turns homeless people with Covid-19 out onto the streets, where there is no way to maintain the adequate physical separation and hygienic safety measures necessitated by the coronavirus pandemic.

Aware of the particular challenges that homelessness would pose as Covid-19 spread throughout the city, Housing Works wasted no time back in March and immediately partnered with Latino Commission on AIDS, the National Black Leadership Commission on AIDS, Treatment Action Group, and Callen-Lorde Community Health Center to form the Covid-19 Community Work Group. Housing Works then approached the NYC Department of Social Services to propose managing Covid-19 emergency shelters out of unused city hotels.

As a result of those timely pivots, since April, Housing Works has been operating two shelters for homeless people who have or are suspected to have Covid-19, the first housing 150 people and the second housing another 100. Amidst a city shortage of protective gear and medical supplies, Housing Works also turned to a former board member to locate face masks, gloves, and other supplies to protect the people they serve as well as Housing Works staff.

At the Housing Works Covid-19 shelters, onsite staffers conduct wellness checks, case managers are on hand to help secure public assistance or Medicaid, crisis intervention specialists deliver behavioral health services using telemedicine, and Callen-Lorde staff provide medical services to residents. As of mid-June, the shelters had served over 300 people so far.

Housing Works is also working to find upgraded housing and better care and living situations for the people served, rather than just returning them to congregant shelters. For example, some people who were living with HIV or who had suffered domestic violence or sexual assault in the shelters have been able to transition into Housing Works apartments.

Select press coverage of Housing Works’ Covid-19 emergency work:

To donate to support Housing Works via Braking AIDS Ride 2020: https://give.classy.org/mika2020

The Blue Streak, taking a break to rest by the ocean.

Housing Works Covid-19 Emergency Response, BRAKING AIDS® Ride 2020 & Me: Your Help Needed

This isn’t going to be my usual, annual AIDS Ride fundraiser. A lot has changed since last September. For five months and counting, we’ve been in the midst of a raging global pandemic of a potentially lethal and highly contagious virus, the likes of which none of us has known during our lifetimes, and we’re experiencing the economic and community upheaval that goes with that. We’re also seeing a huge wave of nationwide and global demands for long overdue racial and social justice. To say that our world is facing ongoing volatility and uncertainty is putting it mildly.

2020: Not Your Typical AIDS Ride Year

In my 12 years of doing this ride, I’ve often written about the importance of showing up over the long term for the important causes and ideals we believe in. With so many challenges amidst so much chaos, it’s been hard to know what showing up means and requires in our present circumstances. Here’s what it means to me right now: Together, we can still take some actions that assuage some of those uncertainties and help address some of the existing societal inequities that Covid-19 has illuminated more widely, and I hope you’ll consider helping and supporting me in that endeavor.

Me, riding with my friend Brian Carroll on Day 1 of last year’s BRAKING AIDS® Ride. Photo by Alan Barnett.

Housing Works & the Covid-19 Crisis

Since 2008, I have participated in BRAKING AIDS® Ride in memory of Dennis and Curtis, two family friends who died of AIDS-related illness in 1987 and 2003, respectively, and for many close friends who live with HIV. In that time, donations from people like you enabled me to raise over $125,000 and counting to support services for those living with HIV as well as its efforts toward ending the AIDS epidemic once and for all.The life-saving HIV services and healing community that Housing Works has provided to the most vulnerable among us are still crucial, but because of the tremendous progress we have made toward ending New York State’s AIDS epidemic, that need is a little less dire than it once was.

What is urgent, as you likely know from the headlines you see every day, is supporting those hit hard by Covid-19, particularly in the most vulnerable communities among us. Many of those communities are the same poor, disenfranchised populations that Housing Works, BRAKING AIDS® Ride’s beneficiary, has been serving since its founding 30 years ago in 1990—those who are homeless or incarcerated, and those struggling with severe physical illness, mental illness, and/or addiction. As with HIV/AIDS, these communities have been particularly vulnerable to Covid-19.

As someone who worked at Housing Works for five years, I know firsthand that when a new crisis arises, no matter how daunting, time and again, the organization rises to the occasion to meet that challenge right away. After the devastating 2010 earthquake in Haiti, Housing Works responded with immediate emergency aid, helping rebuild three health clinics for those displaced by the natural disaster. Throughout 2017 and 2018, Housing Works galvanized an ongoing national movement of concerned citizens to descend on the Capitol to save the Affordable Care Act and oppose the many GOP attempts to repeal it and eviscerate affordable health care for all.

So I wasn’t surprised that as soon as Covid-19 shut down New York this past March, Housing Works sprang into action and became a crucial player in the city’s coronavirus response.In addition to their ongoing work as the largest community-based AIDS service organization in the country—providing housing, healthcare, case management, substance use treatment, legal assistance, and job training—since the beginning of the COVID-19 pandemic, Housing Works has opened two COVID-19 homeless shelters and partnered with a major NYC-based PPE supply operation to distribute PPE to frontline workers.

Those who are interested in more details about Housing Works’ innovative interventions can check out this post.

What’s most important to understand is this:

None of these endeavors was in the budget. But it is essential emergency response work that needs to be done. These remarkable Covid-19 emergency initiatives were launched in a matter of weeks, all while Housing Works has simultaneously faced a massive revenue deficit—estimated at $8 million by the end of June—as a result of the need to shut down its retail locations, which provide so much of their financial support, as well as the April cancellation of its largest annual fundraising event, and the suspension of a number of revenue-generating programs.

How You and I Can Help

The Covid-19 crisis isn’t going anywhere anytime soon, and no doubt Housing Works will continue to provide emergency services for our most vulnerable residents. Housing Works doesn’t hesitate to act and provide solutions when new problems arise, and we shouldn’t either.As of this writing, for safety reasons, the biking portion of this year’s BRAKING AIDS Ride will likely only span one day—a 62-mile, masked and physically distanced group ride beginning and ending in Manhattan. In the week leading up to the ride, I am also committed to doing two 100-mile (century) rides on my own while I’m in Cape Cod. More important, whatever the physical ride does or doesn’t look like, between now and September, I remain committed to raising $20,000 to support Housing Works. The graphic below highlights what your generous donation can help to fund right now.

Please DONATE TODAY. Donations of all sizes are welcome, but a gift of $200 or more will go a long way toward reaching my $20,000 goal. $200 provides two weeks’ worth of gowns for five residence managers; $250 pays for emergency food for 10 Housing Works shelter residents for a week.

DONATE VIA MY FUNDRAISING PAGE: https://give.classy.org/mika2020

Ways to make giving easier, to make your donation go further & to help me reach my $20K goal sooner: 

• PLEASE CHECK WITH YOUR HR DEPT. & SEE IF YOUR COMPANY WILL MATCH YOUR DONATION! If so, then check the “YES” bullet in the Company Matching section of the online donation form, and fill out the related information. You may be able to double or even triple your contribution! In 2019, nearly $5K of the $24,000+ I raised came from company matches, so I cannot underscore enough how much this helps. 

• Recurring Monthly Gift: On the donation page, once you select a gift amount, click on the “Donate Monthly” option to set up a recurring donation of any amount over your desired period of time.I prefer to donate this way because I can give more with much smaller hit coming from my wallet each month.

• Cover Processing Costs:  Each donation incurs a processing fee that’s 4% of your gift. When the overall fundraising goal is $20K, 4% adds up: If everyone who gives covers the processing fee, that’s an additional $800 that goes straight to work at Housing Works. 

Please forward this information to EVERYONE. Spread the word to your friends, family & colleagues! Forward this email letter or share my donation link with your own networks on Facebook, Twitter, Instagram & other social media.

Thank you in advance for your support for this important cause. I couldn’t do any of this without you.

Me, on the morning of Day 1, Braking AIDS® Ride 2020. Photo by Alan Barnett.

Please support me & Housing Works by donating to Braking AIDS® Ride 2020 (Sun., 9/13)—Mika De Roo, Rider # 32. DONATE: BRAKING AIDS® Ride 2020

BRAKING AIDS® Ride 2019 Recap: Thoughts on Radical Hope in the Light of Autumn

Braking AIDS Ride 2019

Photo courtesy of Alan Barnett Photography.

Recaps of endurance event fundraisers for important causes are usually triumphant, celebratory, and short. They’re supposed to sound and feel the way the image above looks—determined, strong, confident, assured. I promise this recap will find its way to some of those spaces, which were and are part of my BRAKING AIDS® Ride experience this year. It just won’t start that way, and the emotional journey to getting there, like the ride itself, was and is nuanced and complex, with twists, turns, hills. Not a straight flat path. But joys worth hearing about are ahead for you, Reader, even amidst some shadow detours. You’ll have to trust me and keep reading.

BRAKING AIDS® Ride is, of course, about raising funds and awareness for an important social-justice cause. If you received a link to this post, it’s because you donated to support my ride and help Housing Works continue to push for programs and policies that will end AIDS as an epidemic once and for all, starting with New York State by the end of 2020.

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As of September 15, BRAKING AIDS® Ride 2019  had raised over $242,000. Since then, as additional donations and matching gifts came in, that net total has increased to over $285,000. Photo courtesy of Asher Mones.

On those milestone fundraising achievements, I won’t bury the lead:

• Because of all of you and thousands of other generous donors like you, BRAKING AIDS® Ride 2019 raised over $285,000 net for Housing Works.

• Because of all of you, I not only exceeded my ambitious $20,000 goal, I raised the most money I have ever raised in any year doing this—more than $25,800 from over 200 donors. That’s 129%+ of my $20K goal. (Writers can do arithmetic, too!)

I’m also pleased and bemused to report that because of all of you, I have a fabulous new winter hat, knitted by my friend and BRAKING AIDS® crew member Meghan Sheldon-Brungard. I confess I wasn’t paying attention when this hat prize was being announced during dinner on Day 2 of the ride. (At that very moment, I was ravenous and focused on inhaling as much pasta as possible.) My recollection is that in addition to giving a shoutout to top individual and team fundraisers, a moment of acknowledgement was being made for the rider who had the most donors. Imagine my shock, my cheeks puffed up with pasta like a damn chipmunk, when Rider Coach and friend extraordinaire Blake Strasser called my name. My melon head is already much happier wearing this soft, rainbow hat in the freezing tundra outside. So thank you.

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Not everyone is meant to be a hat model. Gorgeous rainbow wool hat courtesy of Meghan Sheldon-Brungard and all 200+ of my generous ride donors. Photo courtesy of Jennifer L. Anderson.

A list of everyone who donated appears at the end of this post. Of the over 200 donors, to my astonishment after doing this ride for many years, more than 50 of them (25%) were from first-time contributors. As I said in the postcard you’ll each be receiving in the mail, thank you thank you thank you. I couldn’t have done it without you. Every single one of you.

That said, any rider or crew member will tell you that the actual riding part of the event over three days in September is as much for us—what it brings each of us and what we bring out in each other together—as it is for the cause. Some of this blog post will be about what we as a collective, including all the donors and supporters, accomplished for the cause, which is life-saving for so many, but much of what follows will be about the inner journey BRAKING AIDS® Ride 2019 was for me personally.

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 BRAKING AIDS® Ride 2019, Day 1, sometime in the morning when it was cold enough to be wearing all my layers. Photo courtesy of Alan Barnett Photography.

The photo above is in fact of me from this year’s ride. The moment captured in it is as real and genuine as any other I had during those four days. But it’s no more than that. A moment. As such, it’s only one tiny piece of a mosaic of thousands of moments that came and went in countless colors, shapes, and textures all weekend long.

The photo won’t tell you this: I came into this year’s BRAKING AIDS® Ride—my eleventh year participating—depleted on almost every level. 2019 has been a challenging year. That’s the ever-optimistic American euphemism for saying it’s been a shitty year. I’m American, to be sure; I’m also a blunt, native New Yorker who hails from people who don’t mince words about calling it like they see it, an Eastern European Jewish immigrant family—first generation born here on my mom’s side. So I will say it in both ways at once: 2019 has been a challenging, shitty year, full of dramatic change, some wonderful, some as horrific and painful as anything I’ve ever gone through. For me, it has been a year of moving forward into an unrelenting fog of uncertainty. Which is sometimes necessary, exciting, even beautiful, but also scares the shit out of me.

That’s the thing about fog, which, the more that I think about it, is a visual manifestation of states of uncertainty. In fog, you’re not necessarily lost, but you almost never know where you are.

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BRAKING AIDS® Ride 2019, Day 1, Glimmer Glass Lake, Cooperstown, NY. Photo courtesy of Mikola De Roo.

When I arrived in Cooperstown on Thursday, September 12, I was already exhausted.

Four friends of mine died during the first five months of 2019. Two were older men, mentors of mine both—one, Lee. K. Abbott, was a former fiction writing teacher who was my thesis advisor when I was finishing my MFA in creative writing at the University of Michigan, the other, Andy Velez, was a longtime LGBT and HIV/AIDS activist and ACT UP New York member. The other two were my peers, one a handful of years older than I am, one four or five years younger—Bill Bish, who I met through dear mutual friends some 20 years ago, died back in March, a suicide that I still have trouble thinking and talking about, and Dawn Grimmett, who was on the BRAKING AIDS® Ride medical crew and whose spirit embodied so much of the inclusion, love, and wry humor that the ride is all about, died unexpectedly in April after complications from pneumonia. In addition to the people in whose memories and in whose honor I always ride, I dedicated my efforts this year to the memories of Andy and Dawn because of the amazing impact they each had on my life and on the lives of so many living with and affected by HIV/AIDS.

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Dawn Grimmett (1975–2019)

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Andy Velez (1939–2019). Photo courtesy of ACT UP New York.

Other major challenges arose as 2019 unfolded. The new job I started in late 2018 and had high hopes for didn’t work out. I parted ways with the job and the organization before 2019 was half over and found myself heading into summer demoralized and faced with another daunting job search.

I should have had plenty of time to train in July and August. In my head, I urged myself to ride almost every day. But the stressors and losses of the first half of the year—and perhaps even those of the past five or so years, which I am not sure I ever let myself fully feel for fear that I wouldn’t be able to function and go on—had finally caught up with me. I felt weighed down physically and psychically, and that heaviness, coming from in and around me, kept me from getting out onto the road much. The ankle I sprained badly in 2018 flared up again after a minor, klutzy sidewalk spill in May or June, as did a mild knee injury. I was depressed for some weeks in June and July, sleeping at strange hours, awake when I should have been asleep and asleep when I should have been awake, rarely sleeping well. I knew many of the things I could and should have been doing for myself to feel soothed and comforted. I simply couldn’t seem to get myself to do enough of them to lift my spirits much in those mid-summer weeks. I put in some miles on The Blue Streak, my trusty bicycle, during those crucial summer training months, but those rides were shorter than usual and there were far fewer of them than I should have been doing. The riding also didn’t clear my head to the same degree that it normally does. My head and heart were steeped in other matters. I was focused on my inner life, recalibrating, job searching, writing, reading, trying to get myself back to a headspace that enabled me to get up and choose a new direction to follow.

Per usual, on the outside, I looked fine. Functional. Productive even, whatever that means. I sent out résumés, had interviews, walked our dog, became as domestic a partner as I ever have doing all the food shopping and most of the cooking. I spent quality time with my wife Jen, and at the same time, retreated from many of my friends because I didn’t want anyone’s pity nor did I want to talk much about or relive the dark stuff I was feeling tucked away in shadow corners of my heart.

I was fine. Because I’m always fine.

And I wasn’t fine. I was hurting.

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This is what it looks like when I’m fine but not fine, and the armor is off. Illustration courtesy of Greg Lauren.

The point of those admissions is not to elicit sympathy. It’s to say that being in that foggy state most of the summer made showing up for BRAKING AIDS® Ride 2019 tough. Tough may be the wrong word. I was scared. It scared me to show up feeling so shaky, vulnerable, sad, wounded, stripped down, and exposed.

Showing up for anything when I’m struggling is hard, and it has been a year marked by numerous struggles and what felt like failures or at least stalled efforts that I had yet to restart. Still, I didn’t ever seriously consider not showing up for the ride. I love the people in the ride community, and the weekend we spend together each September, while always different, is healing for my spirit; some part of me knows that going is the right thing for me to do for myself no matter where I am. However, if anyone had asked me, I entered BRAKING AIDS® weekend 2019 cautious and wary of myself, my guard up and armor on, tense with trepidation and a deep sense of uncertainty. Uncertainty about most parts of the rest of my life, who and what brings me the most meaning and joy, whether any of my desires, even if I can identify them, are still possible. Uncertainty even about the ride itself—what the road would bring me this year that would have any value, and what I was capable of offering to others that would have any value to them. I worried I might be unable to let my armor down enough to take what others were offering, and I felt guilty and disheartened that I was walking in to a space full of people I love with so little to give. Part of me felt like I was wearing all that vulnerability and depletion on my face and body. Because I was.

I also wasn’t happy going in knowing I wouldn’t be able to ride every mile. My body was far from 100%, and I hadn’t trained enough, plain and simple. I also knew the only way I’d be able to let myself enjoy the ride fully was by leaving my ego behind for the weekend as much as possible. It was about being willing to be curious rather than judgmental or worried about what I would and wouldn’t be able to do or achieve physically—listening to my body more closely than usual, to know when I could and should push myself and stretch and when doing so would be reckless, foolish, and a recipe for injury. I knew that, but I also knew that’s easier said than done.

What’s interesting about reflecting back on the ride weekend now, all these months later, after the magical afterglow of spending four emotional, intense, and rewarding days doing something meaningful and important with amazing people has faded, is what has stayed most with me. (Spoiler alert: What remains etched in my memory, and what matters most, is less about the cycling than one might imagine.)

These are my snapshots from BRAKING AIDS® Ride 2019:

DAY ZERO:

Orientation in Cooperstown

The day we arrived in Cooperstown for orientation (which we call Day Zero) was and is all about hugs. My wife Jen is on the ride’s volunteer crew, and the crew travels up separately early on Thursday morning. Each year, I ride upstate with her in one of the crew vans rather than taking the rider bus, which means that I don’t get to see most of the other riders until they arrive in the late afternoon. The ride family for me is divided into two big groups: some folks who I get to see socially during the rest of the year—sometimes at ride events, sometimes on my own—and those who I only tend to see during those four magical days out of the year, usually because of how far away folks live and everyone’s busy lives and schedules. The ride starts to feel like the ride to me when I get to hug the people who usually fall into the latter category. If I named everyone whose embrace filled me with joy and affection, I’d end up listing most of the people I know from the ride community. This year, however, a handful of those Day Zero reunions in particular were the jolt of love that my system sorely needed:

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Me with Chris Vaughan, one of my favorite people. Photo courtesy of Chris Vaughan.

Chris Vaughan. Chris recognizes that I’m a skeptic and misanthrope and loves me anyway. Go figure. He’s also among the few who sees I’m a walking paradox, containing Walt Whitman’s contradictory multitudes: The realist skeptic is also a tenacious believer, with a deep desire to have faith that change for the better is possible if we all keep showing up together. Some people see one or the other of those sides of me, but not both. The balance and nuanced tensions between those selves are more me than either element is on its own. Chris has always understood that about me. Perhaps best of all, Chris appreciates my filthy language and bawdy humor, even when almost no one else does.

Beth Shapiro and Andrea Slone Biblow. These fierce, beautiful, strong women are part of Team Isharo, a team of riders and crew that’s grown out of Beth’s incredible extended family. Which is to say Team Isharo is made up of Beth’s family members by blood, by marriage, and by choice—Beth’s two kids, two of Andrea’s three children and her partner, several cousins, and a longtime close friend—and the family grows a little every year. They ride and crew in memory of Ira Shapiro, Beth Shapiro’s older brother, who died of AIDS over 30 years ago. More on Beth and Andrea later in this post. These two amazing women were among the biggest reasons I was able to get through the ride as well as I did this year (and last year, too, for that matter).

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Team Isharo, a family of open-hearted warriors. From left: Lucy Biblow (Andrea’s younger daughter and at 17, the youngest member of our ride family); Sydney Shapiro (Beth’s daughter); Emily Biblow (Andrea’s older daughter); Jordan Shapiro (Beth’s son): Norrie Kurtz (Beth’s cousin); Beth Shapiro; Kate Farrington (cousin at heart, who joined the team via Norrie); and Andrea Slone Biblow (Beth’s cousin and friend). Missing from this year’s team photo are Steven Golub (Andrea’s partner) and Amy Danziger Tenenbaum (Beth’s friend, who we were all so sad wasn’t able to join us this year). Photo courtesy of Norrie Kurtz.

Linda Zipko. Part of our medical crew, Linda is kindness itself. She’s funny as hell, with no bullshit about her. The only thing wrong with Linda is that she lives in New Jersey, which is why we haven’t yet been able to hang out during the rest of the year, despite vowing to do so for years now.

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Linda Zipko, with Jamil Eric Wilkins. Photo courtesy of Linda Zipko.

Brian Carroll. Brian and I knew each other before last year, but in 2018, we were riding at a similar pace and cadence, so we spent a lot of last year’s ride together, at first by default and then intentionally, because we were enjoying each other’s company on the road. Brian’s kind, grounded presence kept me going more times than I can count last year. I hadn’t realized how much I was looking forward to seeing him again, and in fact, that some part of me assumed we’d ride together again this year, until I saw him arrive in Cooperstown, our eyes met, and we leaned in to give each other a big, affectionate squeeze.

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Brian Carroll with Sydney Shapiro, BRAKING AIDS® Ride 2019, Day 3, at the George Washington Bridge. Photo courtesy of Brian Carroll.

The embraces I had with each of these folks upon seeing them on Thursday afternoon for the first time in a long time—a year for everyone except Chris, who I got to visit with in DC last February—were soul hugs, the full body kind you don’t ever want to step out of because of how healing and joyful it feels.

Seeing and hugging these five people again reminded me that my fears and anxieties were feelings, nothing more, nothing less. Not truths. Not facts. Feelings. Feelings that would recede and pass. Chris, Beth, Andrea, Linda, and Brian, with little more than a smile and a brief, affectionate touch, all reminded me that whoever and wherever I was when I showed up for the rest of the weekend that followed and whatever happened, I was going to be surrounded by the main quality that is at the heart of this ride, and why I keep selfishly returning every year to replenish my spirit: love. Love of all kinds without condition or judgment. Love in the face of tremendous pain—loss and suffering and rage and disappointment and grief and anxiety and fear and depression and trauma. And for many of the folks in this community who have carried that pain, until they came to be part of the BRAKING AIDS® Ride family, they had been bearing that load—living with it and struggling with it—alone, for decades in some cases.

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BRAKING AIDS® Ride 2019 alarm clock. Yes, it’s set for between 4:00am and 4:15am. Photo courtesy of Mikola De Roo.

DAY ONE:

Cooperstown to Albany.

Or, Lost in Schenectady.

Or, “This is a pretty long detour!!!”

Day 1 began and ended with two bookends, both, as it happens, about unpredictability, humor, and good will. The first one occurred before I even made it to the shuttle to take us to breakfast and the opening ceremony.

I should preface this story by noting that I’m not a morning person. I’m slow-witted, draggy, and typically grumpy and in need of coffee at 4:15am, or 5:00am, or even 6:00am. In those wee hours, I’m a useless idiot who shouldn’t talk to anyone beyond saying “good morning” until I’ve been awake at least a few hours. That means that typically, ride mornings for me are about achieving two goals: 1) me having been vigilant enough the night before about organizing and prepping my gear for the next day’s ride that I don’t have to think too hard or search too long for anything in the morning, and 2) me not sleeping through the alarm when it goes off at 4:00am, which I’m always terrified of doing.

I thought I had done my due diligence. I checked the weather forecast and laid out all my gear before falling asleep, and I was out of bed at 4:15am. But on Friday morning, sometime between 4:30am and 5:00am, Jen and I discovered our hotel room door was stuck. The deadbolt wouldn’t budge. Jen picked up the phone to call the concierge in the lobby, and the line was dead. She then called Eric Epstein, the head of Global Impact (the company that produces the ride event), who she assists on the ride itself, on her cellphone to let him know we needed help, and Eric spoke with the concierge to get someone upstairs to try to pry the door open. During the intervening 15 minutes, we tried the adjoining door to the next room, hopeful we might exit that way if need be, but it was two doors, one on our side that we could unbolt and one behind it that could only be unlocked by the people next door. We spent a few minutes debating how likely it was that those people were also BRAKING AIDS® folks, and whether it was worth risking waking up total strangers at that hour. I mulled over other absurd options, including going back to bed. At one point, I even peered out our room window to contemplate whether exiting the building that way was feasible, however crazy it might be given that we were up a flight or two—though I admit I had no plan for how we would get our two suitcases out that way.

The time it took the hotel to get someone upstairs was just long enough for me to consider that if they couldn’t get the door open and had to call a locksmith, a fair portion of my first ride day might be all shot to hell right there. After all the weighty worries I’d been carrying around for months, and after Jen and I had run through all our options for trying to get the door open and all we had left to do was wait for help, I found to my surprise that I wasn’t frustrated. I was amused, relieved even. A stupid hotel door deadbolt might be the obstacle that would keep me stuck in Cooperstown indefinitely, unable to ride? It struck me as funny. Hilarious even. Because it was.

So much of life is not in our control. If I was going to have any chance of enjoying most or even any of what might happen amidst all that Unknown Stuff, I was going to need to roll with it, do the best that I could, and surrender willingly if sometimes begrudgingly, to whatever surfaced that wasn’t in my power to change. It was exactly the kick in the ass my self-centered anxieties needed to put things in perspective for the ride.

After the hotel staff cavalry arrived, it was touch-and-go for another 10 minutes, but we did get sprung from the room by a vigilant hotel concierge. I made it to breakfast a little late, and the rest of the morning was blissfully undramatic.

me at Glimmer Glass 2

BRAKING AIDS® Ride 2019, Day 1, Me at Glimmer Glass Lake, Cooperstown, NY. Photo courtesy of Mikola De Roo.

Day 1 was freezing and foggy but beautiful and perfect for riding, especially as the day warmed up. Beth and Andrea, with whom I’ve been riding more and more the past few years, were both crewing that day (and then riding for Days 2 and 3), so I spent a fair amount of the first day riding alone. The scenery was beautiful, rolling hills, farm land, cows and horses, barns, rows of crops ready to be harvested. Mist off horizons. I felt more grounded in my body than I expected to, slower than I usually would be but stronger than I expected. After the silliness of the morning, the mere fact of being able to ride was peaceful and centering. I felt grateful, more calm and comfortable in my own skin than I had in months, and I didn’t have any expectations about my pace or mileage. I went with what my body told me and listened to it, slowing or resting when I needed to.

Glimmer Glass 3

BRAKING AIDS® Ride 2019, Day 1, Glimmer Glass Lake, Cooperstown, NY. Photo courtesy of Mikola De Roo.

In the afternoon, when I had gotten through about 80 to 85 of that day’s 100+ miles without a hitch, I had a surprised-by-joy moment. I looked at the remaining route info, which was flat terrain for another 15 to 20 miles, and realized with pleasure, Huh, I might actually ride every mile today. That’s a lovely surprise. 

Well, sort of. That brings me to Bookend 2. The rest stop oasis at roughly Mile 80 or 85 was, at it happens, being overseen by Beth, Andrea, and Andrea’s awesome 17-year-old daughter Lucy. I hung out with them happily for about 15 minutes, resting, snacking, and rehydrating. Then I went to pee, and I was ready to plow through the next 20 or so miles into Albany to the hotel, where I could take a much-needed shower. Both the oasis and the surrounding signage were a little unusual in their set-up because the rest stop was in a sort of campground hut off the main road, and the next 10 to 12 miles of the route was on an extended bike trail through woods, rather than a road open to car traffic. I said goodbye to my friends, peeled out of the oasis entrance, made a right, waving at the three other riders and crew members standing near the oasis entrance/exit (including Christian, our Ride Crew Coordinator,  who knows the route inside and out), and headed down the bike trail.

I was getting tired, but the trail was flat and forgiving, and the foliage and weather were beautiful, so I was in good spirits. We’ve had a few trail segments on the ride before. Because these stretches tend to contain no possible choice points for riders to make a right or wrong turn, or any directional decisions at all, and because they tend to be wooded with few viable places to hang the ride signs, which are usually posted every mile or two, there’s less signage. I didn’t think anything of it when I hadn’t seen a BRAKING AIDS® sign in a while. Because the trail wasn’t open to car traffic, I also knew I wouldn’t see any BRAKING AIDS® crew vehicles passing me along the road. Finally, it was the last leg of a long first day. I wasn’t concerned that I didn’t pass any other riders on the trail. The strongest, fastest riders were already in or near Albany; many other riders had put in their cycling miles for the day and were being transported to the Albany hotel by Safety and Gear support vehicles. In the last 15 to 20 miles of a 100-mile ride day, I’ve often ridden long stretches alone without seeing another rider.

Can you see where this is going, dear Reader? Good for you. I didn’t. Until the bike trail sort of ended, some 12 miles or so from where I’d left Beth, Andrea, and Lucy’s oasis, dumping me out onto a small intersection of a town, with strange, unclear road signs indicating that if I made several turns through town, I’d pick up the bike trail again, I had no inkling anything was amiss. I followed those weird signs about the trail for a few blocks, stopped under a highway overpass to stare bleary-eyed at the route cues sheets that I had managed to hang onto all day, and couldn’t figure out what I’d done. Then I called Dispatch to tell them I was lost and off-route. Dispatch sounded a little confused or flummoxed by where I was, which made us all laugh. They were having web connection trouble pulling up maps to locate me and then direct me, but after chatting for a few minutes, we managed to piece together the way to set me right and get back on route. I thanked them, took their directions, and off I went. I rode another few miles until my phone rang. It was Andrea, who had packed up the oasis along with Beth and Lucy in their transport van; they were ready to drive to the Albany hotel, when they got a call from Dispatch. After getting off the phone with me, Dispatch must have realized based on where I was that I had somehow managed to backtrack 10 to 12 miles on the route. I was in fact farther from Albany than I had been when I left the last oasis.

“We’re coming to pick you up,” said Andrea. “Where are you now?”

Several GPS searches later, it became apparent that I was in Schenectady. Again. Near a funeral home. And a college campus.

“We’ll be there in 10 minutes.”

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The text I received from Andrea Biblow around 5:00pm while waiting for her, Beth Shapiro, and Lucy Biblow to pick me up on a street corner in the wilds of Schenectady, a town I managed to visit twice on BRAKING AIDS® Ride 2019, Day 1. Photo courtesy of  Mikola De Roo.

I stood on a Schenectady street corner, a dork in a pink jersey with flying goats on it, waiting for my friends to haul my ass and my bike back in the right direction.

My detour was due to a single mistake: That right turn I made out of the oasis onto the bike trail? That should have been a left turn. If a sign was there saying so, I didn’t see it. I was on the right path, going in the opposite direction. I try not to make too much of the symbolism. These things happen sometimes.

When Beth, Andrea, and Lucy arrived, they were teasing and kind, relieved to see that I wasn’t pissed or frustrated by not being able to ride the last leg on my own steam. It’s true I could have done the mileage, but it was late and getting dark and with my nutty detour, I had more or less put in a full day via my own special route. Safety first. The day brings what the day brings.

When Beth commented that I was in good spirits under the circumstances, I shrugged and grinned.

“My day started with us being trapped in the hotel room. So this is on brand.”

In point of fact, I’m hard-pressed to articulate why, but the whole way back to Albany, surrounded by these women, who are compassionate, loving, smart, thoughtful, and funny as hell, I couldn’t stop smiling and laughing. Not when we spent 10 minutes trying to figure out how to store my bicycle in a van that was set up for carrying snacks, drinks for hydration, tables, and oasis-themed costumes and decorations, not bike transport. Not when Andrea and Lucy ended up sitting on boxes or coolers or what have you, because the van only had two real seats. Not when Andrea and Lucy were bickering about the right way to navigate GPS directions while Beth waited for them to tell her which way to turn so we didn’t end up in Schenectady again.

That photo of me on my road bike that looks like an advertisement for the perfect ride on the perfect road bike? I had that happy-place feeling again in that oasis transport van,  despite being tired, gritty, hungry, in need of a shower. The fog of existential frustration I had carried into Cooperstown with me had lifted, at least for a while. I was grateful my friends had come for me. I was happy as could be to see their amused, loving, beautiful faces. Dispatch had apparently debated about the best way to pick me up—a calculus that weighed van types with who on the crew was closest to where I was. Whatever the factors, my friends insisted on getting me. I felt loved and cared for and protected and safe and cherished.

Most riders think the end of a perfect day on the road looks like rolling up to the hotel entrance and being cheered at by all the other riders and crew for finishing the day. Sometimes it does look like that.

Other times, it looks like friendship and generosity and humor and love. It look like this:

Team Isharo rescue

Schenectady. Again. The best rescue team a tired, lost rider could ask for. Clockwise from left: the exhausted, sweaty one in the pink jersey is me; Andrea Slone Biblow; Beth Shapiro; and Lucy Biblow. Photo courtesy of Andrea Slone Biblow.

DAY TWO & DAY THREE: 

Albany to Ellenville—>Ellenville to NYC.

After a powerful opening moment as a group at the Capitol, Day 2 was an immersion into damp mist and fog that was quiet and beautiful and haunting all at once. The early dawn light shifted between blue and grey and slate and yellow-green from an overcast sky as we cruised down empty streets wet with rain. It made everyone even quieter than they usually are at that early hour.

My most visceral memory of Saturday morning was turning into a park where an oasis awaited us. I coasted down a hill obscured by mist only to be met by a deer that emerged from the woods and came to a stop in the middle of the road in front of us. Only one other rider was with me, Steven Epstein, Eric Epstein’s brother, who I saw on the road a lot that day. We both slowed down to a near-halt, and the deer stared at us. Within a few seconds, another dozen or so deer that must have been trailing behind the first one came forward and paused behind the herd leader. They watched us carefully, pausing as though bestowing a silent blessing of some kind, and then they trotted across the road and into the trees.

The morning stayed that way. Quiet. Contemplative. Fogged. I found myself lost in thought at some moments and at peace and just being in others.

me and Steven iE. Day 2 in fog

BRAKING AIDS® Ride, Day 2, outside of Albany, around 6:30am. I’m trailing Steven Epstein into the mist and fog. Aside from the photo of me with Beth, Andrea, and Lucy after they rescued me from further poor navigation—a photo in which I look exhausted and puffy because I was but my friends look radiant, so I don’t care and love the photo anyway—this might be my other favorite photo of me from this year’s ride. Photo courtesy of John Anderson. 

I rode with Beth and Andrea a fair amount through the rest of the day, and we all ate lunch together with Jen at the Woodstock oasis. In the afternoon, after we got to the Ashokan Reservoir, Beth and Andrea were ready to take a break from riding and headed into a van. I decided to ride on. My thought as a couple of rain drops began to pock my jacket was that a little rain never hurt anyone. I was right that it didn’t hurt. I was wrong about the amount of rain. It wasn’t a little, it was a lot. Sheets of rain came down for the better part of the next few hours. At a certain point it became laughable, frenetically joyous to ride through rather than irritating. For a while. Toward the end of the day, when my muscles and mind were becoming weary, the layer of wet became another weight I couldn’t wait to shed. When I finally arrived at the old Catskills hotel in Ellenville, a fellow rider greeted me with a towel, and my riding clothes were so soaked, I left puddles in my wake everywhere I stood for more than a minute.

Griswold Day 3

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When BRAKING AIDS® Ride can’t go to the First Congregation Church of Griswold, apparently, the church can come to us.  Photos courtesy of Mikola De Roo.

Day 3 heading into NYC was the opposite of the previous day. The sun was out, but it was an unrelenting sort of sun. Hot and tiring. We were content but achy and ready to be done with riding. I was certainly done with hills. A highlight of the day: Lunch and homemade pie from the First Congregation Church of Griswold, CT, which I have written about before. For years, when the ride route went from Boston to NYC, the church was an oasis toward the end of Day 1, and volunteer congregants and staff came out to cheer us on and serve us homemade pie and soup, as well as give us hugs and cards of encouragement from kids in the congregation. They also pass the donation plate at the church before the ride and contribute a group donation on behalf of their congregation every year. They walk the walk of compassion, love, acceptance, and inclusion, and they make me wish all religious institutions, irrespective of belief system, could move in the world that way.  When the ride changed in 2018 from Boston to NYC to its current Cooperstown-to-NYC route, one of the first pointed questions posed to Eric was, “Wait, what about the Griswold church folks?” The astonishing part is the answer:  They’ve kept coming. Apparently when Eric called them to give them the news that our ride would no longer take us through Connecticut or anywhere near Griswold, they didn’t bat any eye. The past two years, they’ve driven all the way from Connecticut, with homemade pie and soup and other yummies in tow, to some small park near the northern NY–NJ border to serve us lunch and cheer us on, the same way they have every single year. Look at a map. They’re spending more hours on the road getting there and back than they are with us.

That’s what I mean when I say this ride is restorative and transformative and about far more than cycling, raising money, or even raising awareness. It’s an experience that year after year—even when it’s emotionally intense, which it almost always is, and even when it’s painful, which it sometimes is—is a model for what the world should be like rather than than the way the world usually is. That’s because of the people, not only who shows up, but how they show up.

me and Andrea

BRAKING AIDS® Ride 2019, DAY 2, Albany to Ellenville, me, at breakfast, on Red Dress Day, with the kind and beautiful Andrea Slone Biblow, whose company and friendship have been one of the biggest highlights of my rides the past few years. Photo courtesy of Beth Shapiro.

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BRAKING AIDS® Ride 2019, DAY 3, Closing Ceremonies at Grant’s Tomb in Manhattan. From left: Crew member and Positive Pedalers Board President Çhärlėš Łöūgée, me, and Team Isharo member and friend Amy Danziger Tenenbaum, who was missed on the ride this year but who came to closing ceremonies to cheer us in. Photo courtesy of Tom Okada.

No one embodies those qualities more than Beth, Andrea, and Amy Tenenbaum, all of whom I met the first year I began doing this ride back in 2008, and who I’ve had the pleasure and privilege to come to know much better the past two or three years. I rode with Andrea a lot last year, and this year, I rode with her and Beth for a lot of Saturday and Sunday. Amy’s absence this year was palpable, and I hope she has been able to fully take in how much we all missed her.

This year, it was especially moving to ride the final leg of the route with Beth and Andrea into New York City and to closing ceremonies, which is the first time that’s happened. Riding over the George Washington Bridge with them, I couldn’t stop smiling.

Day 3 FIN

BRAKING AIDS® Ride 2019, Day 3 home stretch: The view of Manhattan from the New Jersey side of the George Washington Bridge. Photo courtesy of Mikola De Roo.

When I try to think of what Beth, Andrea, and I talked about over the course of the weekend, what we laughed about aside from my silly Day 1 detour (though we absolutely laughed a ton—see photo below), when we were serious or sad or complaining and what we shared, nothing specific comes to mind.

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Me and Andrea Biblow sharing one of many laughs. The source of this one? Trust me—you don’t want to know. Photo courtesy of Alan Barnett Photography.

Truth be told, I find it hard to describe the texture and quality of being with these incredible woman. Perhaps it’s because their open-hearted, accepting presences put me at ease. I feel immediately comfortable and comforted. That’s notable. That doesn’t  happen to me often with other people—and when it does, it takes longer for that ease and trust to develop. I’m private. It takes me a while to let my shoulders drop, to get to comfortable. Beth and Andrea bring that ease and trust out in me. They are—kind. Compassionate. Welcoming. As Chris Vaughan said to me recently, they both have remarkably open and loving hearts, and they greet the world with this invitation to others: Tell me how I can help.

On the ride in particular, that care, patience, and devotion to those they love is as visible on them as the cycling gear they wear when they ride and the themed oasis costumes they don when they crew. It’s especially apparent in the affection and ease with which they interact with each other; with Amy, who’s usually the third in this trio of powerful, amazing women when it’s complete as it should be; and with the other members of Team Isharo—children, cousins, spouses and significant others, friends. It’s moving to witness those moments between them and be surrounded by that wave of attentiveness and steadfastness to one another even when it’s only moving between them as a family. The ride gives a big group of us the gift of seeing and experiencing the beauty of a family intimacy that would otherwise be private.

At the core of that intimacy is the spirit of Ira Shapiro, Beth’s older brother, who died way too young in 1987 after a short brutal battle with AIDS, less a month after his diagnosis. Beth has said that her biggest fear was that she would forget Ira. Instead, she has managed to not only honor his memory by fighting to end the disease that killed him—this year was her 17th ride, and Amy has been doing the rides alongside her from the very beginning—but she has ensured his legacy by telling her story, his story, and by sharing memories of him with many people who never had the privilege to meet or know him. Starting with her own children, Sydney and Jordan, who now also do the ride, but also extending through the rest of Team Isharo, and indeed the full BRAKING AIDS® family. And Andrea—rarely have I encountered someone who is as giving, fervent, loving, and fiercely loyal to those she loves and who takes such joy in doing so. On more than one occasion, watching her, Beth, and Amy support each other as dear friends, sometimes even in the most mundane ways, has moved me to tears.

That’s the sort of vulnerability and intimacy that develops on this ride, and the intense power of it. When I did my first BRAKING AIDS® Ride in 2008, I knew no one else who was participating, and I was riding in memory of two family friends, Curtis and Dennis. Now, 11 years later, and after 5 years of working at Housing Works with so many others who have lost people to AIDS, live with HIV, or both, I carry a list of names with me while I ride every year, some who have died and some who are living with HIV. The list keeps growing, and not only because of new deaths, although those keep happening, too, unfortunately. That list grows because Beth shared Ira with me and so many others, because Chris told me about his partner David, because Amy Hemphill told me about her brother Mason, because Fred told me about his ex-partner Ken, because Eileen told us about her brother David, because Clay told me about Craig, because Craig Pinckney-Lowe shared his memories of Joseph and Uncle Billy and Uncle Bobby, because Will told us about his father, Charl about Steven, Valerie about her first husband Papo, Reed about his mother. If I listed all the names of beloved people who bind this ride family together, both those we’ve lost as well as the many inspiring, brave friends I have who live with HIV, the list would be longer than the list of donors at the end of this post.

So what does that all add up to?

I have been thinking a lot the last few years about what philosopher Jonathan Lear called radical hope. Lear wrote, “What makes this hope radical is that it is directed toward a future goodness that transcends the current ability to understand what it is.”

What strikes me as strange and intriguing about this type of hope is that it doesn’t depend on having a delusional denial of the current, usually less-than-stellar realities and challenges and sufferings. In fact, radical hope seems to require a tacit, realistic acknowledgment of that forbidding, present-day landscape and the lousy odds of it changing any time soon, and then merges that recognition with an insistence on actions geared toward a better future anyway.

Day 2 group shot

BRAKING AIDS® Ride 2019, DAY 2. The whole BRAKING AIDS® family gathers for a group shot on Red Dress Day. 

The volatile and divisive times we’re living in make it both harder and easier to remain grounded in the utility of radical hope as a way to live. On a disheartening day, it feels sacrificial for minimal progress—but then, what is the alternative? On an inspiring day, it feels joyous—and my ideas about what inspiring days look like are evolving. Of course I enjoy victories, especially over hard-won battles like ending the AIDS epidemic, which we are now well on our way to doing in New York State by 2020 (next year!). But the victories that matter most are hard fights that take time—sometimes a lifetime, sometimes many lifetimes—and the world can be an unfair, ferocious, vicious, and unsparing place. Some of us will be around for some of those triumphs, and we will dance and celebrate together. Some of us won’t. Who will be in which category is, as far as I can tell, arbitrary, and as subject to the world’s inequities, ferocities, viciousness, and mercilessness as anything else. I’m not yet 50, and in the month following the ride, two of my oldest and closest friends found out they have cancer, neither HIV-related. I don’t need to look hard or far to have a visceral sense of how fleeting, how mutable our time to be alive can be.

Radical hope is what we have in the meantime, until the arc bends toward justice and those victories finally rise to the surface and until we have to pass the torch to younger people to continue the fights that need fighting, because there is always another injustice to fight. Radical hope is the people I love on this ride and the people on this ride who love me. Radical hope is that most of them have been riding since the days when AIDS was a death sentence and any thought of ending it was a farfetched fantasy.

Radical hope is Chris looking down at the photo of David on his bike on Day 1, and remembering how astonished he was earlier that morning when I had used David’s last name, David who I never met. Radical hope is Beth seeing Chris begin to cry with the realization that I know of David and Ira and so many others through this ride, and Beth coming over to Chris wanting to know what was going on—not what was “wrong,” allowing and understanding that tears are as much a part of the human experience as laughter. Radical hope is Chris telling Beth what was stirring his heart and the two of them holding each other in grief and joy. Radical hope is understanding, accepting, and even embracing that grief and joy and any number of other complex emotions live intertwined with each other. Radical hope is Chris and Beth and Andrea and Amy and my beloved Ride family celebrating these helixes of emotional DNA in everything they do and in every way they are.

me and Steven iE. Day 2 in fog

Some images are worth repeating.  Photo courtesy of John Anderson.

In the fourth part of her masterful, six-part poem “October,” poet Louise Glück asserts, “You will not be spared, nor will what you love be spared.” (The entirety of Part IV of Glück’s “October” appears below, but it is worth reading the full poem, which is available both as a standalone chapbook published in 2004 and in the 2006 collection Averno.) Radical hope is regarding and understanding that unsparingness and the inevitable deaths and sufferings that accompany it, and showing up to help others anyway, “still passionately clinging to what you love,” as Glück puts it. Radical hope is what Glück describes as a willingness to embrace the light of autumn, the beauty of its losses, and the happy-sad melding of joy and grief, and to “approach the end still believing in something.” Radical hope is us choosing again and again to ride into that veiled fog together and to cherish what we find in ourselves and each other along the way.

Section IV from “October,” By Louise Glück
IV.

The light has changed;
middle C is tuned darker now.
And the songs of morning sound over-rehearsed.

This is the light of autumn, not the light of spring.
The light of autumn: you will not be spared.

The songs have changed; the unspeakable
has entered them.

This is the light of autumn, not the light that says
I am reborn.

Not the spring dawn: I strained, I suffered, I was delivered.
This is the present, an allegory of waste.

So much has changed. And still, you are fortunate:
the ideal burns in you like a fever.
Or not like a fever, like a second heart.

The songs have changed, but really they are still quite beautiful.
They have been concentrated in a smaller space, the space of the mind.
They are dark, now, with desolation and anguish.

And yet the notes recur. They hover oddly
in anticipation of silence.
The ear gets used to them.
The eye gets used to disappearances.

You will not be spared, nor will what you love be spared.

A wind has come and gone, taking apart the mind;
it has left in its wake a strange lucidity.

How privileged you are, to be still passionately
clinging to what you love;
the forfeit of hope has not destroyed you. 

Maestoso, doloroso:

This is the light of autumn; it has turned on us.
Surely it is a privilege to approach the end
still believing in something.

THANK YOU AGAIN TO ALL MY AMAZING 2019 BRAKING AIDS® RIDE DONORS: 

* new donors in 2019

Anonymous (14 donors, *****5 new)    Jessica Abel & Matt Madden    Mike Abram *    Chris Anderson & Mel Stupka    James Anderson & Suzy Turner    Midori Peiris Anderson *  Renée Anderson   David Anthony    Janis & Dave Auster  Marco Avila *   Sean Ball    Jason Baluyut & Michelle Misner    Elizabeth Barrett *    Jenna Barry    Emily Bass *    Leah Bassoff    Nat Beagley *    Heidi Bender  •  Jon Bierman    Deirdre Birmingham  •  Maxine Borowitz *    Nancy Boudreau *    Mark Brady & Bonita Leung *    Arnold N. Bressler *    Robert Brooks    Carrie Buss    Catherine Campbell    Barb Cardell *  Stephanie & Bill Carpenter  •  Jess Carroll & Sharon Glick    Lynne Carstarphen    David Cascia    Beth Castrodale    Betty Chen    Andrew Coamey    Paula Collins *    Barron Collodi *    Susan Conceicao    Nancy Crochiere    Chad Crume    Richard D’Amico & Mike Meyerowitz    Suzanna De Baca    Adele Della Torre & Spencer Okada    Zoe DeRoo     Ellen DeVegh     Nicole Dewey & Bill Seely    Pawan Dhingra *    Carol Diuguid  •  Sharon Doctor    Peg Donahue *    Cassidy Edstrom *    Mariamne Eliopoulos    Polly Englot *  •  Rachel Epstein *    Vivian Firger *  •  Janis Firstenberg *    Sheldon Firstenberg *    Timothy Fitzpatrick    Kory Floyd & Brian Seastone    Dianne Footlick  •  Marcel & Anne Frenkel *    Emmanuel Gaeta *  •   David & Svenja Gifford-Leggewie    Kristin Goodwin  •  Judy & Jay Greenfield    Brent Griffith    Cheryl Grimm    David Groff  •  Amanda Guinzburg    Michelle Hamm *  •  Karen Henry  •  Janice Hillman  •  Madelyn Hoffman *    Frima Fox Hofrichter    Noel Hohnstine    Frank Hopp    Thomas Hyry    Andrew Janke    Andrea Johnson    Marsha Johnson *    Shelley Karliner & Barbara Howard *    Elizabeth Keyes *    Michael Kharfen *    Liz King    Alison Kliegman    Tad Kulkowski    Carolyn Lengel    Matthew Lesieur *    John Lewis *   Becky Lien   Jen Lowe *    Rachel & Jon Lowy    Frances Lucy    Matt Martin  •  Luke McDonough    David Meier    Kristin Mellstrom *    Alan Miles    Megan Minier*    Heather Mirman    Sadie Mitnick *    Richard Monreal    Lily Moore *    Bennett & Lorraina Morrison   David Murphy  •  Elizabeth Murphy    Eva & Tom Okada    Jacob Okada & Carylanna Taylor    Kate Padgen *    Gregg Passin    Ann Pedtke *    Nancy Perry    Megan & Sarah Perry-Spears *    Lauren Phillips *    Peter Phillips *    Lisa Pinto    Eileen Pollack    Josie Raney     Candace Rivela    Rhona Robbin    Rebecca Rozen *    Carla Samodulski    Terri Schiesl    Emily Schmalzer    Sigrid Schmalzer  Roger Schwartz    Alicia Scotti    Sandra Serebin    Sam Shaber    Katja Shaye *    Ginny Shubert    Brigid Siegel    Adam Singer *    Kirit Singh *  •  Erik Skarstad *    Jane Smith    Janet Byrne Smith    Kimberleigh Smith    Fred Speers & Chase Skipper    Alexandra St. Charles *    Danielle Stein    Paul Stenis *    Krishna Stone    Matthew Taylor *    Amy Tenenbaum    Naomi Tolson    Matthew Trokenheim & Jen Simon    Marissa Walsh    Pam Warshavsky *    Clay Williams    Sherry Wolfe    Yu Wong    Therese & Lin Wu    Alison Yager

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BRAKING AIDS® Ride 2019. “This is the light of autumn.”—from “October,” by Louise Glück. Photo courtesy of Mikola De Roo.

On Hope, Uncertainty, and an AIDS-Free NY by 2020

In less than two months, once again, I’ll be participating in BRAKING AIDS® Ride, a 300-mile bike from Cooperstown to NYC. Between now and mid-September, I have two objectives: to get into some semblance of shape for the physical challenge of the ride and to raise $20,000 to support the amazing advocacy and services provided by Housing Works, the ride’s beneficiary.

Since my first year doing this ride in 2008, individual donations from people like you have been essential in helping me raise over $100,000 and counting to support life-saving services for those living with HIV as well as its efforts toward ending the AIDS epidemic once and for all. I’m counting on the support of hundreds of individual donors again this year to raise at least another $20,000 to end AIDS as an epidemic in New York by 2020.

Photo: Me on Day 1 of BRAKING AIDS® Ride 2018, by fellow rider Kyle Cameron. The photo later appeared as the Contents photo spread in the Nov./Dec. issue of Positively Aware magazine, which was pretty fabulous. 

As someone who worked at Housing Works for five years, I have seen firsthand how its programs and services make a concrete difference. Since its 1990 founding, Housing Works has provided services to more than 20,000 homeless and low-income New Yorkers living with HIV/AIDS. Unlike many HIV service providers, which tend to focus on one or two primary areas of service, Housing Works offers a startling array of programs that help address the overlapping, intersectional issues faced by its clients: In addition to housing, services include primary healthcare, meals, case management, nutrition, substance use treatment, legal assistance, and job training, as well as relentless advocacy at the city, state, and federal levels to fight for funding and legislation that will help us end AIDS once and for all. It also offers those services with respect and compassion, a context that is essential to healing but all too rare.

I began doing this ride in 2008 in memory of two family friends who died of AIDS-related illness in 1987 and 2003, respectively, and for many close friends who live with HIV. For BRAKING AIDS 2019, I am riding in memory of two friends who died this past year whose lives epitomize compassion and citizenry in the best senses of both words.

My friend Dawn Grimmett (1975–2019), a pediatric nurse who lived in Alabama, died unexpectedly this last April from complications from pneumonia. If we hadn’t both participated in AIDS rides, I might never have met Dawn—and I am lucky to have known her. Dawn was funny and kind. A giver of tremendous hugs and fierce loyalty. One had to pity anyone foolish enough to say a bad word about the people Dawn loved; as she herself put it, “I might look nice, but I’ll cut a bitch!” She also led by example: She was open and candid that she struggled with depression, which even today comes with so much stigma despite how common it is. Without fail, every year since 2004, Dawn traveled across the country to dedicate two weeks’ vacation to being a volunteer nurse on the crew for two different AIDS Rides—California AIDS LifeCycle in June and BRAKING AIDS® in September—dispensing Advil, Band-Aids, Gatorade, ice packs, sunscreen, and whatever medical care was needed, along with unconditional love, and just the right amount of snark. Her life, which ended all too soon, two months shy of her 44th birthday, is a testament to the power of showing up. Dawn reminds me that some of the most important and significant gifts to fellow human beings and contributions to a movement are comprised of mundane, ordinary, and often quiet acts of kindness. The impact of those acts are cumulative, and a commitment to those compassionate acts is the stuff that long-term change is made of.

Photo: This year, I will be riding in memory of my friend Dawn Grimmett (1975–2019), who was a volunteer nurse on every BRAKING AIDS® Ride I have ever done.

My friend Andy Vélez (1939–2019), a longtime LGBTQ and ACT UP New York activist, passed away on May 14 at age 80 after a severe fall in his Greenwich Village building earlier this spring. Andy joined ACT UP in 1987, the year of its founding, back when AIDS was a death sentence to so many, the downward spiral of the illness itself was ugly and painful, treatments were toxic and few, and our government leaders had been ignoring the burgeoning epidemic for six years. Andy was a devoted and fierce activist for 32 years, and his passion for and tenacity in undertaking righteous lifetime activism inspired and continues to inspire countless individuals, myself included. The friendship we developed during a relatively finite number of years of coalition activism together was and remains dear to me, and I miss his kindness, his delicious stories, his wicked and bawdy humor, and his authenticity. To read more about Andy’s remarkable life, check out the tribute that appeared in the Los Angeles Blade, as well as this piece in PLUS, “Why We Still Need HIV Warriors.”

Photo: This year, I will also be riding in memory of my friend Andy Vélez, a longtime LGBTQ & HIV/AIDS activist who passed away in May. In June, ACT UP New York created these buttons, featuring a portrait of Andy by Bill Bytsura of The AIDS Activist Project, in honor of Andy’s lifetime of fierce, relentless activism.

You don’t show up for 32 years of activism unless you have some faith and hope that what you’re doing will make a difference, whether you yourself are able to see that difference or not. Andy’s life is a reminder of that for me. It’s a reminder to heed what writer Rebecca Solnit says about hope:

“Hope locates itself in the premises that we don’t know what will happen and that in the spaciousness of uncertainty is room to act. When you recognize uncertainty, you recognize that you may be able to influence the outcomes — you alone or you in concert with a few dozen or several million others. Hope is an embrace of the unknown and the unknowable, an alternative to the certainty of both optimists and pessimists. Optimists think it will all be fine without our involvement; pessimists take the opposite position; both excuse themselves from acting. It’s the belief that what we do matters even though how and when it may matter, who and what it may impact, are not things we can know beforehand. We may not, in fact, know them afterward either, but they matter all the same, and history is full of people whose influence was most powerful after they were gone.” [emphasis mine]

I’m not usually good with uncertainty. In fact, I struggle with it. All the time. But BRAKING AIDS® and the example of people like Dawn and Andy challenge me to challenge myself to find that “spaciousness” Solnit describes.

When asked what he wanted to be remembered for, Andy once said, “As someone who is able to help.” I’m riding again this year because I am able to, and in that same spirit, I am asking for your help to support my efforts. Together, we can end AIDS.

Please DONATE TODAY. Donations of all sizes are welcome, but a gift of $200 or more will go a long way toward reaching my $20,000 goal. A $200 gift feeds 100 homeless youths at Housing Works’ East New York Health Center.   

DONATE VIA MY FUNDRAISING PAGE: https://give.classy.org/mika2019 

Photo: Me, wearing the Japanese ACT UP “Silence + Death” tee-shirt that Andy Vélez gave me several years ago as a gift, with my wife Jennifer at the Dyke March for NYC Pride 2019, which was also the 50th anniversary of the Stonewall riots.

Help Me Raise $15K for Housing Works & an AIDS-Free NY 2020

It finally feels like summer in NYC again. For me, a June heatwave means it’s long past time that I jumpstart my training and my fundraising for BRAKING AIDS® Ride.

Over the past decade, past donations from hundreds of generous souls have been essential in helping me raise over $90,000 and counting to support Housing Works’ many life-saving services for those living with HIV as well as its efforts toward ending the AIDS epidemic once and for all. 

I’m counting on that support again this year to raise at least $15,000 to end AIDS as an epidemic in New York by 2020.

WHY I KEEP RETURNING TO BRAKING AIDS® RIDE


Me, with some of my amazing Housing Works Advocacy colleagues and friends, who inspire me every day (L to R): Valerie Reyes-Jimenez, Legacee Medina, me, Felicia Carroll. 

For the first time since the AIDS crisis began, we have the tools to end the epidemic. More than six years ago, when the audacious goal of ending AIDS as an epidemic in New York, even without a cure or vaccine, was first proposed by Housing Works, Treatment Action Group, and other allies, many people thought it was impossible, and the Governor’s Office and the State Department of Health were not yet sold on the idea. Since then, Housing Works has provided unparalleled leadership to get New York to adopt a plan that makes full use of the tools we have to end AIDS as an epidemic statewide by 2020. At the time of the state plan’s launch in 2014, in the course of educating people about the plan and its feasibility, we said, “an AIDS-FREE New York is closer than you think…” We weren’t kidding. This past December we marked major milestones in the state plan to end AIDS: unprecedented city and state decreases in HIV diagnoses. In 2016, NYC achieved a record 11% decrease, and NYS achieved a corresponding 8.7% decrease. The legislation and policy changes we’ve been fighting for to end the epidemic are working, and we are on track to do it by 2020! And it’s not just New York: Since 2014, more than a dozen additional U.S. jurisdictions have committed to end-AIDS plans, and the U.N. has established 2030 as its target date to bring global infection rates below epidemic levels.

This will also be my 10th year participating as a rider in this annual 3-day, 300-mile journey by bicycle. People sometimes ask me how and why I keep coming back. As someone who has now worked in Housing Works Advocacy for going on five years, I truly believe in the Housing Works lifesaving services this ride supports—because I see those programs and services in action and how much they’re needed and the difference they make firsthand every day. But the truth is, as much as I truly believe in those programs and the organization’s mission, many of my reasons to keep showing up to ride are self-serving.

BRAKING AIDS® is unique because it isn’t only a ride, it’s also a family. The experience of being part of that family and this shared experience for over a decade has challenged me to be my best self, which is to say that it challenges me to be not necessarily my strongest or surest but to be willing to show up even as and at my most vulnerable and uncertain. To show up as myself even when I’m tired, depleted, demoralized, struggling, plagued by self-doubt. It’s taught me to show up and try even when I’m stretched thin and fairly certain I haven’t got it in me. It’s shown me it’s not only okay but healthy and necessary to ask for help at times, a tough, recurring lesson for me because I’m private, and I’m stubborn and fierce about my sense of self-reliance and independence (and even with years of practice, I will be the first to admit I’m still *terrible* at asking for help!).


Me, with my friend and fellow rider Jamil Wilkins, during BRAKING AIDS® Ride 2016, getting a hug after the first 60 miles of riding. 

BRAKING AIDS® is also unique because like Housing Works and the work it does, it’s a movement. Both these communities and movements understand we cannot end AIDS as an epidemic in our state, nation, or around the world unless we collectively address the social and economic drivers of HIV—homelessness, unemployment, racism, homophobia, transphobia, misogyny and sexism, addiction, and mental illness. In the dark and divisive times in which we are living today, we are faced daily with acts of hate in every manifestation, and much of what we see, hear, and read reflects a diminishment of empathy in the public sphere. That makes it more important than ever that Housing Works and BRAKING AIDS® have both always stood for what we at Housing Works call “Radical Inclusion”: for accepting people as they are. We stand for love that heals and for acts of kindness, especially those directed to strangers.

Movements don’t and can’t sustain their work based on the efforts of any individual. As poet Mayda Del Valle wrote, “a movement is not a flash of light— it is a flame, a torch passed from one…to the next.” For that reason and in that spirit, I am asking for your help again to support my efforts. Together, we can end AIDS.

How You Can Help

Please consider DONATING TODAY! Here’s what your gift can help support:

$1,000 sustains one month of supportive housing

$500 provides 100 hygiene kits for homeless youth

$250 supports 30 days of mental health and substance use counseling

$150 covers a one-night stay at a Single-Room Occupancy for 2 homeless youth in need of emergency housing

$100 feeds 25 homeless youth during evening drop in hours at Housing Works’ East New York health center

DONATE VIA MY FUNDRAISING PAGE: 

https://fundraising.housingworks.org/participant/mika2018

Ways to make giving easier, to make your donation go further & to help me reach my $15K goal sooner: 

• PLEASE CHECK WITH YOUR HR DEPT. & SEE IF YOUR COMPANY WILL MATCH YOUR DONATION! If so, then check the “YES” bullet in the Company Matching section of the online donation form, and fill out the related information. You may be able to double or even triple your contribution! In 2016, over $3K of the $23K I raised came from company matches, so I cannot underscore enough how much this helps. 

• Recurring Monthly Gift: On the donation page, once you select a gift amount, click on the “Monthly” option to set up a recurring donation of any amount over your desired period of time. I prefer to donate this way because I can give more with only a small hit coming from my wallet each month.

• Cover Processing Costs:  Each donation incurs a processing fee that’s 7% of your gift. When the overall fundraising goal is $15K, 7% adds up: If everyone who gives covers the processing fee, that’s more than an additional $1,000 that goes straight to work at Housing Works. 

• Please forward this information to EVERYONE. Spread the word to your friends & colleagues! Forward the link to this blog post or share my donation link with your own networks on Facebook, Twitter, Instagram & other social media.

Thank you in advance for your generosity, friendship, kindness, encouragement, and support! I couldn’t do this without you.

Please join me & Housing Works in the fight to end AIDS by donating to Braking AIDS Ride 2018 (Cooperstown, NY, to Manhattan, Sept. 14-16)—Mika De Roo, Rider # 32. Donation site: https://fundraising.housingworks.org/participant/mika2018

Recap & Photos from BRAKING AIDS Ride 2016

A triumphant moment at Mile 97 of 107 on Day 2 of BRAKING AIDS Ride 2016, near Milford, CT:

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As of the closing ceremony on Sept. 25, BRAKING AIDS Ride 2016 raised a net total of over $251,000 for Housing Works and its HIV/AIDS services—a number that has continued to increase in the weeks since, as post-ride donations have kept coming in. (I’ll be able to relay a final amount raised sometime around the end of the month. Stay tuned!)

To my amazement, thanks to the big hearts of over 140 individuals and a handful of fabulous corporate matching gift programs—the complete list appears at the bottom of this post—I was able to raise over $23,000. That fundraising total is over 50% more than I’ve raised in my biggest fundraising year doing this ride. From the bottom of my heart, thank you thank you thank you.

I couldn’t have done it without all of you. Some photos from the ride—some of which you may have seen if you’re on Facebook—appear below.

Me, reuniting during orientation with dear friend Tim Fitzpatrick, who I first met on the road in 2008 during my first of these AIDS rides (and no, his beard color isn’t typical; it was part of one of his fundraising campaigns for the ride):

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Photo courtesy of Angela Taylor

Sunrise on Day 1 of the ride before opening ceremonies, Dedham, MA:

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I always ride every year in memory of two family friends who died of AIDS and in honor of many friends—more than I can count—who live with HIV. This year, I got an unexpected, unsolicited donation from a friend who usually rides but who couldn’t ride this year and served on crew instead—a dollar for every year that she and her family have been without her brother Ira since he died of AIDS in May 1987. So this year I rode in his memory as well and I carried this postcard with me as I rode. His full name and the names of the others for whom I ride appeared on the back:

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Me, getting a much-needed squeeze from fellow rider Jamil Wilkins during lunch, Day 1, somewhere in hilly Rhode Island:

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My favorite rest stop on the ride is near the end of Day 1, at the First Congregation of Griswold, in Griswold, CT. Every year, these amazing people come out to cheer us on and ply us with homemade pie and soup, as well as cards of encouragement from kids in the congregation. If all religious folks were as open and loving as these people are, the world would be a different, better place. Also, I highly recommend their strawberry-rhubarb pie.
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I ate my strawberry-rhubarb slice so quickly, I didn’t even get a photo. This is the blueberry, also a delight:

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Mile 97 of 107 on Day 2, near Milford, CT:
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Day 2 of the ride is Red Dress Day, so called because everyone is encouraged to don red clothing. The original idea was that from overhead, the riders cycling along the route would look like a red AIDS ribbon. However, AIDS ride cyclists and crew being the drama queens that they are, the Red Dress Day costumes range from the fashion forward to the fantastical to the frightening, and sometimes combine all of the above. This is what my better half Jen, who served on the crew again this year, wore that day. But lest you give her all the credit, I found that fetching squid headdress for her, courtesy of Marine Specialties in Provincetown, Massachusetts. Sorry, folks: This stunning cephalopod is spoken for.

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Photo courtesy of Monica Anderson

Scenic vistas from early morning on Day 3, near Southport, CT:

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Photo courtesy of Kathryn Leach

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Photo courtesy of Ann McCall

Riders gathered together right before closing ceremonies, Day 3, Cylar House, NYC:

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Imagine my shock to arrive at closing ceremonies only to be greeted by an giant “Welcome Home” banner of me and my friend and fellow rider Humberto Alers hanging above the Cylar House entrance. Humberto and I have gotten over our modesty and are available for any and all modeling gigs, FYI, should you have an upcoming photo shoot:

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Photo courtesy of Jennifer L. Anderson

The check presented to Housing Works during closing ceremonies for over $251,000. Now $251,000 and counting! And yes, if you are kicking yourself because you meant to donate, for the next few weeks you still can!

CLICK HERE TO DONATE

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THANK YOU AGAIN TO ALL MY AMAZING 2016 BRAKING AIDS RIDE DONORS:

Anonymous (39)
Jessica Abel & Matt Madden
Christopher Anderson & Melissa Stupka
James Anderson & Suzy Turner
Renée Anderson
Leah Bassoff
Charles Baxter
Jaron Benjamin
Jon Bierman
Kristin Bowen & Sam Cohen
Robert Brooks
Light Buggiani
Stephanie & Bill Carpenter
Donna & John Carroll
Stephanie Carroll
Lynne Carstarphen
David Cascia & Elite Fitness
Laura Coaty
Nancy Crochiere
Scott S. Davis
Adele Della Torre & Spencer Kubo
Mark Denecour
Mika De Roo
Zoe DeRoo
Nicole Dewey & Bill Seely
Disney
Annie & Jon Dunham
Blake Dunlap
Mariamne Eliopoulos
Kory Floyd & Brian Seastone
Dianne Orkin Footlick
David Gifford & Svenja Leggewie
Michael & Nicola Gillespie
Rebecca Gilpin
Goldman Sachs
Google
David Groff
Amanda Guinzburg
Karen Henry
Frank Hopp
Andrew Janke
Abigail Katz
Alison Kliegman
Carolyn Lengel
Becky Lien
Kelsey Louie
Rachel & Jon Lowy
Matt Martin
Mark Matienzo & Chela Weber
Karen McGrane
McGraw-Hill Education
Derek McNally
David Meier
Microsoft
Heather Mirman
Ben & Lorraina Morrison
Elizabeth Murphy
Liz O’Brien & Steve Emrick
Eva & Tom Okada
Jacob Okada & Carylanna Taylor
The gals at Papél New York
Gregg Passin
Anne Paterson
Nancy Perry
Abigail Pogrebin
Eileen Pollack
Josie Raney
David Raper
Felicia Rector
Candace Rivela
Rhona Robbin
Kenneth Robinson
Terri Schiesl
Roger Schwartz
Sandra Serebin
Samantha Shaber
Beth Shapiro
Virginia Shubert
Jane B. Smith
Frederick Speers & Chase Skipper
Andrew Spieldenner
Krishna Stone
Matthew Trokenheim & Jen Simon
Reed, Anna & Mila Vreeland
Clay Williams
Yu Wong

Help Me Raise $20K to End AIDS in NY by 2020!

Since 2008, I’ve participated in BRAKING AIDS® Ride, an annual 3-day, 300-mile journey from Boston to NYC by bicycle. Over that time, I’ve ridden thousands of miles on my trusty blue bicycle, The Blue Streak, to elevate awareness about HIV/AIDS. (Over 13,000 miles and counting—no joke!)

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me, halfway through last year’s BRAKING AIDS Ride

We’re at a pivotal moment in the fight to end AIDS. Individual donations from hundreds of kind souls every year have been essential in helping me raise $70,000 and counting to support Housing Works’ many life-saving services for those living with HIV as well as its efforts toward ending the AIDS epidemic once and for all. Last year, I raised more than $14K. This year, I’m counting on the support of everyone I know to raise $20K for 2020—$20,000 to end AIDS as an epidemic in New York by 2020. (And yes, you read that correctly. I’m attempting to raise $20,000 in the next 7 weeks before the ride.)

I started myself off with a $500 donation—using the handy monthly donations option—and am aiming to kick in another $200–300 of my own by the ride. As of this writing I am at nearly $6,200, roughly 31% of my $20K goal.

If you already know the deal and want to just DONATE NOW, click here or scroll down to the “How You Can Help” section for details.

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with Advocacy Dept. colleagues at this year’s NYC LGBT Pride march

The Hard Work is Working

It bears repeating: We can end AIDS as an epidemic, even without a cure or a vaccine. Along with many allies at the city, state, and national levels, Housing Works remains at the forefront of that movement. Once the epicenter of AIDS, New York is now at the forefront of progress. New data just released by the NY State AIDS Institute underscores that we are on track to end the epidemic: State HIV diagnoses are at a historic low, and the number of HIV+ New Yorkers who have reached “undetectable” status, the optimal health outcome for those with HIV, is at its highest ever.

What was once considered impossible, even crazy, or just overly optimistic sloganeering, is now a discernible future within reach. The audacity that it has taken to achieve the above milestones is taking hold and inspiring others to follow suit: San Francisco now has its own plan to end AIDS, and similar plans are in the works in other states and jurisdictions.

Why I’m Doing More

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Someone said to me recently, “when you’re close to reaching a finish line, you don’t slow down or take your foot off the proverbial gas. You floor it.”

In the spirit of flooring it and daring to push harder, I am making my own move toward audacity by raising my fundraising bar this year—A LOT. In support of NY’s 2020 goal, in the hopes of what it may inspire others to reach for, and in support of all the Housing Works initiatives that will help us get there, I’m aiming to raise $20,000 for BRAKING AIDS® Ride 2016. In 2015, I raised over $14,000, so this year’s $20K goal is an ambitious stretch. But with your help and the help of other donors, it is more than possible.

The future of ending AIDS is up to us. We know how to do it with the existing prevention and treatment tools; we just need to invest in and expand upon the strategies that make those tools accessible to everyone who needs them.

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Every day is a great day to end AIDS.

How You Can Help

CLICK HERE TO DONATE TODAY & DIG DEEP. Donations of all sizes are welcome, but a $150 contribution or more will go a long way toward getting me to my $20,000 target. A $150 donation to Housing Works feeds 75 homeless youths during evening drop-in hours at Housing Works’ East New York Health Center. (More details on what different donation amounts will support can be found here.)

PLEASE CLICK HERE TO MAKE A TAX-DEDUCTIBLE DONATION NOW.

Some ways to make giving easier, to make your donation go further & to help me reach or exceed my $20K goal sooner:

  • PLEASE CHECK WITH YOUR HR DEPT. & SEE IF YOUR COMPANY WILL MATCH YOUR DONATION! Then check the “YES” bullet in the Company Matching section of the online donation form. (It’s the click-box under the donation amounts that’s labeled “This gift is matching eligible.”) You may be able to double or even triple your contribution! In 2015, over $3K of the $14K+ I raised came from company matches, so I cannot underscore enough how much this helps.
  • Recurring Gift: On the donation page, select the bright pink “Repeat Monthly” option at the bottom of the list of donation amounts to set up a recurring donation of any size over your desired period of time. I prefer to donate this way because I can give more with a smaller hit to my wallet each month.
  • Opt to cover the online donation processing costs. Right under the bright pink bar with the “Repeat Monthly” option, there’s another click-box that gives you the option to absorb the online processing fee that otherwise comes out of your donation. It’s a 7% fee, which is pretty small amount per individual donation, but if every one of my donors chose to cover this fee, it would mean thousands more overall in unrestricted donations to Housing Works.
  • Please forward this information to EVERYONE. Spread the word to your family, friends & colleagues! Send the link to this blogpost or share my donation link with your own networks on Facebook, Twitter, Instagram & other social media.

 

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Thank you in advance for your generosity, kindness, encouragement, and support! I can’t do this without you.

Mika, BRAKING AIDS Rider #32

Please join me & Housing Works in the fight against AIDS/HIV by donating to Braking AIDS Ride 2016 (Boston to Manhattan, Sept. 23-25)—Mika De Roo, Rider # 32. Donation site: http://tinyurl.com/Mika20KforAIDSFreeNY2020

Why I Keep Coming Back to BRAKING AIDS Ride Every Year

This will be my eighth year participating in BRAKING AIDS Ride. One need look no further than this video of last year’s ride and of the amazing ride family I get to share this journey with each year to understand why I keep returning:

This year, I’m aiming to raise $20,000–much more than I’ve ever raised before–in support of Housing Works and New York’s ambitious plan end AIDS as an epidemic by the year 2020.

TO SUPPORT ME FOR BRAKING AIDS® Ride 2016, CLICK HERE. My goal is to raise $20,000 between now and September to benefit Housing Works life-saving HIV/AIDS services and to support the goal of reaching an AIDS-Free NY 2020.

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No Grit, No Pearl: What I Do the Day After Love Wins & U.S. Marriage Equality Prevails

Family & friends joined me and my wife Jen for our wedding in Provincetown, Massachusetts, on May 16, 2010. Marriage equality was the law of the land in the Commonwealth of Massachusetts then, but had been voted down in New York State, our home, on my birthday, December 2, 2009.

Family & friends joined me and my wife Jen for our wedding in Provincetown, Massachusetts, on May 16, 2010. Marriage equality was the law of the land in the Commonwealth of Massachusetts then, but had been voted down in New York State, our home, on my birthday, December 2, 2009. Photo by Doreen Birdsell.

Part I. June 26, 2015, still taking in the amazing Supreme Court Decision on Marriage Equality:

I remember exactly when NY State (the State Senate, specifically) last voted against marriage equality because it was on my birthday, December 2, 2009. When my wife Jennifer and I got married in May 2010, after 12 years together, we held our wedding in Massachusetts, where gay marriage was legal. At that point, NY State still hadn’t budged on the issue. NY State finally did the right thing right before LGBT Pride in late June 2011, a full two and a half years after that contentious 2009 vote, with the passage of the Marriage Equality Act. NY was only the 6th state in the U.S. to legalize gay marriage, and it was also the most populous state in the union to have done so. That was four years ago, almost to the day.

My wife and I never thought we’d see marriage equality across the U.S. in our lifetimes. In the optimistic moments when we dared imagine, however briefly, that that miracle might happen at all, we didn’t think it would be until we were very old.

We were wrong.

Fred Speers, officiating at my wedding, May 16, 2010, West End of Provincetown, Massachusetts.From left to right: my wife Jen, Fred, me. Photo by Doreen Birdsell.

Fred Speers, officiating at my wedding, May 16, 2010, West End of Provincetown, Massachusetts.From left to right: my wife Jen, Fred, me. Photo by Doreen Birdsell.

I often find myself being the skeptic about our collective capacity to change for the better as a society. The news I see every day, especially where it concerns race and class, seems to confirm that dire, grim trajectory: a seemingly endless stream of depressing, enraging, heart-breaking news stories and statistics. In particular I am thinking of racist verdicts and acts of racially-based hatred and violence across different U.S. cities and regions. Trayvon Martin, Mike Brown, Eric Garner, Freddie Gray, the recent mass murder of 9 black people in a Charleston church by racist, domestic terrorist Dylann Roof. Between news like that and our collective inability to move U.S. public policy in any meaningful way on issues like gun control or climate change, it makes it easy for me to become disheartened and to tell myself, although small victories may happen, the big, national-level progress I so long to see is impossible, that really, as a nation, as a deeply flawed democratic, capitalist experiment, maybe we’re just fucked.

And maybe we are. God knows, even after today’s coup for LGBT Americans, we have a daunting amount of work to do to make things better for the vast majority of our citizens & residents.

But a day like today is evidence that when we keep at it, change for the better does come. Excruciatingly slowly. But nevertheless.

I was reminded of that fact further when I saw that my dear friend Frederick Speers, my other me, had posted in a similar, more personal vein about this same pendulum-swinging, what Martin Luther King Jr. meant when he said, “The arc of the moral universe is long, but it bends towards justice.” I’m sharing Fred’s post along with mine because it’s worth reading, I dare say more so than my own. Not only because I love him. Not only because he officiated at my Massachusetts wedding to Jennifer Anderson in 2010 and I officiated at his MA wedding to Chase Skipper in 2009. I share his post below because he’s brilliant and eloquent at showing first-hand how that moral arc has bent toward justice and equality for him, within his own lifetime. In less than 30 years, we’ve gone from a world that told him as a young boy, “if you’re gay, you’re better off dead,” to one that acknowledges him, his life, the love of his life, and their marriage together as being as worthy of life, liberty, and the pursuit of happiness as everyone else’s.

Fred’s Facebook post on Friday morning, just after the Supreme Court decision was made public:

At 12 years old, I asked god whether I should die because I loved another boy. I listened. And the people said: “There is hope for homosexuality, especially through prayer – because it’s not an unchangeable CONDITION like being black or a woman.”

At 18 I asked to hold my boyfriend’s hand in public. I listened, and the people said, “This isn’t a real problem for us — since you can’t reproduce, and AIDS will finish you off.”

At 21 I asked to serve my country. I listened and the people said, “ONLY if you lie about who you really are.”

At 33 I asked to marry the love of my life. We listened together. “OK,” the people said, “but only in a handful of states.”

At 39 we asked for equality for all. We held our breaths. And the people said, “We see you now for who you are: Your LOVE matters.”

#lovewins

Fred Chase Me 6.6.09

Me, with Chase Skipper and Fred Speers, on June 6, 2009. I officiated at their wedding in Provincetown. Nearly a year later, Fred officated at mine to Jen Anderson, also in Provincetown. Chase is holding their marriage license, which I had just signed.

So, let this day of celebration also be a reminder, dear friends, to my future self above all, that Sam Cooke was right when he wrote and sang in 1964, “It’s been a long, long time coming,/ But I know a change is gonna come; oh, yes, it will…”

#‎lovewins‬

Part II. June 27, 2015, The Day After a Winning a Hard-Won Battle, or, “No Grit, No Pearl,” or, What’s Next?

It’s been quite something to see and hear the amazing love, joy, and support from gay and straight friends and family alike in the aftermath of this historic ruling. I think the full weight of it still hasn’t quite sunk in, to be honest.

I posted on Facebook last night that Jen and I didn’t think we’d see this change happen in our lifetimes, or if we did, we believed we’d be old. Very old.

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Same-sex self-portrait, #NYCPride, me with Jennifer L. Anderson, June 28, 2015. Photo by Jennifer L. Anderson

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Me with my amazing Housing Works Inc. Advocacy compadres, rocking ‪#‎NYCPride, June 28, 2015‬. The parade was so nice, we did the march twice! This photo was taken after Round 1, from left to right: Vinay Krishnan, Tony Ray, Jaron Benjamin, and me. Photo courtesy of Tony Ray.

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Notorious RBG! One of my favorite sightings at #NYCPride, June 28, 2015. Photo by Jennifer L. Anderson.

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The Housing Works float, during the long wait to march at #NYCPride, June 28, 2015. I think the thing that may have moved me most at Pride was the young kids we kept meeting throughout the day, strangers from Alabama and Arkansas and Indiana and even from New York or somewhere geographically closer, who kept thanking us and reaching over the police barricades to high-five us or hug us because they were so happy and they know what a big deal this marriage equality is. I couldn’t pinpoint what it was about their joy that was so beautiful and then I realized: They looked hopeful. Photo by Jennifer L. Anderson.

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Housing Works in the #NYCPride house, getting ready to march down Fifth Avenue, June 28, 2015. Photo by Jennifer L. Anderson.

Days like yesterday, which was and is a very personal celebratory moment for me and for many people I love, are also a reminder that when we work for the greater social good, year after year, decade after decade, century after century—even when it seems like we’re going nowhere because so many who wield power and wealth use those things to reflect all the hate in their hearts—when we keep at it, change does come. Excruciatingly slowly. But nevertheless.

To get there, though, we have to keep showing up, even when we seem to be in the darkest of tunnels. When all the news we see and hear is bad, unjust, unconscionable, shameful.

That being the case, this seems the perfect day to begin my fundraising for this year’s BRAKING AIDS® Ride.

I also marked this post-SCOTUS victory day with a 68-mile training ride to Nyack and back. There are no cute photos. It rained on the way back. I was alone, woefully behind on my training this season, slow. I didn’t break any records with my astonishing speed or hill-climbing prowess. I wasn’t special. Or charming. Or intelligent. My ego felt bruised at various points. I kept going. I climbed through Palisades Park for the first time this season. I ate my bagel at The Runcible Spoon and as I sipped my iced coffee, I texted everyone who was on my mind because I felt sad and a little lonely and a little scared about how I would feel on the four miles of climbs going back home. Not every fucking moment is a victory lap. Most moments aren’t. Most moments are training, which is work. I showed up. I worked. That is all.

This will be my eighth year doing this 3-day, 300-mile journey by bicycle to raise money for Housing Works and to raise awareness about HIV/AIDS. When I started back in 2008, I’d never raised this kind of money or ridden a bike this far or this hard. In the years since then, I’ve put in something like 13,000 miles on the same blue bicycle, and raised between $60,000 and $70,000.

My most generous supporters have donated with astonishing generosity year after year. Their support inspires and amazes me. Above all, it’s necessary, which is why I continue to ask for their help and the help of other kind people I know again and again, each time wondering whether they’re sick to death of hearing me ringing a relentless AIDS-fundraiser gong.

For now, I’m not going to belabor the importance of the cause and how this money helps people who need help. I’m not going to get into all the ways in which Housing Works lives out the belief that even the seemingly weakest or lost or most far-gone among us are deserving of second or third or fourth or however many chances it takes to change and make their own lives and the world they live in better. I won’t regale you with HIV statistics. For now, I’ll say this: We can end AIDS as an epidemic, even without a cure or a vaccine. Housing Works has been at the forefront of that movement toward an AIDS-Free New York, an AIDS-Free USA, an AIDS-Free world. This is our JFK moonshot. We will get there.

Change comes when people show up for the fights that need to be fought. The most important kinds of change are hard-won and require showing up again and again and again and again.

I’ll end with this: HIV/AIDS has been plaguing us for over 30 years. We’ve been fighting for a long time, and we’ll keep fighting until we reach an AIDS-free world. Change is coming.

TO SUPPORT ME FOR BRAKING AIDS® Ride 2015, CLICK HERE. My goal is to raise $10,000 to benefit Housing Works life-saving HIV/AIDS services by July 31, 2015.

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The Housing Works #NYCPride contingent, getting ready for lift-off, June 28, 2015. Photo by Jennifer L. Anderson.

Is that a Housing Works sign or is the Governor just happy to see me? New York was the sixth state in the U.S. to make marraige equality legal and the most populous. It led the way for the domino effect of states that changed their laws to move toward the right side of history. New York can do the same for HIV/AIDS, which is as big and arguably an even bigger social justice issue than marriage equality. It's also a battle we're still fighting.

Is that a Housing Works sign or is the Governor just happy to see me? New York was the sixth state in the U.S. to make marraige equality legal and the most populous. It led the way for the domino effect of states that changed their laws to move toward the right side of history. New York can do the same for HIV/AIDS, which is as big and arguably an even bigger social justice issue than marriage equality. It’s also a battle we’re still fighting. Photo by Anthony Lanzilote.

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The Housing Works community, marching for #NYCPride, June 28, 2015. What’s next? Fighting for and achieving an AIDS-Free NY by 2020. Photo by Jennifer L. Anderson.